Make Room For The Stuttering

Posts Tagged ‘National Stuttering Association

PamEpisode 165 features Emily Purkey who hails from Portland, Oregon. Emily is 17 years old and a senior in high school. She is applying to colleges and plans to create her own major. Emily is actively involved in leadership activities in school and is passionate about raising awareness about stuttering.

Listen in as we talk about experiences with speech therapy, the importance of working on confidence, and Emily’s involvement in several stuttering associations. She talks about The Stuttering Association for the Young, or SAY and the National Stuttering Association or NSA. SAY helped Emily find her way and changed her life.

We also discuss the importance of finding community, stepping out of your comfort zone and the value of your voice. Below you can see Emily’s TED Talk, which she delivered in April of this year. Talk about stepping out of your comfort zone!

Music used in today’s show is credited to ccMixter.

 

On Saturday, I had the pleasure of attending a one-day NSA conference sponsored by the Boston chapters of the NSA. The conference was held at Boston University, where one of the coordinators of the stuttering program arranged for space to be used for the day.

I drove over to Boston from Albany, NY where I live. It was about a 3 hour drive, and most of it, both to and from, it rained. It even snowed a little on the way back, which I was totally not ready for in October.

I had no expectations of the one-day conference, except that I was looking forward to spending the day with other people who stutter. And what better day for this than International Stuttering Awareness Day (ISAD) which is recognized every October 22. I met lots of people from the Boston area as we spent the day together in workshops and at lunch. I really enjoyed hearing so many Boston accents!

The first workshop of the day was on self-advocacy, something that is near and dear to my heart. I believe that everyone who stutters should advocate for themselves because no one else is going to do it for us. Jess facilitated this workshop by sharing some scenarios she created to use as discussion points. Our group only got through 3 of 8 scenarios because we all shared our experiences with advocacy – both what we found easy to do and what may be more difficult.

The next workshop focused on choosing activities that we could participate in that would stretch us out of our comfort zones or be a real peak performance for us. People shared what they were willing to try when they got back home. One guy said that he wants to get up the courage to ask a question at a meeting that usually is comprised of 200 people. He wants to be able to do that with no shame of stuttering openly. Another guy said he wants to check out a Toastmasters meeting. Another guy said he wants to make more phone calls than always relying on the internet or email.

The last workshop that we attended was the screening of the short film “Stutterer.” We watched it as a group – adults, parents and SLP students. I had already seen the film but delighted in seeing it again with people who were seeing it for the first time. We had a great discussion about whether we thought the film portrayed stuttering realistically. We also talked about how it made us feel and what we thought about the ending, which had a surprise twist.

It was a great day of coming together, sharing experiences and supporting each other. We wrapped up with watching a video the kids had made about stuttering and how they want to be treated by others when they are stuttering. The kids were amazing with their open and shame-free stuttering.

The Boston NSA chapter leaders Sarah and Jess did an amazing job putting this conference together. I was very glad I went and got to spend time with other amazing people who stutter on International Stuttering Awareness Day.

PamEpisode 164 features Sofia Espinoza, who hails from Atlanta, Georgia, although Sofia is originally from Peru. Sofia works for the Centers for Disease Control (CDC) in Atlanta. She is an engineer and works in IT, implementing systems.

Sofia went into engineering because she thought it would be a field where there wouldn’t be much talking. When she began her Masters program, she saw it was much more interactive and would require talking and class participation. It was at this time that Sofia began researching support opportunities and found the NSA and Toastmasters.

She threw herself into both at the same time, as well as seeing a counselor. All of these things helped Sofia to graduate.

Listen in as we discuss covert stuttering, baby steps, shyness and anxiety, and the pain of stuttering.  We also talk about wearing armor to protect ourselves and how heavy that armor can be to carry around.

Sofia attended her first NSA conference this year, as it was held in Atlanta. We talk about her experiences and her favorite workshop.

The music used in today’s episode is credited to ccMixter.

PamEpisode 163 features Chani Markel, who hails from Teaneck, New Jersey. Chani just moved to NYC for a new job as a school-based speech language pathologist (SLP) with the NYC public schools. Chani also keeps busy with yoga and writing.

Listen in as we discuss the transformative experience Chani had with therapy which she sought out on her own when she was a senior in high school. This experience led her to pursue a career in speech language pathology.

We talk about the National Stuttering Association and the impact it has had on her life. The NSA has helped her both personally and professionally.

Chani also shares about her experience with starting a writing group, that combines writing about stuttering, communication and identity.

Chani offers words of wisdom for anyone who stutters thinking about becoming a SLP and offers to talk with anyone who’d like to explore this with her.

The music used in today’s episode is credited to ccMixter.

 

PamEpisode 162 features Alexandra D’Agostino who hails from London, Ontario, Canada. Alex is 23 years old and is going into her last year of university where she is pursuing a double major of psychology and anthropology.

Alex is considering a Master’s degree in either music therapy or nursing when she completes her undergraduate work. She loves traveling and music, playing seven instruments and singing in her university choir.

Alex is very actively involved in the stuttering community. She is a member of the Board of Directors of the Canadian Stuttering Association (CSA) where she is part of the social media team. She runs the CSA’s Facebook page. The CSA is holding their annual One Day conference on October 22, 2016. Both Alex and her mom are running workshops.

Alex has also attended conferences of the National Stuttering Association (NSA) since 2011 when she was 18. Her parents have come with her to the annual NSA conferences. Alex served on the NSA’s Teen Advisory Council for three years.

Listen in as we discuss growing up with a stutter, being bullied and speech therapy experiences. We discuss how cyclical stuttering really is and how it affects our life differently depending on what stage of life we are in. Right now, Alex is happy with her speech and feels she has accepted her stuttering.

This was a wonderful conversation with a wonderful young woman who wants everyone who stutters to know that they are not alone. Music used in today’s episode is credited to ccMixter.

 

I just recently had the below post published as an article on The Mighty, which is a site that features stories about all kinds of disabilities and differences. I am pleased to have my writing featured on another site, as hopefully it will raise awareness about stuttering to people who don’t stutter. You can see the article here, titled “Why It’s Important To hear Other People Who Sound Like Me.”

For the longest time, I hated the sound of stuttering. I hated to hear myself stutter. I thought I sounded choppy and unnatural, and always imagined the bad things a listener was thinking about me. I hated to have to leave a voicemail, as I didn’t want someone to have a recording of me stuttering. And I hated to have to record my own outgoing voicemail message. I remember re-recording my voicemail message about 20 times until it was perfect, without one syllable of stuttered speech.

I did not want to hear other people who stuttered because it reminded me of me and how I sounded.

I hated to hear characters who stuttered in movies. I remember getting red-faced and cringing when I heard the stuttering lawyer in the movie “My Cousin Vinny.” The character seemed to be created to get a laugh and it was a demeaning and demoralizing role. I did not identify with this character, nor the characters in “Primal Fear” and “A Fish Called Wanda.”

But when the movie “The King’s Speech” came along in 2010, I felt a little differently. By then, I had come out of the covert closet and stuttering openly. I was OK with it. I was actually kind of proud to hear a main character in a movie who stuttered realistically and wasn’t solely there for comic relief. I could relate to the stuttering in this movie, even though it was a male (as have been most of the characters who stutter in movies).

Something was changing within me. I was reaching the point where I enjoyed the sounds of stuttering. In 2010, I started a podcast called “Women Who Stutter: Our Stories.” I created this to give women who stutter a place to share their story and hear other women who sound like them stuttering naturally and openly. I made it a goal to interview women from all over the world, and have so far spoken with women who stutter from 32 different countries.

I like hearing the stuttering with different accents. I like hearing the cadence of a woman’s voice that stutters. I like how I sound on the podcast – something I never believed would be possible. How could I like something I had so vehemently hated for such a long time?

I have heard from friends that have heard me on the podcasts that I have a “radio voice.” Me, who stutters, actually has a nice voice. They’ve said it’s easy to listen to, even with the stuttering.

I have heard from listeners to the podcast that many feel grateful to listen to other women who stutter because it helps them feel less isolated. Stuttering can be lonely, especially when you don’t know someone else in person who stutters. That was me until about 10 years ago. I had never met another person who sounded like me. I grew up thinking I was the only one who stuttered and spoke with broken speech.

I just recently returned from the annual conference of the National Stuttering Association, which was held in Atlanta in early July. There were over 800 people who stuttered at the conference, from all walks of life and different parts of the world. The event was a joint venture with the International Stuttering Association. During the day at workshops and at night in the hotel lobby, I heard so many stuttered voices blending together into a wonderful symphony of sounds. It was music to my ears.

Finally, I have realized I like the sound of stuttering. It reminds me of me, that I am not alone and together our voices are strong.

PamEpisode 161 features Lynne Mackie, who hails from Edinburgh, Scotland. She presently resides in Newcastle, England where she is doing an internship for a mobile application for people who stutter. Lynne is a student who is finishing up her Master’s degree in Information and Library Studies. She also loves drama and all sorts of media.

Listen in as we talk about advertising, covert stuttering, taking strength from other people, the recent joint NSA/ISA conference and so much more.

Lynne talks about how successful advertising has been for her in university and with friends. She talks about letting listeners know what she prefers, and that what she says will be worth the wait.

We talk about the situation for people who stammer in Scotland and the rather new Scottish Stammering Network, of which Lynne is Vice Chair. Lynne also runs the Edinburgh support group.

Lynne applied for an internship for people with disabilities. She learned that Newcastle University had wanted to develop a mobile app for people with speech impediments and Lynne was asked to head up the research into the app for stammering. The goal of the app is to help people boost their confidence in everyday speaking situations.

We wrap up this great conversation talking about Lynne’s experience at the recent conference. Music used in today’s episode is credited to ccMixter.


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© Pamela A Mertz and Make Room For The Stuttering, 2009 - 2016. Unauthorized use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to Pamela A Mertz and Make Room For The Stuttering with appropriate and specific direction to the original content. Same protection applies to the podcasts linked to this blog, "Women Who Stutter: Our Stories" and "He Stutters: She Asks Him." Please give credit to owner/author Pamela A Mertz 2016.