Make Room For The Stuttering

Posts Tagged ‘listener reactions to stuttering

10 days ago I shared here that I was concerned and shocked actually that a nurse in one of my physician’s offices laughed and made fun of my stuttering when she asked me my birth date. I remained composed and called her on it, fairly calmly telling her I was stuttering and that was what she was hearing. Not only did she laugh, twice, but she also made a smart comment, saying, “It’s not a trick question,” when I stumbled over the numbers of my birth date.

I really was shocked that this happened. It’s been out there over the last year in the media, where people who stutter have been laughed and mocked by retail or fast food customer service employees. It had been a long time since a medical professional had reacted like this with me and it really bothered me. After standing up for myself to her, and not getting an apology, I stewed about it for a day or two.

Then I decided to contact someone in the “Patient Experience” department in the hospital that oversees the practice in question. I wrote a detailed account of what had happened and how it made me feel and included all of my contact information.

Two days later I got an email response that my information had been received and forwarded on to the appropriate people.

Yesterday I got a call from someone in “Patient Experience” who said she was one of a number of people who had been forwarded my email. She apologized on behalf of the hospital and wanted to know what could be done to make it right. I reiterated like I had in my email that I think some type of education needs to occur to prevent another such belittling experience from happening to someone else who stutters, possibly someone who is not as far along as I am to feel comfortable to stand up for myself like I did.

I also stated that I don’t want it to become a situation where it becomes uncomfortable for me to go to back to the office for follow up, as I like my provider. The woman was very thorough and professional and again offered up apologies during our conversation. I mentioned had the nurse in question apologized to me when I stood up for myself we probably wouldn’t be having this conversation.

This person let me know that she would be passing this along to the specific office manager of the practice where this encounter occurred and that person would likely contact me next. I look forward to that conversation.

And I am happy with myself for having the courage to follow through on this. All of our voices need to be heard.

Lately I’ve given a lot of thought to all of the different places I stutter and the observations that I’ve had that I stutter differently in those places. I am sure this is not a novel thought but is one that I’ve noticed I’ve paid attention to more recently.

I stutter at work. But differently in the many roles I play. When I cover for the receptionist, I almost always stutter when I answer the phone. I always repeat a couple of times on the “R” that begins the name of my school. Sometimes that brings laughter from the caller and it really bothers me, even after all these years of being OK with stuttering.

In small group conversations with the office staff, I almost never stutter. In larger group meetings, I might stutter when called on spontaneously. When I go out to my district schools and deliver outreach presentations to large groups, I stutter, but variably. Not so much for the first one or two, but I observe much more noticeable stuttering towards the end of the day as I tire. Also, I stutter much more when reading from prepared notes or a script and much less when I am just speaking more conversationally.

I stutter at home on the phone. It doesn’t seem to matter much who I am speaking with. It happens and for the most part I am OK with it, probably because, unlike at work, the caller doesn’t laugh when I stutter.

I don’t seem to stutter much at family gatherings but I do tend to be more on the quiet side, so not as much opportunity for stuttering if I am not talking, right? That is a long ingrained habit from my childhood. I was always quiet because of the negative reactions I received from my father. I enjoy being social and chatty when with friends but still retain my quiet, reserved, guarded side when with family.

I stutter when with friends who stutter, comfortably and easily and probably even more so than when I’m at work. My guard is down when with friends who stutter as I have absolutely no fear of judgement.

What about you? What are the different places that you stutter? Have you observed this or paid attention? Do you have different feelings about your stuttering depending on where you are and who you are with.

I’m interested. Please share your thoughts.

I had the opportunity to present about stuttering to a group of high school students specializing in neuroscience and all things associated with the brain. They are all so smart, far smarter than I ever remember myself being at their age.

The teacher has invited me to do this talk for several years and I am always up to the challenge. To keep a talk about a disorder that is limited to just a small percentage of the population interesting and engaging enough for young people is indeed a challenge.

But I did it and was just so amazed with their genuine interest and thoughtful questions. I spent about half the time sharing current research with them on stuttering and the brain and the other half of the time sharing personal stories that hopefully truly illustrated for them what stuttering really is and is not.

Today I got some feedback from each student. It really made my heart sing to read their comments and be left feeling that I really did help educate them on something that might stay with them for years to come.

Here are a few of the feedback pieces I am so proud to share here.

Thank you so much for coming and talking to us about the neuroscience of stuttering. I really enjoyed how your talk with us was so different than the other ones we have had. Nobody really talks about stuttering and the science behind it, so I thought it was really interesting. I never realized how low the statistics were of developing a stutter and not growing out of it. It really interested me how women are so much less common to stutter than men. I really wonder why. I really would like to say that the confidence you have when speaking is really something noticeable and powerful. The fact that you don’t care as much about what people think of you is really something important. Thank you so much again!

Thank you so much for coming and talking to us on Friday.  It was really interesting and illuminating to see stuttering from the perspective of someone who stutters and then to see the neuroscience behind it as well.  I never really thought of stuttering as being so stigmatized before, but after your talk, I realized how bad the media makes it seem. Now being aware of that will make me more able to communicate with someone with a stutter or even someone who has something similar.  The key to being able to better communicate with people from all different backgrounds starts with making an effort to understand those backgrounds and treating them as you would anyone else. Thanks again for taking the time talk to us.

Thank you so much – and I mean it – for coming in to talk about stuttering and the problems or lack thereof associated with it. I was able to relate with what you said even though I myself don’t have a stutter, and it’s nice to see someone so confident and well-spoken talk about something I relate to so much. Although the science was interesting as well, I will say just you talking about your experiences and how stuttering affects your everyday life was my favorite part of the rotation.

 

 

hand-to-ear-listeningI came across something in the “Notes” section of my phone from three years ago. I obviously felt it was important enough to write down. I’m not sure what lead me to read it again this week, but it really spoke to me.

“For years, we have gone to speech therapy to change the way we speak to make it more comfortable for others. We shouldn’t have to do that anymore.”

This brought back memories of when I participated in speech therapy for the first time as an adult about ten years ago. It was traditional fluency shaping therapy with the goal of changing the way I spoke. I greatly resisted this, without even knowing I was resisting!

I found it hard to learn the “targets” and even harder to demonstrate them. It felt mechanical and clinical and I couldn’t figure out why this wasn’t working for me. I also began to feel like I was failing and I wasn’t used to failing at anything. The harder I tried to “shape my speech differently” the more I failed to do so.

Finally, I realized that the reason I wasn’t succeeding with using fluency targets was because I didn’t want to use them. I felt like creating a different way to speak really just made me covert again. And more importantly, it felt like creating a different way to speak was more for the benefit of others than for me. It seemed like I was working at changing my speech so that listeners wouldn’t be uncomfortable and so that I wouldn’t have to explain why my speech was different than the norm.

People had told me I should try to be fluent when going for job interviews and giving presentations at work. But inside, I felt like that was taking my voice away, and I had been taking my own voice and hiding it away for years. This was the beginning of my personal realization that I didn’t want or need to be fixed and that I didn’t need to conform to be like everybody else.

We don’t need to make people feel more comfortable when listening to stuttering. We all need to just be patient and present communication partners.

Have you ever considered why you participated in speech therapy? A friend recently mentioned that his employer “made him” attend speech therapy sessions because a client was having difficulty with his stuttering. Thoughts?

I came across this great phrase “living out loud” in a post I referenced on Facebook four years ago. It popped up in my memories section of Facebook today.

The article was about a high school senior who was going to give opening remarks to 2500 people at his graduation. He stutters and wasn’t letting anything stand in his way.

The headline of the article read “Tenacious grad doesn’t let fear stop him from living out loud.” I remember thinking how much I liked that phrase, particularly about someone who stutters.

How many of us have lived silently, below the radar, taking a backseat at school or work because of our stutter? How many of us have let fear of possible negative social reaction hold us back from doing something we really want to do? How many of us have been told we couldn’t do something because we stutter and we believed that and took it to heart?

I did all of those things for a long time when I tried, unsuccessfully, to hide my stuttering. I let people’s negative reactions affect the way I thought about myself and purposely chose to stay in the background. I thought that was safer and I wouldn’t be subjected to other people’s ridicule or negative beliefs about me.

But it wasn’t safer. I was compromising my self respect and authenticity by pretending I didn’t want to be involved in life’s moments. I desperately wanted to be involved. I had a voice and it yearned to be heard, repetitions, shakes and all.

I wasted many years being silent and pretending that I was OK with that. Over the last nine years, I have made up for lost time. I let my voice be heard. I don’t let anyone silence me. I don’t choose silence. I am living out loud and letting people hear my unique voice.

I challenge you to do the same. Let your voice be heard. Take a chance and say yes when someone asks you to do a talk or presentation or participate in a conference call. Go on job interviews with the confidence that you’ll be memorable and that people value your abilities. Talk to your child’s teachers, make your own phone calls and don’t let anyone tell you that you can’t do anything because of your speech.

Live Out Loud.

 

So often, I read on social media about people who stutter being frustrated that they stuttered. People share posts that they had a bad day because they blocked on every word during a presentation. Or they didn’t order what they wanted at a restaurant because they couldn’t say the word lettuce that day.

Some people describe an upcoming speaking situation they have and how nervous they are that they are going to stutter. They ask for good luck to be sent their way. They hope for fluency.

We who stutter are so quick to describe our bad days – stuttered out of control, stuttered really bad, or didn’t finish speaking before someone interrupted or walked away.

We might beat ourselves up for how we’ve reacted to our stuttering moments. That’s something I continue to work on. I often stutter and then feel embarrassed, and then beat myself up for being embarrassed. I’ve heard and read similar from others who often second guess what they should have done or how they should have reacted to their stuttering. I guess it’s just human nature to commiserate with each other.

So, given all this, what then constitutes a good speech day? Is it when we don’t stutter?

I don’t think it can be that, since as people who stutter, we stutter. Right? We’re going to stutter every day.

I’d like to suggest that a good speech day is when we’ve said everything we’ve wanted to say, stutter and all. We got through our presentation, we had the important talk with our boss, we ordered what we wanted at the restaurant. And we stuttered.

I think conveying our message and getting our point across in the way we talk, as stutterers, is important. That can be our measure of success, instead of trying to be unrealistic and hope that we don’t stutter.

What do you think?

 

 

PamEpisode 152 features CiCi Adams, who hails from Pennsylvania, but is presently living in Brooklyn, New York. CiCi is a journalist at People Magazine and enjoys writing, dance and eating lots of Chinese food.

Listen in as we discuss what’s helped her to be OK with stuttering, how she handles interviews at work, interacting with other people who stutter and so much more.

CiCi is a member of the NYC National Stuttering Association chapters and talked about the one day conference that NSA NYC is sponsoring in May.

And Cici blogs. She wants her blog to grow. Please check her out at The Plight of the Stuttering Journalist and let her know you’ve visited by leaving a comment.

This was a great conversation with yet another amazing woman. I feel so lucky to be able to host this podcast. My life has been enriched by all of these women’s stories.

The music clip used in today’s episode is credited to ccMixter.


Podcasts, Posts, Videos

Glad you're stopping by!

  • 562,531 visits

Monthly Archives!

Copyright Notice

© Pamela A Mertz and Make Room For The Stuttering, 2009 - 2019. Unauthorized use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to Pamela A Mertz and Make Room For The Stuttering with appropriate and specific direction to the original content. Same protection applies to the podcasts linked to this blog, "Women Who Stutter: Our Stories" and "He Stutters: She Asks Him." Please give credit to owner/author Pamela A Mertz 2019.
Follow Make Room For The Stuttering on WordPress.com