Make Room For The Stuttering

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PamEpisode 137 features Autumn Seigel, who hails from Wapakoneta, Ohio. Autumn is a 21 year old writer who will soon self-publish her first book, ReAwaken, which will be a young adult novella. She writes in the science fiction, paranormal genre.

Listen in as we talk about how Autumn got involved in writing and what it was like for her growing up with a stutter. Autumn also has a learning disability, which she is open about in our conversation.

We discuss Autumn’s experience last year at a two-week summer intensive stuttering camp through The University of Toledo Speech, Language and Hearing Clinic. It was the first time Autumn had met other people who stuttered like herself. She felt she gained fluency, confidence and a more positive mindset after completing the camp.

Autumn has her own blog, The Dreamer, where she describes herself as writer, artist and dreamer. Autumn also maintains an authors page on Facebook for more information on her book.

The podcast safe music used in today’s episode is credited to ccMixter.

Like most people who stutter, I often find myself feeling self-conscious and vulnerable when I stutter publicly. I do a lot of public speaking for my job, and this is my busy time of the year. I have been conducting tours and presentations to prospective students interested in applying to our school.

Sometimes, I find myself hoping that I’ll be mostly fluent in my presentations so I don’t encounter teens snickering when I stutter during my talk. That’s happened often, as my fluency has been very inconsistent and teens don’t quite know how to react when they hear an adult unexpectedly stutter.

Today, I had a big group that was touring. I make a 15 minute presentation at the start of the visit and then take questions as we walk around on the tour. Sometimes, I find myself very fluent when giving these presentations, as I have to project my voice to a big group and that really helps with my control.

I was very happy today that I had a great speech today. What does that mean, a “great speech day?” For me, it means that I felt comfortable and in control while speaking and took the stuttering in stride. I had a few moments of stuttered speech but felt so comfortable that I didn’t let it bother me. I did not feel self-conscious or embarrassed and I did not experience any physical tension or blushing.

Being able to take the stuttering in stride is what it’s all about. We need to remember that good communication is about the message we are conveying, not whether we stutter or not. We can be excellent communicators and stutter.

When I was younger, I never believed that. I thought my stuttering meant I was doomed to be a poor communicator. Well, that is so wrong. I stutter and I’m a great communicator. Take it in stride.

What about you? Can you take your stuttering in stride and just be OK with it?

 

This morning I was involved in interviewing high school students for a competitive, accelerated health and scientific research program for next school year. The teacher and I had a standard list of questions that we were asking all of the candidates.

These students are juniors in high school and most of them were quite nervous.

We asked questions geared to discover whether the students would be a good fit for a demanding, rigorous year-long program that requires a lot of reading, writing and public speaking.

One of the candidates shared that she is very shy and one of her weak areas is “talking out loud in front of people.” She went on to say that when she does, she often finds herself stuttering and stumbling and feeling embarrassed.

I mentioned to her that many people have a fear of public speaking and that practice is key. The teacher commented that I probably had a lot more to share on that. She knows I stutter.

So that opened the door for me to share with the student that I stutter, but I don’t let it stop me from public speaking. I shared with her about my involvement with Toastmasters and my years of practicing and honing my communication skills.

I could see the student visibly relax as I briefly shared with her about this.

After her interview was complete and she had left, the teacher and I talked about perhaps me coming into her class sometime and doing a presentation on stuttering, as it’s a fascinating subject that has research implications and the students spend a significant amount of time in this class on research.

We talked about genetics and the different brain studies that have been done. I was already beginning to flesh out in my mind what such a presentation to accelerated high school seniors would look like. We agreed to schedule a date for me to present in May. I’m going to try to make it during National Stuttering Awareness Week.

You never know when you might get a chance to talk about stuttering, so be ready!

EpiPamsode 136 features Dori Lenz Holte, who is a parent of a child who stutters. Dori hails from Minneapolis, Minnesota and is the author of the book, “Voice Unearthed: Hope, Help and a Wake-Up Call for the Parents of Children Who Stutter.”

Dori also has a blog and a Facebook group offering support for the parents of children who stutter.

Dori says she wrote the book she wished she had read when she was starting out on the journey with her son Eli, who stutters and is now 18.

Listen in as Dori describes how traditional speech therapy affected her child and the frustration and desperation she and her husband felt as parents.

She talks about being told to “keep looking” for a speech therapist who was a specialist in stuttering.  That period of “keep looking” added to the silence and withdrawal that her son was experiencing as a young child who was trying, and failing, to use speech tools and techniques.

Dori also discusses the need for parents to keep their eye on the big picture, which is to raise confident and happy children. And parents should listen to their instincts.

This was an important conversation. Thanks Dori for being a guest.

The podcast safe music used in today’s episode is credited to ccMixter.

 

Last night, in my bi-weekly Stutter Social Google+ Hangout, we had a great conversation about whether stuttering is part of human nature. There were varying opinions among the eight people involved in the discussion. Some felt pretty strongly that stuttering can’t be part of human nature since it only affects 1% of the population.

Others felt pretty strongly that it must be part of human nature since differences in height, vision and intelligence are part of human nature.

We got into discussing nature vs. nurture and whether stuttering is environmentally based.

And we discussed what is normal vs. abnormal, as somel felt that stuttering is abnormal speech.

Towards the end of the conversation, people pretty much decided for themselves personally whether stuttering is part of their human nature.

Stuttering is part of my nature. And I’m human, so I’d say stuttering is part of my human nature. It is a part of me that makes me ME. It’s in my makeup, part of my being, part of my brain. So, yes, I believe that stuttering is part of human nature.

Let’s continue the conversation. What do you think? Is stuttering part of human nature?

This comment was left on my blog last night. I wanted to share it with readers, because, it has to be shared. This could be any of us!

I am considering joining Toastmasters, something I’ve been advised to do for years, but am now getting nervous because I’m finally going to do it. So..I’m here researching what to expect from Toastmasters and I came across your blog.

I have been a closeted stutterer most of my life and the fear of being exposed as a stutterer is often greater than the actual emotional pain of stuttering. Your blog is very inspiring to me and I hope that one day I can reach your level of acceptance. I think you make great points about how choosing not to hide your stutter can open up a new world for you.

For some reason, when I was approaching middle school, it didn’t bother me to tell people that I stuttered when they’d ask (usually with a grin or impending giggle on their face) “why do you talk like that?” It was nothing, back then, for me to respond by saying “well, because I stutter!”..a year later, my stutter went away for some reason.

I remember volunteering to read aloud, always thinking that my stutter might present itself–but I didn’t care, I spoke freely. I joined the Spelling Bee, I could show my classmates and teacher just how articulate I really am; I was confident, for real, for once. Then, for whatever reason, my stutter and all of its insecurities came back the next year.

I began stuttering when I was 9 and throughout the course of my life, thus far, my speech impediment has gone away 3-4 times in my life. I have finally reached a point, now that I’m pushing 40, that I am not trying to ‘make it go away’–I am merely trying to be the best person I can be. I am finally ready to eliminate my fear and conquer what I have allowed to hold me back in so many ways throughout my life.

I will not allow this to control me, instill fear in me or take hold of me any longer. I’ve “dumbed it down” and relaxed myself in slang because it proved to be an easy out for me. I could navigate that, and all the persona that comes with it much easier than I could master working on speech techniques and trying to overcome the only thing I needed to overcome–my fear of being laughed at. My fear of being pointed at. My fear of being rejected for something that is a part of me.

Your blog gave me the validation I needed to go ahead and join a Toastmasters chapter and work toward becoming that articulate person once more. Thank you!

 

PamEpisode 135 features Ashley Marcinkiewicz, who hails from Clifton Park, NY. Ashley is currently a PhD student at the University of New Hampshire, where she is studying microbiology. As a PhD student, Ashley teaches biology courses. She also enjoys hiking and outdoors activities.

Listen in as we discuss what it’s been like teaching and how Ashley has handled advertising her stuttering. We also discuss techniques and tools Ashley uses for when she gives presentations.

We talk about speech therapy experiences, the importance of attitude in how we approach our stuttering and how stuttering can be used as a benefit.

We also discuss the importance of community and learning from others’ perspectives about stuttering.

This was a great conversation, full of honesty and humor. Feel free to leave comments or ask questions in the comment section.

The podcast safe music used in today’s episode is credited to ccMixter.

“Are you sure?”

I was covering the phones this past Friday afternoon in my office for colleagues who were in a meeting. We answer the phones by saying good morning or afternoon, and state the name of our school building.

One call I answered I stuttered pretty good on all three words of our building name. The caller laughed and then said, “Are you sure?” and laughed again. I so wanted to say something to her, but didn’t.

She went on to introduce herself as being from the department of social services. I wondered if she laughs at clients who might sound different than she does on the phone.

I wasn’t in the mood to hear a sarcastic “are you sure?” that day. I politely and professionally helped her and then cursed at myself when I got off the call.

Would you have said anything to her about laughing?

I had a situation this week that brought back all the bad memories of reading aloud in school. Oh, how I hated to do that. Like many who stutter, I attempted all kinds of strategies to get out of reading aloud, as I always stutter when I can’t switch words and feel the pressure of others listening and watching.

I remember counting ahead to when it would be my turn and frantically trying to read the section and rehearse it in my head before my turn came. Or when there was only two people ahead of me, I would suddenly have to go to the bathroom or get sick and ask to see the school nurse.

I still have a piece of pencil lead in my hand from when I stabbed myself with a pencil so that I could go to the nurse’s office. Just to get out of reading aloud in class and feeling humiliated.

I sit on the Board of a non-profit literacy organization. We had our board meeting this week. The Director wants to introduce sharing the profiles of some of the individuals we serve at every meeting.

She had a list of about six paragraphs, each describing the profile of an individual on the waiting list to get literacy tutoring services. She thought we should share the wealth and each of us read one of the profiles aloud.

My mind went right to panic mode. My first instinct was to somehow figure out a way to opt out. I did not want to stutter in front of my fellow board members. I was new, so several of them did not know that I stutter. I didn’t want them to find out about my stuttering when I’m at my best with it.

After a quick moment of pondering how I would explain that I didn’t want to read aloud – sore throat, laryngitis – I realized that it would be worse for me to opt out. I just needed to do it like everyone else and be as smooth and confident as possible.

So, that’s what I did. When it was my turn, I read my paragraph and stuttered on about every other word. During the stuttering moments, I felt my face flush and felt embarrassed. But it was over quickly and we moved on to the next item of business on the agenda.

No one reacted. I didn’t sink into the floor or get hit by lightening. The worst that happened is that now everyone there knows I stutter. It’s out there now, so I won’t have to worry about it anymore.

How do you react when something like this happens?

I was interviewed by a friend last Wednesday for an article she wrote about how people who stutter use the internet to form communities. The article is called “The way we talk when we talk about stuttering” and it was published this Sunday January 18 in my friend’s home town of Austin, Texas.

Talking to my friend was a great opportunity for me to reflect on all the different ways I use the internet to form communities.

I have the community that follows this blog, which is still going strong after almost 6 years.

I have the community of women from all over the world that have been part of my podcast “Women Who Stutter: Our Stories” for almost 5 years.

And I have the community that has formed from being a Stutter Social host every other week.

Read the article. It’s great, thorough and mentions me. What more could you ask for? 🙂

PamEpisode 134 features Margaret Heffernan, who hails from Greeley, Colorado. Margaret is 20 years old and a senior at the University of Northern Colorado. She is studying theatrical design and technology with an emphasis in stage management.

We discuss the importance of communication in her work and how she “calls shows” as a stage manager. Margaret realizes that she can be a good communicator even if she’s not fluent.

Margaret’s dad also stutters. We discuss what it’s been like growing up with a family member who stutters, pushing herself through hard things, and not feeling so isolated.

Listen in as we also discuss entering adulthood, self-confidence, approaching job search and interviews, being open and turning a corner, and stuttering without fear. Margaret wrote a great piece describing her thoughts about stuttering, called “I Stutter and Some People Wear Glasses.”

This was a great, honest conversation about life transitions. The podcast safe music used in today’s episode is credited to ccMixter.

 

tomato-soup-grilled-cheese-sandwich-large-51094She looked at me sort of quizzically while I placed my order, but she didn’t bat an eye and smiled the same smile she always does when I stop in. I don’t think she really cared that I asked for “lllllllemon” in my ice water.

When the waitress brought my water, it had the lemon I had asked for, that’s all that mattered.

I’ve never really liked going to restaurants by myself. I’ve always found it a bit uncomfortable. I used to imagine people saying to themselves, “Oh, that poor lady, she’s eating alone.”

I’ve gotten over that as I’ve matured and realized that people don’t think about me when they’re dining out.

So, now I feel comfortable going to a few restaurants by myself. Especially since I can do like everyone else does – whip out my smart phone and check emails or texts. Not having to make eye contact with anyone simplifies matters when you’re dining alone.

Well, on this day, the waitress wanted to chat. God forbid, right? Chatting in a restaurant like we used to do in the good old days.

The waitress wanted to know what brought me in at an off time of the day. I was there mid-afternoon and there was only one couple sitting together at the counter.

I mentioned that I was between a-a-a-appointments and had not eaten lllllllunch yet. She asked me what I wanted to order.

I was in the mood for comfort food and asked for a gr-gr-gr-grilled cheese sand-sand-sand-wich and to-to-to-mato soup.

She looked at me and smiled and said she’d wait all day for me to say what I had to say and she hoped I expected everyone else to do the same.

I took a chance and said, “well, not everyone is patient, you know.”

The waitress then simply said, “well, honey, fuck them, then. They’re not worth your time.”

And five minutes later she brought me my soup and sandwich and set it on the table, winked, smiled and went on about her business.

That was the best grilled cheese sandwich I’ve ever had.

Episode Pam133 features Shilpa Sagwal, who hails from Mumbai, India. Shilpa is 23 years old and is studying for her Masters degree in Chemical Engineering. She is enjoying exploring her world and moving out of her comfort zone.

Listen in as we discuss Shilpa’s journey toward acceptance and how openly bringing up stammering with family and friends has helped her. She feels more supported and is enjoying life.

We discuss what it’s like to be a woman in India who stammers, how it’s a “big big issue.” Women who stammer don’t want to expose themselves and are fearful of almost everything. Stammering is seen as an imperfection. We discuss how women in India can’t speak for themselves anyway and how having a stammer only makes that worse.

We discuss The Indian Stammering Association (TISA) and how Shilpa has found support through weekly meetings and the national conference.

This was an enlightening, honest conversation that could have gone on for hours. Feel free to leave comments or ask questions.

The podcast safe music used in today’s episode is credited to ccMixter.

 

 

We all know the statistics. Only about 1% of the adult population stutters, so it’s common to not meet another person who stutters in our everyday lives.

I’ve talked to many people around the world who have shared that they have never met someone else who stutters, which may add to the isolation of stuttering.

I work in an organization that employs about 450 people, and I’ve met three other people who stutter through work. Statistically, that plays out as it should, but it seems strange that I’ve actually met all three of them. I don’t work directly with any of them but we have occasion to see and talk with each other.

They all happen to be men, which bears truth to the belief that there are 4 times as many men who stutter than women.

I have spoken about stuttering with two of the guys. In fact, one of them always asks me whenever I see him if I’ve done anything stuttering related recently. He’s referring to things he knows I’ve done in the past to raise awareness of stuttering, like organizing talks at local libraries and schools.

One person is a relatively new colleague that I see at least once monthly at meetings. I noticed that he stutters, but I didn’t go up to him and say, “hey, I stutter too,” I did that once with someone and it backfired. The person got offended and profusely denied he stuttered, even though to me it was quite obvious.

Everyone is at a different juncture with their stuttering journey and I don’t think it’s up to me to bring it up when I hear someone else stutter. But if this colleague approaches me and wants to discuss stuttering, I will gladly talk his ear off about it!

In an odd way, it feels good that I’ve met others who stutter in my workplace. Growing up, I never met anyone else who stuttered and always wondered if I was the only one.

It’s good to know I’m not the only one in the workplace.


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