Make Room For The Stuttering

Posts Tagged ‘women who stutter

This week, I joined a Zoom session that was only for women who stutter. It was hosted by a woman from Scotland in collaboration with the Facebook group “Women Who Stammer.” They have offered Zoom sessions consistently every other week since the early days of the pandemic. I have attended several.

This week’s session included several first timers, younger women who stammer, and a 15 year old who came in with her mom.

During the chat, the issue of therapy came up, and we discussed what drives therapy sessions and how goals are, or should be, set. One of the younger women shared that the SLP she recently began seeing didn’t seem particularly interested in what her goals were.

I shared that taking ownership and the driver’s seat is critical when establishing the therapeutic alliance. I discussed how I felt when I went into therapy for the first time as an adult. I mentioned that at first I thought I was to follow the lead of the therapist as I assumed that she would know what I needed. I quickly came to realize that was not the case.

I mentioned that I had written a paper called “Things I Learned in Therapy” 10 years ago that was all still relevant today.

After the session, the mom of the teen reached out to me via email to let me know how empowering my story was and wanted to read the paper I wrote. I responded right away and sent the link to the paper.

Each of us should always remember that our story, even though it may not seem like much, has the potential to help someone else.

 

Episode 218 features Kaja Bajc, who hails from Slovenia but presently lives in San Diego. Kaja is an engineer and works as a research lab manager at USCD in California. Kaja is an avid surfer and she laments about much less frequent opportunity to enjoy surfing since beaches in Southern California were closed for a number of weeks due to unprecedented pandemic we are currently experiencing.

Kaja has been very involved with the local chapter of the NSA (National Stuttering Association.) She shares that the group is tight-knit and they share all the things going on in their lives, not just stuttering. Kaja is interested in working with high school and college students to empower them to do presentations in school to increase awareness and educate about stuttering, to reduce stigma.

We talked about the “shift in perspective” she has about stuttering, since that is not her biggest concern right now. We also talked about the huge number of Zoom meetings she (and many of us) now face since in person contacts have been restricted. Seeing herself on video has been really good for desensitization.

This was a fun conversation. Take a listen!

Episode 217 features Regan G., who is 16 years old and will be a junior in high school in the Fall. Regan is from Arizona and holds a leadership position with the FFA, the Future Farmers of America. Regan is the first person I’ve had as a guest that raises lambs, which is pretty cool.

Regan also works at two jobs, one as a waitress at a Mexican restaurant and the other at a farm store. We talk about how she manages in two communicative jobs.

We chat about her experience at her first National Stuttering Association event where she shares that she didn’t even realize at first why she was going and what it was all about. Regan spent three years serving on the Teen Advisory Council helping new teens to make connections in the stuttering community.

We also talk about how stuttering serves as a good “friend filter,” confidence and self advocacy.

This was a great conversation with a young leader who will be a model for many in the large stuttering community.

 

PamEpisode 216 is all inclusive. I bring two guests on air to discuss the importance of challenging the assumption that stammering is inferior to fluent speech. I am joined by Sam Simpson, a Speech and Language Therapist and Patrick Campbell, a pediatric physician. Both Sam and Patrick hail from the UK.

Sam and Patrick collaborated with Chris Constantino to author the book, Stammering Pride and Prejudice. The book delves into how we examine and accept differences that are often conditioned by society.

Listen in as we discuss navigating societal norms, rethinking differences as just a construct of human variation of differences, and understanding the social model vs medical model of disability.

Sam wrote an article about the social model of stammering in 1999, but the “soil wasn’t ready” at that time. Patrick shares a point that really resonated with me about agency. “This is my voice, this is the way I speak, and I’m allowed to speak like this.”

This was such an important conversation and I am grateful for the knowledge and insights shared by both Sam and Patrick.

Anyone in the USA interested in buying the book can visit StutteringTherapyResources.

 

Episode 215 features Helen Carpenter, who does not stutter, who hails from London, England. Helen has a varied work history, with many of her roles relating to personal identity. She worked for the British Stammering Association and came away with an amazing perspective about stammering. She learned things about people and stammering that she didn’t realize she needed to know.

Helen and I serve together at 50 Million Voices, with the aim to increase global awareness of stammering inclusiveness in workplaces.

Listen in as we talk about the core need we humans have for connection, which transcends stammering or fluency. Helen shares that she learned so much simply by being in “sacred spaces,” where conversations were had by people who stammer.

Helen describes her opportunities to learn from people who stammer as “privileged.” I feel privileged to know Helen and to count her as a friend.

PamToday I bring another short episode, solo, talking about identifying feelings and the grief that many of us feel, but don’t rightly recognize as grief.

Three weeks in now to more enforced lock downs and self isolation for the better good of our communities may have many of us reeling and not knowing how to process some or much of this.

This Harvard Business Review article on grief made a lot of sense to me. Hopefully it will be helpful to you as well.

Stay tuned for future episodes. I have several great guests on deck. Listening to others who stutter feels really important to me now. How about you?

 

Today I bring a short episode that differs from my usual format. There is no guest joining me today. I’d like to share some thoughts and feelings that I have that I’m sure many others do.

It can be difficult to verbalize uncomfortable feelings, as we may fear that we may be judged or misunderstood. I imagine that there are a number of universal feelings and thoughts right now, so I just wanted to do my part and honestly talk about that and acknowledge some feelings.

I’m looking forward to offering a new episode with a new guest soon.

I had such a wonderful experience this week, presenting to an organization and people I did not know about stuttering at work.

This has been a vision of mine for quite a few years now. If people who stutter are going to be truly supported and included in all aspects of life, we have to educate the people in our worlds that do not stutter.

People who stutter want to be successful in school and at work. So schools, universities and workplaces need to hear stuttering, normalize it and get over the fears associated with hiring people who stutter.

It was a very surreal experience for me – to have traveled down to Northern Virginia to meet with people interested in “hidden disabilities” and stutter openly, without fear or anxiety. People at this workplace truly want to be inclusive of everyone who brings difference and new perspectives. I was welcomed with open arms, and spoke to an audience of about 50, 20 or so in-person and the rest calling in from other company sites via Skype.

The main theme of my presentation is what is gained through being completely open and vulnerable about something that is often widely misunderstood and stigmatized. I spoke of the strengths people who stutter have innately, because of our lived experience with stuttering. We bring grit, perseverance, resilience, patience and empathy to work – all of which are valuable competencies any employer wants.

The best way to make change and help people understand stuttering is so simple: TALK ABOUT IT. Make it less of a mystery, normalize it, frame what is often perceived as a weakness as a great strength.

In so doing, we will help workplaces become more inclusive for today’s workers who stutter and for the young people behind us, who will enter the workforce. Hopefully, my efforts and those of other adults who are not afraid to be vulnerable, will help lessen the stigma and burden of trying to hide stuttering in the workplace.

The company that I presented at recorded my presentation. I am looking forward to seeing that, and more importantly, looking forward to getting more workplaces to see the value of talking about stuttering at work.

It’s freeing and hopeful.

I have been having a really hard time over the last 6 months. Some of you know that I lost my job on June 30, 2019 and have been unsuccessful in finding new employment. I am so discouraged and fearful, as I have a chronic illness that I’ve been trying to manage. It’s scary not having income and feeling like I have no control of what’s happening.

But I am heartened when I think of a couple of bright spots to look forward to. I am heading to Virginia a week from now to conduct a training and awareness session on stuttering in the workplace.

And I have been invited to speak at a conference of the French Stuttering Association in March, in Paris. That’s right, Paris. I can’t hardly believe it, that in the midst of financial woes, I am actually going to Paris. I am going to spend a week there, and hang out with some locals who can help me make the most of being a tourist. I have been asked to speak on my advocacy efforts for women who stutter. It will be the first such time where I’ll be speaking to a non-English speaking audience and therefore working with a translator.

When things are especially dim, it’s so important to remember the bright spots. They’re there, we just have to find them and hang on.

I am looking forward to posting about my experience and meeting up with online friends that I have not yet met in person.

Stay tuned!

Episode 212 features Michele Delo, who hails from Buffalo, New York. Michele recently graduated with a degree in Dietetics and Nutrition and is preparing for her exam to be a registered dietitian. One of her goals is to do clinical nutrition to perhaps include diabetes education.

Michele is a a co-chapter leader for the National Stuttering Association in Buffalo. She shares that taking on this role has really helped her with leadership and public speaking skills.

Listen in as we chat about advertising and how she had been a covert stutterer. Michele describes using a higher pitch when speaking, which helps her be more fluent and also more peppy and chipper when she is interacting with patients. I shared how altering pitch has also helped me, and is a skill I learned in Toastmasters. People who stutter who have chosen acting as a career also have noted success when using pitch and vocal variety to help be more fluent.

This was a great conversation with a young woman who owns her uniqueness and encourages other women to do the same.

The musical clip used today is credited to ccMixter.

Editors note: Again I had some trouble removing background static and feedback. Sue me! I’m still an amateur. 🙂

Episode 211 features Jazmynn Davis, who hails from Maumelle, Arkansas. Jazmynn is a licensed dental assistant, a Regional Chapter Coordinator with the National Stuttering Association and is actively involved in the world of beauty pageantry.

Listen in as Jazmynn talks about interacting with patients and peers and how she handles her stuttering. She also shares how she has made stuttering awareness her platform when competing in beauty pageants. Jazmynn gives us a primer on pageant protocol and explains how it’s not just beauty but all aspects of a woman’s life. We talk about how well prepared for public speaking one becomes after participating in on stage interviews that are timed and judged.

Jazmynn has also used this platform to mentor and coach girls and young women interested in competing in the pageant world.

Music used in today’s episode is credited to ccMixter. Editors note: There are a few areas of background static that I was unable to edit out. Sorry!

Episode 210 features Dana Koprowski, who hails from the Chicago suburbs. Dana is a newly promoted Director of a large child care center. She keeps busy as a Family Chapter Leader for the National Stuttering Association and has also taken on the coordinator role of a new NSA mentoring program called Generations.

Dana was a guest last summer, soon after returning from her first NSA conference. In episode 182, Dana talks about having finally found her tribe. I was interested in chatting again with Dana because I have witnessed the dramatic changes she has experienced in such a short time. She is a completely different person from the one I met not quite two years ago. She has also shared her story on the NSA Career Success profiles, something the “old Dana” would never have done.

Listen in as we chat about all the “firsts” Dana has celebrated and how she is proud of herself in becoming the person she believes she is meant to be. Dana feels she has found true purpose in combining her love of children with promoting acceptance. “It’s OK to feel what you feel,” Dana says and describes how meaningful it has been to connect young people with mentors that will help them feel OK and feel hopeful for the future.

This was such an important conversation that truly illustrates the power of mentoring. 

Music used in today’s episode is credited to ccMixter.

Episode 209 features Phyllis Edwards who hails from New Zealand. Phyllis shares that she is 66 years young and has finally felt empowered to tell her story. I “met” Phyllis through her amazing contribution on the 2019 ISAD online conference. Phyllis has a supportive husband and children and works in an early childhood center, with 2-5 year old children.

Phyllis only discovered the stammering community about 18 months ago when she searched the internet about stammering and then found herself attending two conferences in different parts of the world, the BSA conference in 2018 in Cardiff, Wales and the World Congress in Iceland this past June 2019. To say that magic has happened in Phyllis’s life is really an understatement.

Listen in to this conversation, so full of emotion, from being a bit choked up to laughing quite freely, about a topic that Phyllis never dreamed she’d be so open about. Phyllis shares how her husband and children helped to make conference attendance a reality.

Part of Phyllis’s story that we as women who stutter can probably all relate to is that we have something in us – a seed – that makes us stronger, and it takes each individual to find that exact right time to be open to and embrace that we are worthy, stammering and all.

Phyllis believes it is time to pay it forward, and talks about how it “takes a village” to own our stammering.

I am glad I am a small part of Phyllis’s village.

Episode 208 features Kelsey Hoff, who presently hails from Amman, Jordan. Kelsey is a return guest, from this episode of eight years ago, where Kelsey talked about living her passion. Now, eight later, she is sure living her passion. Today, Kelsey is married, speaks fluent Arabic and has a multi-cultural private therapy practice.

Listen in as we discuss experiences Kelsey has had coming to terms with stuttering in English versus Arabic. She has had to circle back to what acceptance means re: stuttering because she had reached that point in English but old feelings of inadequacy resurfaced when she stuttered more in Arabic.

Kelsey also shared the critical importance of “owning and knowing your story” in order to portray your true self to the world. Here, she talks about experiencing a bit of “impostor syndrome” when she felt she wasn’t good enough to be a professional who stutters.

And we dive into psychology and what being a counselor who stutters has brought to the counseling space. Kelsey shares that she is comfortable sitting with people in their pain and “holding that space.” Kelsey talks about how she has reached the place where she knows she offers a presence and words that are meaningful.

She chooses every word and nothing is wasted, not even silence. She recalls feeling at times that her lack of words (because of stuttering) was a waste and she now revels in feeling liberated because she IS enough.

The music used in today’s episode is credited to ccMixter.

I had a wonderful conversation last week with a woman who stutters who will be featured on this week’s episode of the podcast Women Who Stutter: Our Stories.

We spoke about how important it is to own our story and be comfortable with all of it. That is the primary reason why I started the podcast, to give women who stutter a space to share their stories, because we all have one.

We talked about how sometimes we can feel so diminished when someone mentions, “Oh, you don’t really stutter,” or “I can hardly tell you stutter.” It brought back memories of a time where I found myself telling someone, “Yes, I really do stutter, honest I do!” It felt like yesterday, that feeling of having to defend that part of me. Why in the world would someone need to convince someone that they really stutter? You’d think there would surely be more important things we’d want to defend, like honor, integrity, reputation.

As I thought about this, I realized anew that my integrity and reputation is based on the very fact that I honor my story and don’t shirk from it, that my experiences with stuttering have greatly shaped and informed the person I am today.

People don’t really know me unless they know my story. How can you possibly know someone when you don’t (or won’t take the time to understand) the life cycle of all that was grappled with, reconciled and is now proudly owned as part of me?

All of us have a story, a legacy that will live on after we are gone. I want people to remember me, not just for something I did, but for who I was as a person.

What about you? What’s your story? What do you want, need, for others to know about you? What do you hope for in your legacy?

 

 


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© Pamela A Mertz and Make Room For The Stuttering, 2009 - 2020. Unauthorized use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to Pamela A Mertz and Make Room For The Stuttering with appropriate and specific direction to the original content. Same protection applies to the podcasts linked to this blog, "Women Who Stutter: Our Stories" and "He Stutters: She Asks Him." Please give credit to owner/author Pamela A Mertz 2020.
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