Posts Tagged ‘parents feelings about stuttering’
What Was Left Unsaid
Posted November 20, 2017
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My father died two weeks ago. My father who I never reconciled with over serious childhood issues. My father that yelled and screamed at me when I was 5 years old and first started stuttering. My father whose lack of support drove me to try and hide my stuttering for years. My father who was ashamed that one of his kids stuttered. My father who never allowed me and my siblings to show emotions. My father who never showed me affection. My father who I had not talked to in years.
I happened to be away for the weekend when I got word that he had died. My siblings were text messaging each other and included me in on the thread. As I was driving, my phone blew up with tweets, the sound I use to notify me of text alerts. I glanced down at the phone and tried to see what was going on. I couldn’t figure out what they were talking about from just a quick glance.
I pulled over at the first nearest rest area to get gas and then pulled into a parking spot, curious to see what my siblings were furiously texting about. One sister had offered her condolences to others who were impacted by his death. I didn’t know who they were talking about. It didn’t occur to me to think it was my father. I texted a quick question and asked who died, thinking it was an extended family member. One sister directly responded that it was dad who died.
I was kind of shocked as I was not expecting to hear that and I was 100 miles from home. My brother then chimed in with a text that he was sorry I learned through a text message, but that the family thought it better not to have called me while I was away.
I started driving toward home and had the next 90 minutes or so to think. What I thought about was how weird my reaction was. I was not emotional or stricken – I was worried about how I would handle the upcoming funeral services and deal with family that I hadn’t seen in years. I was worried about possibly not going and how that would look.
I debated not going to any services as I had not had a relationship with the man in years. He never reached out to me and I kept my distance. While he was in a nursing home, several of my sisters tried to guilt me into letting go of the past and consider reconciling with him. They were going to visit him weekly and asked me repeatedly to join them. I chose not to. They stopped asking. I went about my life oblivious to what was happening with him.
I learned later that he had suffered several falls due to the pressure of a brain tumor he’d had for years, that I knew about. The pressure was causing dementia and made him prone to falls. The last fall he took was accompanied by heart failure and several attempts at resuscitation and then his heart just finally stopped.
I always felt a deep sadness that I did not have my father’s heart. I was his first born daughter and always yearned for that relationship with my dad that I knew other people had or that I saw on TV. I was envious of friends who were close with their parents and held a special place in their parents’ hearts. I never really told that to anyone and eventually those yearnings went away as I learned to manage with the hand I had been dealt. I vividly remembered the abusive, chaotic home I grew up in. I couldn’t not remember it.
I did go to my father’s wake and was supremely uncomfortable. I felt lost and like I didn’t belong there. Four of my siblings were also there, along with my father’s second family. A family I had always referred to as our replacement family. His wife, that my father had cheated on my mother with and who was younger than me. Whom I always blamed for hurting my mother.
I saw aunts and uncles, his siblings, that I hadn’t seen in over 25 years, It was awkward. It was more awkward seeing my father’s other daughters, openly grieving. I felt tense and anxious and couldn’t help but feel this whole thing was happening to someone else.
My sister read a “tribute” to my father toward the end of the service, one that talked about a loving father that instilled values and work ethic in all his (10) children and a love for God. I didn’t recognize who she was talking about. It was surreal to me, his firstborn daughter who wasn’t perfect and had never felt his love. My sister had reconciled with him and made peace with him as had two other sisters.
My youngest sister didn’t go to the wake. He was not part of her life and had never met her children, his grandchildren, yet the obituary read that he was their loving grandfather. I felt that people were trying to paint this man to be someone he was not.
I didn’t go to the funeral service or burial the next day. I couldn’t. I felt paralyzed by my very conflicting emotions. Part of me had hated this man for so long, for the emotional and physical abuse of long ago and for making me feel such shame over my stuttering. I carried this around for a long time. I also carried around his influence for a long time. I was in therapy for years, trying to process and perhaps reconcile my “daddy issues,” but never could. The pain was still there, after all these years.
When someone dies and it is unexpected, so much goes unsaid. Such is the case with my father. I never told him how I had yearned for his love, support and approval. I never told him that I have turned out pretty OK and feel like I am in a good place in my life, despite a tumultuous past. I didn’t really even say goodbye.
Part of me feels relief that he is gone, for he is not suffering and hopefully neither will I anymore. But I’m not sure that really is the case. I need to come to terms with what wasn’t said and find a way to process this so that I can move forward in peace.
Reading To His Daughter
Posted November 21, 2016
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This video is making the rounds of the stuttering sites on social media and for good reason. A dad with a stutter is seen reading to his daughter before she falls asleep and it is clearly a challenge for him. But he perseveres and does what he wants to do for his child.
I applaud this dad for doing what thousands of parents do with their children – read to them before bedtime. The fact that he decided to record this for others to see took a lot of guts. I am glad he did, so you can see it here. He allows us to see the very vulnerable side of stuttering.
Episode 136 features Dori Lenz Holte, who is a parent of a child who stutters. Dori hails from Minneapolis, Minnesota and is the author of the book, “Voice Unearthed: Hope, Help and a Wake-Up Call for the Parents of Children Who Stutter.”
Dori also has a blog and a Facebook group offering support for the parents of children who stutter.
Dori says she wrote the book she wished she had read when she was starting out on the journey with her son Eli, who stutters and is now 18.
Listen in as Dori describes how traditional speech therapy affected her child and the frustration and desperation she and her husband felt as parents.
She talks about being told to “keep looking” for a speech therapist who was a specialist in stuttering. That period of “keep looking” added to the silence and withdrawal that her son was experiencing as a young child who was trying, and failing, to use speech tools and techniques.
Dori also discusses the need for parents to keep their eye on the big picture, which is to raise confident and happy children. And parents should listen to their instincts.
This was an important conversation. Thanks Dori for being a guest.
The podcast safe music used in today’s episode is credited to ccMixter.
Book Review: Paperboy
Posted January 30, 2014
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I just finished the excellent book Paperboy by Vince Vawter and couldn’t stop smiling.
Paperboy is the story of an 11-year-old boy who takes over his best friend’s paper route for a month during July in Memphis. Victor is happy to help his friend out, but secretly obsesses over having to communicate with customers when he collects the weekly fee.
Young Victor stutters and the author perfectly captures the feelings, fears and worries that come with being different. We are able to get right into Victor’s head as he practices speaking to some of his customers and as he fervently switches trouble words for words he can say without stuttering.
The author uses a unique style to depict dialogue throughout the story and conveys through words what Victor’s stuttered speech sounds and feels like.
This story will resonate with young people and adults who stutter, as it depicts a real life situation that all of us who stutter can relate to. Victor uses some speech therapy techniques to make his stuttering easier, and he also uses avoidance, which will be all too familiar to many of us who try to be covert!
Paperboy is the story of a kid who is a great baseball pitcher, a friend and a youngster who is learning how to communicate with adults, stand up for himself and learning about empathy.
We learn about his relationships with his parents, his Mam, his peers and the adults he encounters on his paper route. And we root for him as he finds himself in some tough situations and as he gradually becomes more self-aware.
This is a great book about stuttering, life and coming of age. It’s geared for young people, but adults (including parents of kids who of stutter) will love it too.
Put it on your reading list. You won’t be sorry!
Perspective Shift
Posted July 21, 2012
on:I am sitting in my hotel room in Aurora, CO at the end of the last day of the FRIENDS conference. Soon, we will gather for dinner and the kids will dance and sing karoeke and have fun being kids.
Having fun being kids is what the FRIENDS conference is all about. Kids who stutter gather for three days to savor the moments where they can just be kids, free from worrying about being teased or judged.
This 3 day conference was marked by senseless tragedy yet the kids who stutter are showing resiliance, grace and dignity. They have showered each other with love and support and have been talking and sharing their feelings.
We adults are pondering how random life is and re-examining our priorities. When tragedy strikes close to home, we look at things differently. Our perspective shifts – we realize how tomorrow is never guaranteed, and we must live each day as if it were our last.
For we know it can be. Senseless violence is random and can affect anyone anywhere.
Kids who stutter learn how to handle challenge and adversity every day just by living their lives as stutterers. They learn how to handle teasing and bullying and that life is not always just or easy.
The kids at FRIENDS who were touched by the violence in Colorado this week have shown how strong they are and how powerful support is.
These kids have taught me a thing or two about life. Life is about living and sharing and being true to self. No matter what you are faced with.
Episode 67 features Georgia Stephens, who hails from Minneapolis, Minnesota. Georgia had a career as a choreographer, writer and dance performer for about 30 years.
She is currently enrolled in the Master’s degree program at St Mary’s University, studying Counseling Psychology.
Georgia is interested in perhaps using dance to help people who stutter, and hopes to combine traditional talk therapy with dance therapy.
Georgia shares how she came to experience that most people think that we can only communicate using words. She realized that is not true, that we can also communicate through dance and movement.
Listen in to a fascinating conversation about dance and movement, covert stuttering, blocking, and the energy we use when trying not to stutter. We also discuss beating ourselves up, shame, disclosure, and support.
The podcast safe music used in this clip is credited to ccMixter. Please be sure to leave comments for Georgia or just let her know what a great job she did! Feedback is a gift!
It’s A “We” Thing – Episode 55
Posted May 11, 2011
on:Episode 55 features Shelby Potts, who hails from Raleigh, North Carolina. She is 19 years old and just finished her sophomore year at Appalachian State University, located in Boone, NC. Shelby is studying communication disorders and hopes to become a speech pathologist.
This episode also features Shelby’s mom, Mary Ann Potts. She teaches ballet and modern dance at the Dancer’s Studio. She is also the assistant director of the Concert Dancers of Raleigh, teaches preschool music and movement and leads a cardio-class. But Mary Ann tells us right away that first she is a mom.
I met Shelby just a few weeks ago when I visited Dr. Joseph Klein’s graduate fluency class at Appalachian State in Boone. Shelby joined the class that evening, because she wanted to meet me. Talk about flattering!
Listen in to a wonderful mother-daughter perspective on the stuttering journey. Shelby honestly shares what has and has not worked for her in therapy. Mom is just as poignantly honest as she shares how it feels being a parent who wants nothing more than to ease her child’s pain, and the hard lessons learned along the way.
We talk about acceptance, meeting other people who stutter for the first time and moving from hiding out to speaking publicly about stuttering.
Team Potts also talks about how FRIENDS has been life-changing, and the powerful realization that they are a “we”. Sharing this journey has impacted them both and left Shelby well equipped to handle life as a young woman who stutters.
The music used in this episode is credited to ccMixter. Feel free to leave comments for Shelby and her mom. Or just let them know what a great job they did. Feedback is a gift.
Episode 53 features Claire, who hails from the Washington, DC area. Claire is 16 years old and a junior in high school.
She is interested in biology, and already knows she wants to pursue further education and a career path involving genetics, which combines her love for both biology and history.
I met Claire and her family at my first FRIENDS conference in 2008, but really didn’t get to know her well that first year. Since, I have seen her blossom into a very confident young person, who is at ease with herself as a woman who stutters. She’s a great role model for youth, especially girls, who stutter.
Listen in to a very candid conversation about Claire ‘s experiences with school therapy. She shares her frustration at working with therapists who did not seem to know much about stuttering, and how she knew more about stuttering than they did!
Claire shares about working with a metronome and how it seemed she was asked to replace one secondary behavior with another.Very important insights by a 16-year old!
We also discuss family impact, Claire’s relationship with her sister, and how important acceptance is. And as a 6-year member of FRIENDS, Claire shares what FRIENDS is all about, the life-changing significance of meeting other people her age that stutter, and how important self help and support is for parents as well.
Claire demonstrates poise, confidence and humor in our conversation. I was so happy that she (and her mom) agreed that Claire should share her story.
Credit for the podcast safe music used in this episode goes to ccMixter. Please feel free to leave comments for Claire. Remember, feedback is a gift.
Listen To Your Mother
Posted February 28, 2011
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That was heard Sunday night a few times as Academy Award winners picked up their Oscars and gave acceptance speeches. It was an extraordinary night for people who stutter. We now have a dignified face put on that which we often hide out of fear and shame.
The King’s Speech won for Best Actor (Firth), Best Director (Hooper), Best Screen Play/Writer (Seidler) and Best Picture. Sweet!
Stuttering is hard to talk about, but has been made easier these past few months and will surely continue in light of this triumph!
My own mother, who doesn’t often say anything about my stuttering, or what I have done with being open about it, did so tonight. Using social media, she posted this on facebook just a few minutes after The King’s Speech won Best Picture.
“Very good night that you really deserve and I know people (including me) appreciate how much you have done to break down walls and shatter secrets and shine a light in some dark corners.”
That was more important to me than anything else I heard the Hollywood people say. Thanks Mom! That touched me!
And below is David Seidler accepting his academy award and thanking people who stutter all over the world.
It’s Showtime – Episode 37
Posted December 9, 2010
on:Episode 37 features Veronica Lynch, who hails from Dublin, Ireland. Veronica and I share a history of being extremely covert, and then making the transition to overt stuttering. We are both contributing members of the Covert-S email group.
Veronica worked for 30 years with the Irish Airports Authority. She has recently retired, with her last position being Insights and Strategy Manager, of which she was very proud. Veronica worked her way up the ranks in her career, starting with a back room job that didn’t require much talking.
Listen in to a powerful conversation about covert stuttering, “the aha moment” and what it is like living a parallel life. Veronica and I have remarkably similar stories about how we arrived at acceptance, and Veronica shares hers in-depth in this episode. She shares about how being covert means often we have to “be on” and “act” like we are on performing on stage all of the time, which coverts know, can be just exhausting.
Veronica also shares about what the journey has been like having a child who stutters, and how helping her daughter is what ultimately helped her. Veronica also touches on the profound notion that “when the student is ready, the teacher will find you.”
Veronica has been very involved with self-help in Ireland, and is an Executive member of the Irish Stammering Association.
Podcast safe music used in this episode is ” Scott Waves to Salty Grace” by J. Lang and is credited to ccMixter.
Can you relate? Feel free to leave comments or questions for Veronica or just let her know what a great job she did!
Trying To Fix You
Posted October 18, 2010
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I have been face book friends since the summer with Elissa, a brilliant writer. Elissa wrote a heart-tugging essay about her young daughter Charlotte’s stuttering. I linked to this essay before. Check out “Fighting Words” if you missed it.
Recently, Elissa posted a link to the song “Fix You” by Cold Play that played at a party she was at for really sick kids. She wondered if the song had just been coincidence. Elissa recalled how fervently her brother and his colleagues had tried to “fix” a young patient 7 years earlier.
For some reason, I commented on Elissa’s post that the song “Fix You” reminded me of the stuttering journey. We then shared this exchange, which really touched me. We have not met, yet we both spoke from a similar place.
She, the parent of a young child who stutters, anxious to make the right decision for her daughter. And me, an adult who stutters, who is still affected by my parents’ choices years ago about my stuttering.
Me: This song so reminds me of the stuttering journey. I met a family 2 years ago. Both sons stutter. The dad is a surgeon who for years thought he had failed as a parent, because as a surgeon, he is so used to fixing his patients. He could not fix his sons and it haunted him. Finally, he (they) reached a point where he knows he does not need to fix his kids . . . they are perfect just the way they are.
When I see this family, I am reminded of how I felt for a long time that I needed to be fixed. Now, when I see them, I hug mom and we watch her children laugh and play and enjoy life . . . And we know, that not needing fixing is the real prize. Thanks for sharing the story about the sick kids and the song.
Elissa: I’m so glad you wrote! I don’t know if you saw my post of last week, where I was struggling with exactly this question: wanting to get speech therapy for Charlotte because she is in so much distress, …yet not wanting to send her the message that she needs to be fixed. In some unspoken way, I believe my brother chose not to spend a tremendous amount of his precious energy on the attempt to fix his stuttering.
I truly understand and honor that choice. She’s far too young to make or even understand that kind of choice, though. I’m in the wildly uncomfortable position of needing to make it for her. The hardest parenting moments for me have been ones in which every course of action is a potential betrayal. I’m tempted to ask you what you would do if she were your child. No one person can tell me what to do, but I really welcome all the perspectives I can get.
Me: Well, you didn’t officially ask, but I will share my opinion anyway! I grew up thinking the awful thought that my father was ashamed of me. When I stuttered, he would yell at me, or tell me to “stop that”. In my 5-year-old mind, which I can still remember, getting negative feedback from my dad was the worst thing imaginable. I thought, “was I so horrible that even my own father was ashamed?” I learned years later that my mom felt incredible guilt for not standing up to my dad and insisting that I be allowed to get some help, because he wouldn’t allow it.
Needless to say, I had a hard time with my self-image and expressing feelings as a child. What would I do for Charlotte? Its different, because I stutter and you don’t. I would try to set an example for her that it is OK and that stuttering is just a different way of talking. You can’t model that for her, but maybe you can have her meet other kids who stutter, and get as comfortable with stuttering as possible so that her struggle behavior naturally decreases. I have no idea how I would have reacted to therapy as a kid, but it would have made a huge difference to meet and know others like me. Your heart will guide you for what is best for Charlotte.
Elissa: Thank you. My God, I can’t help feeling enraged at your father for his response to you as a child. Not that my rage is of any use to you now, but… if I picture Charlotte hearing those words, my heart could just crack in half. I’m …so sorry that your formative years were spent in that situation. I will definitely be attending the Friends events from now on… this past year was a little too soon, I felt, and that’s unfortunate, especially since the convention was in Chicago! My brother’s city! I know that he almost went himself.
This might sound completely messed up, but Charlotte’s lovely and wonderful teacher let me know that two other kids in her class have severe speech impediments also, and God help me, I was ecstatic to hear that.
Me: Your response does not sound messed up at all – we need others to be like us so we feel some normalcy.
What do you think? What would you have told Elissa? She welcomes all the perspectives she can get.
What people are saying!