Make Room For The Stuttering

hand-to-ear-listeningI came across something in the “Notes” section of my phone from three years ago. I obviously felt it was important enough to write down. I’m not sure what lead me to read it again this week, but it really spoke to me.

“For years, we have gone to speech therapy to change the way we speak to make it more comfortable for others. We shouldn’t have to do that anymore.”

This brought back memories of when I participated in speech therapy for the first time as an adult about ten years ago. It was traditional fluency shaping therapy with the goal of changing the way I spoke. I greatly resisted this, without even knowing I was resisting!

I found it hard to learn the “targets” and even harder to demonstrate them. It felt mechanical and clinical and I couldn’t figure out why this wasn’t working for me. I also began to feel like I was failing and I wasn’t used to failing at anything. The harder I tried to “shape my speech differently” the more I failed to do so.

Finally, I realized that the reason I wasn’t succeeding with using fluency targets was because I didn’t want to use them. I felt like creating a different way to speak really just made me covert again. And more importantly, it felt like creating a different way to speak was more for the benefit of others than for me. It seemed like I was working at changing my speech so that listeners wouldn’t be uncomfortable and so that I wouldn’t have to explain why my speech was different than the norm.

People had told me I should try to be fluent when going for job interviews and giving presentations at work. But inside, I felt like that was taking my voice away, and I had been taking my own voice and hiding it away for years. This was the beginning of my personal realization that I didn’t want or need to be fixed and that I didn’t need to conform to be like everybody else.

We don’t need to make people feel more comfortable when listening to stuttering. We all need to just be patient and present communication partners.

Have you ever considered why you participated in speech therapy? A friend recently mentioned that his employer “made him” attend speech therapy sessions because a client was having difficulty with his stuttering. Thoughts?

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PamEpisode 178 features return guest Annie Bradberry, who hails from Corona, California. Annie is the Executive Director of a non-profit, former Executive Director of the National Stuttering Association and current Chair of the International Stuttering Association.

She is married almost 30 years to husband Bob and is loving her newest role as grandma to three. And today is Annie’s birthday. What a great way to celebrate by hearing what she’s been up to recently. Happy Birthday Annie!

Listen in as we talk about the sense of purpose Annie has that fuels her sustained involvement in the stuttering community. We discuss a recent opportunity she had to meet with some elementary school kids that stutter. And we also discuss a local TV program that Annie filmed about stuttering, along with two other people who stutter. The program, called Lifestyle Magazine, will air in October.

Finally, we discuss two upcoming keynote opportunities for Annie – one for the NSA conference in Chicago and one for the Joint World Congress for People Who Stutter and Clutter, in Hiroshima, Japan, both in July. And we wrap up with talking about struggling with small talk and how that can be so challenging for people who stutter.

The music used in today’s episode is credited to ccMixter.

 

 

PamEpisode 177 features Claire Norman who hails from London, UK. Claire is 26 years old and keeps very busy. She works as an intelligence analyst in fraud prevention and is studying for her Masters degree in counter fraud and corruption studies.

She also founded and directs S.T.U.C. which stands for Stammerers Through University Consultancy. Based on her own poor experience with the disability support office at her university, Claire has organized partnerships with 16 universities in the UK that are now equipped to help students and staff that stammer. Her initiative is four years old. It’s amazing what a difference one person can make.  If you are interested in helping Claire with the S.T.U.C. initiative, reach out to her on her Facebook page, or on Twitter @STUC_UK or Instagram stuc_stammer.

Listen in as Claire discusses how she has organized these partnerships and the work she does to provide resources and support. We also discuss the extensive support networks for people who stammer in the UK and how Claire has spread awareness of S.T.U.C. through the stammering community.

The music clip used in today’s episode is credited to ccMixter.

 

 

 

This wonderful piece by film maker Luke Collins hit YouTube this week and is circulating through the stuttering community. It is receiving high marks. The film exquisitely captures the intimidation and panic that a person who stutters feels and imagines.

I commented on the piece on YouTube and the film maker responded back. He is pleased that people who stutter think this is authentic representation. I asked him why he didn’t portray the character himself. He said he didn’t feel he has the “acting chops.” He also shared that directing the actor was an interesting way to explore the process that he experiences. Kudos to Luke for sharing a piece that people who stutter can all relate to.

Well, last week was a very busy one for me. Like I mentioned in my last post, I had several opportunities to talk about stuttering and hopefully raise awareness in my little corner of the world.

Last Monday, I was a guest on a local media production’s podcast where they interviewed me about stuttering. They sent me the link a few days later and I was really happy with how it turned out. The interviewers had done some prior research and asked me some great questions. Take a listen if you’d like. (Although that is an awful picture of me! Ugh!)

On Wednesday, I had the chance to “tell” my story at a 25th anniversary celebration of the Interfaith Story Circle, which is a local group here in Albany, New York that focuses on the power of storytelling. I was so delighted to have my story about women who stutter sharing their stories included in their celebration event.

And on Thursday last week, my podcast was featured on one of our local news channel’s segments highlighting women. That was such an exciting experience, as being on TV is a big deal, at least to me anyway. Fortunately, I was more photogenic in this clip here.

http://wnyt.com/news/pamela-mertz-podcast-for-women-who-stutter/4902733/?cat=11883

 

 

Hey everyone! It’s that time of year again! Here in the United States, it’s National Stuttering Awareness Week. In fact, it’s the 30th anniversary of this special week. In 1988, the second week in May was declared as National Stuttering Awareness Week. 

Two individuals that were involved in what was then the National Stuttering Project (NSP) were the driving force behind making this happen. Paul Castellano and Barbara Hubbard Koval, with the support of their NSP chapter, pitched the idea to their local Congress members in 1986.  Eighteen months later, in 1988, President Ronald Reagan signed the proclamation making the second week in May National Stuttering Awareness Week and it’s been commemorated every year since then.

While I believe that every day should be used to raise awareness for stuttering, this week is a great opportunity to talk about stuttering to people who don’t stutter and try to get some media attention to bring it into the spotlight. Many people involved in what is now the National Stuttering Association (NSA) contact the  media to get people talking about stuttering. Here are some good ideas from the NSA on what you could do!

I am really psyched that I have two media opportunities this week. Tonight I am going to The Sanctuary For Independent Media which is local for me and will be a guest on their live podcast. I am excited that they were interested enough to bring someone on to talk about stuttering.

Tomorrow morning, I will be interviewed by a local TV reporter for a segment on her Today’s Women which airs weekly on the local evening news. The piece will run on Thursday evening. I was a guest on her show seven years ago, and she is doing a follow-up with me about stuttering in general and the growth of my podcast. I’m definitely excited.

What can you do to raise awareness about stuttering?

 

 

 

 

On stage

I had the amazing experience to interview Nina G, a stuttering stand up comedian this past Friday night on stage after she performed her routine. Nina has been featured several times on my Women Who Stutter podcast and has numerous YouTube videos showcasing her comedy and disability rights activism.

When Nina told me she had booked a gig at the University at Albany, right in my backyard, I was excited to get to see her and immediately planned for that weekend. But then Nina let me know that she wanted me to interview her live for my podcast. I was beyond excited but also naturally nervous.

A few days before Nina’s performance, we spoke by phone to map out a game plan for Friday’s show. Nina shared that it was her plan to have me live interview her on stage as part of the performance. I had not figured on that. I thought I would just be interviewing her after the show.  So, I prepared some questions that I hoped would generate good discussion and crossed my fingers.

Well, Friday’s performance was a huge success. There were well over 100 people in the audience and people stayed for the whole show! There were several people who stutter in the audience as well, which was really fun.

Nina performed her comedy routine for about 30 minutes and then invited me on stage for the interview segment. Oh my gosh, it went great. We played off each other and had great dialogue going on. We recorded the audio and hopefully I will be able to use it for a future podcast episode. Nina also video recorded most of it as well.

It was such a great experience. I had never done anything like that before and it was such an adrenaline rush to be up on stage with Nina. After the interview segment, Nina invited me to remain on stage with her as she entertained questions.

After the show, a group of us went to dinner, including the two college students we met who stutter, as well as two other friends who stutter. Six of us closed a local restaurant and talked and laughed for several hours.

Thank you so much, Nina G for inviting me and including me in your show.  We did a lot of educating Friday night and helped normalize stuttering.

Nina and Pam

 

 

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© Pamela A Mertz and Make Room For The Stuttering, 2009 - 2017. Unauthorized use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to Pamela A Mertz and Make Room For The Stuttering with appropriate and specific direction to the original content. Same protection applies to the podcasts linked to this blog, "Women Who Stutter: Our Stories" and "He Stutters: She Asks Him." Please give credit to owner/author Pamela A Mertz 2017.
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