Make Room For The Stuttering

Posts Tagged ‘covert stuttering

I returned from my 14th consecutive National Stuttering Association annual conference on Sunday evening. It’s now Tuesday evening and I’m still recovering from the screwy schedule and overall weird week.

The conference had a much different vibe for me this year. For one thing, I did not lead or help with any workshops, for the first time since my second conference way back in 2007. It felt strangely naked to not always be looking at the time, and planning to leave sessions early to prepare for something else. My only responsibilities this year were to help lead the first timers activities and I wound up not even doing that.

The annual conference this year was held in steamy Fort Lauderdale, Florida. It was hot and incredibly humid the whole week. I literally only went out of the hotel two times in six days. It was stifling hot and I always find it harder to breathe in sweltering conditions like that, I get headaches and I fatigue much faster than normal.

The hotel and a five block radius lost power for most of the day on Wednesday, the official “start” of the 4 day conference. That meant there was no air conditioning for about 16 hours. The Board of Directors had our summer meeting in a sweltering room Wednesday morning and then I was down for the count. I felt sick and nauseous from being overheated and I quickly became dehydrated, which triggered my inflammation.

I wound up staying in my room for the rest of Wednesday and all day on Thursday too. By Thursday, power was back and I just took it easy in the AC and drank lots of water and felt normal again by Friday.

I felt so bad to have missed some things those two days but I have been getting much better at taking care of myself. I knew if I didn’t choose to hibernate, I would have missed things on both of the last days too. So I made the right decision.

I attended several really good sessions on Friday, including a last minute meet-up for covert stutterers. About 40 of us showed up just from word of mouth and it turned out to be one of the most powerful hours (for me) of the conference. People shared openly and with such raw emotion how it feels to sometimes hide our stutter and the complex feelings that arise from constantly trying to do so.

I also attended sessions on job interviewing (which is particularly applicable to me personally right now) and one which aimed to discuss implicit bias at work but kind of missed the boat a bit, which actually was quite OK because it spurred great dialogue.

I also had the chance to connect with several people I’d only met online so it was great to meet people in person and intentionally take time to connect. I often didn’t take the time to do this at previous conferences since I was busy with several workshops and leading other events.

I missed spending time with several close friends who I actually hardly saw at all, which contributed to the “weird vibe” I felt all week. A group of us always sat together at the Saturday night closing banquet. This year, I wasn’t part of that and it was OK. It gave me space to connect with Ariel, and meet Joseph’s wife, and talk with Sage and his wife, and Shannon and meet her mother, and go have a meal with Dana and Derek. Those moments were medicinal for me, like oxygen, like friend Hanan often says.

The highlight of the conference for me came Friday night, when I leaped far out of my comfort zone and participated in the inaugural session of a poetry “Stutter Slam.” I wrote an original piece and shared when it was my turn. I was nervous to deliver something so personal but it felt right. To my surprise, I won the event. I have received numerous requests from people to share a copy of my poem. Funny, I don’t want to do that because it doesn’t look right on paper, it only came out the way it did through the spoken delivery. Below is a recording of my performance. It felt so good and so right to share.

 

PamEpisode 199 features Anje Herde, who hails from Berlin, Germany. Anje is 36 years old and has been involved with stuttering self help for 15 years. She currently sits on the Board of Directors of the International Stuttering Association and has been active with the German Stuttering Association. She is also part of a new global initiative – as am I from the US – for improving employment for people who stutter all around the world called 50MillionVoices.

Anje is currently studying to become a certified Coach to help people realize their full potential and is also a trainer for companies in communication and collaboration, professions most people who stutter shy away from. One of her goals is to change leadership culture in the world to become more human and values based.

Listen in to this inspired conversation about when her “new life” started, the importance of “opening your heart” at work and that it can be done, and the magical moment when her own father who stutters spoke openly in public about it for the first time.

Anje also shares about her love of traveling and the growth she has experienced every time she stands outside of her comfort zone. And of course we talk about efforts made to increase understanding of stuttering around the world so that people who stutter can be themselves, feel like they belong and find career success.

The music clip used today is credited to ccMixter.

 

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I participated in the conference of a lifetime this weekend. I was so lucky to have been able to attend the 2018 ASHA National Convention held in Boston, MA. I was an invited speaker of the American Board of Fluency and Fluency Disorders along with good friend and guardian angel, Charley Adams, PhD, CCC-SLP from South Carolina. Together, we delivered a presentation called “Hidden in Plain Sight: Treatment for Covert Stuttering.”

We both felt it was extremely important that we talk to current and future SLPs about the importance of “treating the right thing” when it comes to working with people who covertly stutter. Because for covert stutterers, it’s not the possible stuttered word that is the problem. It is the complex layers of shame, guilt, paralysis, and fraudulent identity that must be peeled away and processed that is the the real problem and challenge.

Charley and I only had one hour to convey a whole lot of information to an audience mixed with eager, young graduate students and established clinicians and researchers in the field. We chose to tag team and alternate anecdotal story telling with clinical strategy suggestions. It worked. I must say we were engaging, funny and drove our points home.

I talked extensively about how covert stuttering robbed me of my personality and I knew it, but like the Stockholm Syndrome, I stayed in that bad place for thirty years. I shared details about “pretend Pam” and what it was like when “real Pam” finally emerged. At one point, I said something like, “real Pam stutters openly now with little shame and she’s a damn good communicator.”  At that, the audience rose to their feet and gave a standing ovation. I got choked up and felt my heart swell. It was such a proud moment.

I had doubt that I actually would be able to get to Boston and deliver my part of the presentation. I have not felt well for many weeks and I actually took a month of sick leave off from work, something I have never done. But getting to this convention was immensely important to me and I decided to be upfront, share my situation and ask for help. Charley was there for me, every step of the way, as were others.

The ASHA Convention was the largest I have ever attended. It was intimidating and overwhelming to be among so many people. It was reported that this convention had the most attendees ever – over 18, 000. With few exceptions, everyone was a professional in the fields of speech and hearing. Everyone had impressive letters after their names and I didn’t. But I’m indeed an expert on my stuttering and that’s one of the key messages that I really wanted to convey to the audience.

It’s important to listen and respect the lived experience of people who stutter and don’t assume that professionals have all the answers. It doesn’t always work that way.

PamEpisode 191 features Mara Ormond, who hails from eastern  Maryland, where she, her husband and 5 year old daughter Lula have been for about a year. Mara has moved around a lot, but identifies DC as “where she’s from.” Mara is a leadership coach, helping people with workplace and life issues. She’s also an avid swimmer.

In this episode, we focus on the many new situations in Mara’s life and how she has to stay on top of making room for stuttering in her life.

We explore how harmful hiding stuttering can be to one’s self image and psyche, and even physical health, as Mara notes. We also talk about how spending so much time hiding hinders development on all counts – career, emotional and social.

When you don’t go through regular adolescent and young adult experiences, like active socializing and making friends, because of fear of stuttering, you miss out on becoming self actualized. Sometimes we don’t even realize that we’ve missed those opportunities until well into adulthood.

And we spend time dissecting shame – probably one of the core issues with stuttering.  Mara shares an important “aha” moment – when she realized that “everyone feels shame.”

Listen in a to great conversation that once again dives deep into how complex stuttering really is. It was wonderful getting to know Mara better through this conversation.

Music used in today’s episode is credited to Bensound.

He-StuttersEpisode 25 of this occasional male series features Rob Dellinger who hails from Raleigh, North Carolina. He is a school-based SLP who stutters who also serves as a consultant for peers who work with students who stutter.

This episode is a little longer in length than I usually like to go but it is important, compelling and current. We both share a little bit about our stories of trying to hide our stuttering and how stuttering dictated our career choices.

We focus very much on how to go about helping kids who stutter, or have any diagnosed mental health issue, like anxiety, learn healthy strategies to develop successful communication skills, stuttering and all in some cases. We talk about not perpetuating avoidance when kids “opt out” of public speaking in school or college.

We emphasize the importance of having compassion and meeting kids “where they’re at.” Pushing kids who may not be ready to be pushed may actually “tip the scales” in favor of a kid who stutters choosing silence (like I did) or a kid with anxiety being caused needless harm.

There are ways to hierarchically help kids start with small challenges and then move up to bigger challenges as they are ready. Rob mentions how he does this in therapy with kids who stutter. This helps the kid feel like the adult/teacher/SLP cares about them and helps them develop crucial communication skills that we all need for college and careers.

We reference the article Teens Are Protesting In-Class Presentations. Take a few minutes to read the article. It’s not long and it is really important.

This was an amazing conversation. Both of us would love your feedback.

The music clip used in this episode is credited to Bensound.

 

PamEpisode 188 features Sarah Albannay, who hails from Kuwait, but is presently living in Pocatello, Idaho while attending college. Sarah has been in the USA for four years now, and is studying Political Science. She says she’ll know what to do with her degree when she’s done.

We had a really interesting conversation. Sarah finds it so much easier to stutter here in the USA. Americans are so much more open about personal issues than she finds people to be at home in Kuwait. She feels quite comfortable advertising that she stutters with classmates and professors here. Sarah says she was a totally different person in Kuwait. (You’ll have to listen to hear her explain that!)

Sarah feels there is so much support here in the USA. She’s found the NSA and good stuttering therapy which has included participation in “intensive stuttering programs.”  Sarah wanted to be sure she gave a shout out to Dan Hudock, the professor at Idaho State University that has really helped her see stuttering differently.

See below for a one minute look at what Professor Hudock is doing at ISU. I also included a fantastic Tedx Talk that Dan did about stuttering. Couldn’t resist – had to include it.

 

 

The music used in todays episode is credited as always to ccMixter.

 

 

 

 

PamEpisode 180 features Petra Ammerlaan who hails from Dreischor, The Netherlands. Petra has been a nurse caring for the elderly for 28 years. She is married to a very supportive husband who never cared that she stutters.

Petra got into nursing because she always liked taking care of people. She works mostly with people at the end of their lives and treasures the stories they tell.  Patients have never cared about her stuttering, but it’s sometimes been a different story with bosses and coworkers!

Listen in Petra shares about being covert for a long time, still trying to hide it sometimes. “Being yourself is often hard with a stutter.”  We also talk about speech therapy experiences, being around those who love and care about us, and the importance of taking baby steps on our journey with stuttering.

We also chat about the Facebook group Stuttering Community and Petra’s recent leap of courage to record and post a video to the group, for the first time.

The music clip used in today’s episode is credited to ccMixter.


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© Pamela A Mertz and Make Room For The Stuttering, 2009 - 2019. Unauthorized use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to Pamela A Mertz and Make Room For The Stuttering with appropriate and specific direction to the original content. Same protection applies to the podcasts linked to this blog, "Women Who Stutter: Our Stories" and "He Stutters: She Asks Him." Please give credit to owner/author Pamela A Mertz 2019.
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