Make Room For The Stuttering

Posts Tagged ‘feelings about stuttering

I have written a few times that I really only comfortably discuss stuttering with one sibling regularly. Most of my family doesn’t like talking about it, even though I do. Kim and I talk about stuttering often. She works as a nurse and feels my openness about my stuttering has helped her be more patient with some of her patients.

I did talk about stuttering twice with another sister, who was willing to do an audio conversation with me once. But that’s it.  With most of my family, it’s the same taboo it pretty much always was. Unless I bring it up.

So I was surprised when my brother called me last night. He needed a favor and also wanted some advice about stuttering for a co-worker.

A new employee works in the warehouse and in my brother’s words, has a “wicked stutter”.  He wanted to know if I had any brochures or literature on anything that has helped me that he could leave “subliminally” around. I said sure, I could give him stuff or send him some links with resources.

I had to laugh when I got off the phone with my brother. His use of the word “subliminally” tickled me. I can just see this poor guy who stutters, minding his own business in the warehouse, and suddenly he stumbles on some information about stuttering. Which would be really out-of-place in the warehouse environment.

I was glad my brother felt comfortable enough asking me about this. He never has initiated conversation about stuttering with me. But I also had a few other thoughts.

It made me wonder, how will this guy feel? Will he be embarrassed? Will he think colleagues are embarrassed by his stutter, that’s why someone left stuttering information lying around? Or will he be happy to come across something that might help him? Will he be grateful that it was done anonymously? Will he take the information or ignore it?

It made me wonder, how would I feel? What about you? Would you be OK if you found something on stuttering suddenly and randomly in your workplace?

I want to see how others feel about this. I sometimes feel self-conscious when stuttering, not always, but certain times when I stutter a certain way. And it feels odd considering I accept my stuttering.

For example, just last night,  I felt a wave of self-consciousness when I left work. I always say good night to the Maintenance guy. I am no fool – there are certain people you should be nice to. (Well, you should be nice to everyone, right?) If I want my trash emptied every day and an occasional box of tissue for the office,  I make it a point to chat briefly with him daily.

He is always the last one out of the building – he has to wait until we all leave so he can set the alarms. Sometimes he is waiting for us to leave, other times he is in his office down the hall. On those occasions, I usually yell, “Night, Doug!”

I almost never say “good night” because I never know how the “g” is going to come out. There, I said it. Guilty as charged. I stutter sometimes on the “ga” sound, so tend to avoid it when I have to yell my greeting. Silly, minor, trivial . . . . but I am very aware that I do that.

Well, last night I must not have been thinking. I yelled “Good night, Doug” and it came out “Ga-ga-ga-ga-ga-good night. ” Yikes. I felt it – so self-conscious, because the people I was walking out with heard it. Nothing happened. They didn’t comment, I didn’t get struck by lightning.

But I still felt that feeling – tightening of the chest, quick flush of the face, sped up heart beat. I also wrote about this on Feb 10, 2010.

Do you ever experience that? What makes you feel self-conscious about your stuttering?

Episode 19 features Laura San Martin, who grew up in New York but now calls California home. Lori, as she is known to friends, is co-leader for the NSA Chapter in Los Angeles.

I met Lori at this year’s NSA Conference in Cleveland. I participated in a workshop that she and Joseph Diaz co-presented for teens about stuttering fears. Lori used examples from her own life to illustrate how she has learned to cope with fear.

Lori has an interesting story. Stuttering runs in her family, on her mom’s side. Four women in her family share the stuttering experience.

Lori is a civil engineer and she explains what that is for us non-engineers. She also candidly shares how she allowed her speech to somewhat dictate her career choice.

Listen in as we discuss covert stuttering, feelings about stuttering and the importance of having to be ready for therapy in order for it to really work.

We also discuss Sky Diving, which is Lori’s extracurricular passion! She talks about her first jump from the plane (sounds scary just typing it!), and what heightened senses and sensory overload feels like.

I feel so privileged to chat with such diverse women. It gives me goose bumps every time to realize that all that is needed is to ask and women keep telling these wonderful stories. Story-telling is magical.

Feel free to leave comments here on the blog for Lori. Feedback is important. It lets me know you are listening.

Musical credit for this clip of “Fireproof Babies” goes to ccMixter. As always, I use podcast safe music, under Creative Commons license.

I received a response from the Director of Rooms at the hotel I stayed at recently. I wrote that hotel employees had reacted to both myself and another person’s stuttering in a negative manner. This is what the director emailed to me.

I have to start by apologizing for your negative experiences while staying with us.  I have to assure you that this behavior is not conducive to our level of service.

And I personally do not tolerate any disrespect to our guests.  My four-year-old son goes to speech therapy because he struggles to communicate his thoughts into words, so I have a personal respect for you and your group.  I know through my son he gets very frustrated when he struggles with verbal communication.

Moving forward we will learn from these experiences and appropriately train our employees to afford the same respect to all of our guests.

On the flip side of your experiences, we have received lots of positive comments from other participants here attending the same meeting.  So I hope that your experience was isolated and not everyone was treated with disrespect.

Thank you for your feedback and I promise to work with our staff to correct their level of service.

I was happy and satisfied to get this feedback. I took the time to let the hotel know I had an unacceptable experience with staff, and this guy took the time to write back and share something of a personal nature.

In the past, I would certainly get upset when stuff like this happens, but I usually just let it pass and not do anything about it.

Now I usually feel strong enough to speak up and let someone know when they have reacted unacceptably. Who knows? This might just make a difference.

Episode 18 features Samantha Gennuso, who hails from New Jersey. Sam came to a workshop I facilitated at the 2010 NSA conference about change. Afterward, we talked about how we have experienced many of the same things in our personal journeys.

Sam just completed her graduate studies in Mass Communications at Boston University. She wrote a wonderful article for BU’s graduate magazine about her stuttering, called “What It’s Like To Forget Your Name”. She did her undergraduate work at NYU in anthropology and gender studies. Sam believes she is at an exciting, fun, but also scary crossroads in her life.

Listen in as we chat about a number of things, including effective therapy. She shares about her experiences at AIS, the American Institute for Stuttering. We also talk about career choices, job interviews and disclosure, acceptance, and stuttering as a social filter.

Sam also shares about how the NSA has helped her and how she feels strongly about “giving back” to young people who stutter. Sam likens it to “talking to her 17-year-old self”.  Watch for Sam in the future as she crafts a career out of her passion for music.

The musical clip used in this episode is called “Echo” and is podcast safe music under Creative Commons Licensing.

Please feel free to leave comments or questions for Sam and Pam here on the blog. Your feedback is valuable!

 

In an earlier post, I wrote about being on the receiving end of rude hotel staff who mimicked my stuttering. Granted, this was not the end of the world, but it bothered me and made me feel like I should have done more.

To bring you up to speed, when the guy repeated my word and laughed, I did speak up and say that stutterers often repeat words. He commented he couldn’t help it – that he found it funny.

Well, about 10 days later, the hotel sent me an online survey to complete, as they do to all guests who provide an email address. In the survey, I indicated that I had not been satisfied with staff courtesy. I gave a “0” rating out of a possible “10”on 2 survey questions.

Two days later, I received an email from a Guest Services specialist  asking what could the hotel have done differently for them to rate a “10” in all categories.

I took the opportunity to explain in detail what had happened and how it made me feel. I suggested possible solutions: increased training for staff on dealing with customer differences generally and specifically considering having a person who stutters come in and do a presentation on stuttering to guest services staff.

So far, I have not received a response. I hope I do. If so, I will share it here.

I have been having this back and forth email discussion with someone who thinks that I should continue to do work on my stuttering. I have not been involved in any formal support or therapy for about six months.

Informally, I have been chatting with women who stutter at least weekly for the last three months. This is my therapy right now. I can stutter freely with others who understand me and I get to talk about feelings as well.

Is there some other type of work I should be doing? Is my stuttering getting worse? I don’t think it is, and I feel like I have a healthy and positive attitude right now. OK, it is summer and I am not as engaged in speaking situations as I am doing the school year. But no one has said to me, “Geez, you’re stuttering is getting out of hand. Maybe you should be working on it.”

The person who thinks I should continue to “do the work” hasn’t seen or talked to me in six months. She doesn’t stutter. I don’t know if she listens to my podcasts. I doubt it, but you never know.

I think living with stuttering and managing it every day and not letting it interfere with the choices I make IS doing the work.

What do you think?

Episode 16 features Irina, who hails from Burgas, Bulgaria. She is a published author and journalist, and has also worked in the disability sector.

I met Irina on Face book through another friend in Belgium. It still amazes me how technology allows us to reach out and talk with others all around the world, as easily as if we are sitting in the same room together.

Something special happens when people who stutter reach out to one another. You can hear it as we chat!  Especially women! We realize immediately that we are not alone and that our feelings are very similar.

The three books she has published are I Stutter (2005) and the novels Almost Intimately (2007) and Annabel (2010). Irina stutters confidently in six languages. Her hobby and passion is Argentinian tango and she dances it regularly, also when traveling (always a pair of tango shoes in her bag).

We chat about many things in this wonderful conversation. We discuss how acceptance came into Irina’s life, her discovery of the Bulgarian Stuttering Association, and what led her to writing. This is a short essay that Irina wrote for a contest about stuttering.

Irina was also former Deputy Mayor for “Health Care, Social Activities and Integration of People with Disabilities”, Sofia Municipality (Bulgaria).

She is a woman who has touched many lives with her own story of stuttering and her advocacy.

I am proud to know her and have her share part of her story with us! She will have to visit again to share what we didn’t get to!

You are welcome and encouraged to leave feedback for us!

I use podcast-safe music under the Creative Commons license. No copyright infringements here!

Episode 15 features Lisette Wesseling, who hails all the way from Wellington, New Zealand. I met Lisette two years ago at the NSA conference that was held in Parsippany, NJ.

Since then, we have stayed in touch through various social media and the covert email group. I was delighted to spend some time again with Lisette when she returned to the US to attend the recent NSA conference in Cleveland, OH.

Lisette is a woman of many talents and of course has a wonderful story to share. Lisette is a Soprano singer, a singing teacher, and also works in a non-profit organization that disseminates information for Braille users.

We talk about a number of things related to the covert stuttering experience and how important it is, that when ready, you receive the right treatment approach. Lisette shares how for a while she received the wrong treatment and what impact that had on her. She shares her experiences with “Smooth Speech” which is the common therapy for stutterers in New Zealand and a bit about the therapy she is currently doing now.

We also discuss the differences in how stuttering may be perceived in the “artsy creative” world vs. corporate culture. And we visit voluntary stuttering, holding and looking at a stuttering moment and how the evolution of the internet has allowed for shared self-help, resources and therapy approaches.

Listen in, agree or disagree and feel free to leave feedback for Lisette, and me as well, if you wish. The comments left here often generate great discussion.

Musical credit for “Silver Shine” goes to Dano Songs.

I will be leaving today for my 3rd Friends convention, held this year in Chicago, IL. If you have a child that stutters, Friends is a wonderful support organization that focuses on acceptance of self as is. There is nothing better than to see kids, teen and young adults spend time together, laughing and loving each other and themselves.

This is a parent driven organization and it is clearly evident when you participate in a Friends event. The convention details are handled by families from the host city, and attendees feel welcome and supported the minute you walk in the door.

Parents are the backbone of this organization,  under the guidance of Director Lee Caggiano. Lee is the mother of a son who stutters, and the whole Caggiano family is deeply involved in Friends. Dad Tom helps with all kinds of logistical things, including chief photographer during events. Daughter Jessie, herself a Social Worker, works with the kids and runs a siblings group every year.

People ask me how come I attend both conferences, NSA and Friends. They are so close – within two weeks of each other. It can be expensive. My response is always: how can I not.

When I first met Lee four years ago, her unconditional love, support and respect for people who stutter came shining through. She made me feel that my stuttering has purpose, value – before her, no one had made me feel that way about stuttering.

I went to the Friends conference in New Orleans in 2008, and was warmly embraced. Literally. When I walked in to the Friends area in the hotel, a parent of two kids who stutter, Gloria, warmly embraced me and made me feel so welcome. I will never forget that. I have been hooked since.

Countless times I wonder what my life would have been like if I had something like this when I was little girl, feeling so alone and scared with my stuttering. If I had known other kids my age who sounded like me – I know things would have been very different for me. I would not have felt like I had to fight the demons all by my self.

If you stutter, even as a adult, or know someone who stutters, take an opportunity to check out Friends. You will see why it is such a special place for kids and thier families. There, they are not kids who stutter. They are just kids. And we adults become kids at heart.

Visit Friends today. You will be happy you did!

Episode 14 has been removed from the podcast archives.

This episode featured a woman that I got to meet when I visited the UK for the first time a few months ago (March/April 2010.) It was such a delight to meet her in person, and her family, after having only “met” S on-line through social media.

She invited me and and two other new friends into her home for a beautiful luncheon. After lunch, we had a tour of her home town and the seacoast of England. We also sat around her kitchen table over tea talking about everything women everywhere talk about.

It was one of the best experiences in my life. I look forward to when our paths cross again.

I had a packed four days at the 2010 NSA Conference in Cleveland, Ohio. I attended as many workshops as I could, in addition to the two that I did, along with doing videos of some of the teens. Here, I will give a quick summary of the workshops I attended and the key thought I took away from each.

Brother of Moses and Sister of Mary This workshop focused on gender differences in stuttering, and had workshop participants break into same-sex groups and discuss those things we as men and women who stutter find especially challenging. The groups then joined together for a shared discussion. Men seemed to find dating and chatting with opposite sex who don’t stutter harder. Women focused on issues of confidence. Question was asked does it seem that more women are covert than men. My take home point: men and women who stutter need to talk with each other and recognize that we can teach each other a lot.

Avoidance Reduction Therapy Several of my friends presented their experiences with this type of therapy led by Vivian Sisskin. This type of therapy does not focus on fluency shaping or targets or just treating speech mechanics, but rather helps stutterers accept stuttering so they can stutter easier, free of tension and struggle. Presenters, many of them young people, spoke about how reducing avoidance in their lives has significantly helped improve self-esteem and reduce feared situations. This was one of the best sessions I attended. My take home point: one must absolutely work on fears and feelings before any significant work can be done with speech tools.

I Need Your Love – Is That True? Great workshop discussing how often we feel compelled to seek the love and approval of others in order to determine our self-worth. We often feel that we don’t count unless we are told how we are valued by others and unless others pay attention to us. I often have felt the need to be loved and thought of highly by others – stems all the way back to childhood where I was always fearful of rejection. I grew up thinking I didn’t deserve to be happy! The workshop leader is also a minister, and she did a great job keeping the discussion based on spirituality and not faith-based. Key take home point: we must love and embrace our selves, all of our self, before others can love us.

Career Success: Human Services Networking Lunch Friday was Career Success day. There were a number of employment workshops available, including workplace discrimination, advertising your stutter and interviewing without really interviewing. There was also a networking lunch, where people with similar career goals could ask questions of people already in that field. I facilitated a great discussion on the dilemma of disclosing stuttering during job interviews and whether or not one who stutters should ask for reasonable accommodations. Key take home point: people who stutter are really worried and fearful about stuttering limiting them in the workplace. We need to talk with young people, share our ideas, and encourage them to seek mentors when ever possible.

Teens – Get Real: Real Life Fearful Speaking Situations Great workshop that used personal examples of one presenter’s experiences with sky-diving to illustrate how to overcome fearful moments. I joined a small group of teens who welcomed and included me in the discussion. They talked honestly about what they fear in everyday life as teens who stutter: being called upon in class, reading aloud, doing presentations, responding to rudeness, talking on the phone, the voice command feature on cell phones, and dealing with bullies. These kids were fearless talking about their fears. My take home point: dealing with fear allows us to do the impossible.

I will post another entry about the workshops I did, because this is getting long! NSA conferences are such a great opportunity to learn from each other. Hearing from each other is more inspiring that hearing a keynote from some person that used to stutter years ago and does not live with stuttering every day.

I am glad I had the opportunity to attend these sessions. The only drawback to attending a big conference is it is too hard to choose which workshops to attend. There are usually 5 or 6 scheduled at the same time. I do think I picked the right ones.

Somebody asked me yesterday for advice to help somebody get a handle on his or her stuttering. I took that to mean whats the best way to work towards acceptance.

I was flattered to be asked. I am not a speech professional and I am only four years into my own journey with stuttering acceptance.

I found myself emailing off a response right away, with no hesitation. I suggested that a person who stutters should be encouraged to talk about stuttering when ever possible, to whoever will listen. Ask the stutterer questions about her stuttering, things like, “how do you stutter? What does it feel like? What kind of emotions come up with stuttering?”

The more a person talks about stuttering, the more comfortable he or she will feel. It is the basic premise of desensitization. The person should also be encouraged to advertise that they stutter, as much as possible. 

It may feel awkward at first. If you are like me, someone who had been covert for a long time, it will indeed feel awkward. And weird. And scary. I hated it when I first tried doing it – I felt more self-conscious advertising I stutter than actually stuttering.

Encourage the person to advertise or disclose in baby steps – maybe to one person or in one situation a day. Each time it is done, it gets easier. The easier it gets talking about stuttering, the less anxious she will feel about stuttering. Less anxiety about stuttering may then translate into easier, more relaxed stuttering.

As I wrote this email out, offering my advice as a person who stutters to someone looking for a way to help someone else to accept stuttering, I realized why I was able to respond so fast. Because it is exactly how I have become more comfortable with my own stuttering in the last four years. I talk about it whenever I can, to both help myself and raise awareness for others.

Oh, and if you can’t tell, I also write about stuttering too. A lot. It helps. Thanks Ruth, for the inspiration to write about this today.

Episode 10 (already!) features Christine from London, England. I met Christine when I visited the UK several months ago and attended a British Stammering Association -BSA-meeting. It was a great opportunity for me to meet women from another country who understand the stuttering journey. They were just like me!

We have kept in touch through email and Face book, and most certainly will chat again soon.

Christine has an active interest in the woman’s stuttering experience and was instrumental in getting a telephone support group for women up and running in the UK. She also has supported and attended social gatherings for persons who stammer in the London area.

Christine and I chat about career paths and acceptance. We also dive into a very honest, very powerful discussion of how stutterers feel when hearing other stutterers, perhaps more severe. We both agree that this is a topic – feelings – not talked about often enough.

It raises a very real point. How can we talk about our feelings to people who don’t stutter if we are not willing to dive into the tougher stuff with each other?

Listen in! Please feel free to leave comments or questions for Christine, and applaud her for being vulnerable with us. Thanks Christine!

Musical credit for the clip “Today Then Tomorrow” goes to Dano Songs.

Episode 7 features Lesley Kodom-Baah, who hails from London.  I first met Lesley on the covert list-serv,where she posted a lot of questions and shared her stuttering experience.

Soon enough, Lesley and I began following each other on Face book and Twitter.  One social media account is never enough!

Lesley is a college student, majoring in Sociology. She shares what being young and in college with a stutter is like for her. Stuttering is like a taboo in England, so Lesley largely lived her life as a covert. We talk about that as well. She was eager to talk with someone about admitting and being a covert.

Lesley reveals some powerful insights in this episode. She discusses having felt locked in a prison,and the contrasting feelings she now has of being liberated. We discuss fears of not being liked or loved,and how stuttering makes you humble. Lesley also freely discusses her family life and her goals for the future.

Lesley attributes a major change in her life to having listened to other stutterers on the podcast Stuttertalk.

Musical credit for the song “Today Then Tomorrow” goes to Dano Songs.

Feel free to leave comments or feedback. The discussions are always great.


Podcasts, Posts, Videos

Glad you're stopping by!

  • 799,579 visits

Monthly Archives!

Copyright Notice

© Pamela A Mertz and Make Room For The Stuttering, 2009 - 2025. Unauthorized use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to Pamela A Mertz and Make Room For The Stuttering with appropriate and specific direction to the original content. Same protection applies to the podcasts linked to this blog, "Women Who Stutter: Our Stories" and "He Stutters: She Asks Him." Please give credit to owner/author Pamela A Mertz 2025.
Follow Make Room For The Stuttering on WordPress.com