Make Room For The Stuttering

Posts Tagged ‘stuttering

Episode 90 features Briana Pipkin who was born and raised in Dallas, Texas. Briana is 21 years old and currently a senior at Lamar University in Beaumont, Texas. She is studying to become a speech language pathologist.

Briana decided to study speech language pathology after ruling out other career paths and remembering a positive experience she had as a child.

Listen in as we discuss stuttering choices, disclosure and fear of judgment.

We also discuss covert stuttering as it relates to choices and the responsibility of educating others so they know how to respond. We also talk about the rise of on-line stuttering forums and support groups.

Feel free to leave comments for either Briana or me in the below comment section.

The podcast safe music used in this episode is credited to ccMixter.

I host two podcasts for people who stutter to share their stories. The Women Who Stutter: Our Stories is going strong more than two years in. And the occasional series for men who stutter, He Stutters: She Asks Him, is more than a year old.

Here’s an interesting trend happening with the women’s stories. About 8 women, months after their episode has been published, have contacted me and asked if their conversation could be removed. That is a little complex, as they are numbered, archived and on iTunes.

Compromises were reached and the last names of some of the women were removed. Some names were changed entirely.

Why?

People are discovering that upon a Google search, their names are popping up associated with stuttering. If they are doing a job search, they don’t want to be linked to anything relating to stuttering. They are afraid that potential employers will draw conclusions that may result in adverse employment decisions.

Several women came right out and told me that is the reason they wanted to remain anonymous and not be outed on Google.

As open as we are about stuttering, and the more progressive we get about advocacy and raising awareness, some things don’t change.

We still fear being exposed and still believe that being found to be a stutterer will result in negative social punishment. Including missed job opportunities or promotions.

And it appears to be more of a women’s issue. Hmmmm . . . . . .

Thoughts?

Why am I writing about the senseless movie theater shootings that happened last week in Aurora, Colorado? Because I was in Aurora that night. I was at a conference for young people who stutter and their families. The locale was Denver, but our conference hotel was in Aurora.

Each year, Friends: The National Association of Young People Who Stutter holds an annual conference in a different major city. I have been fortunate to be part of this “extended family” since 2008, this year being my 5th conference.

I am not exaggerating when I use the word family. Friends was founded 15 years ago by a mom of a kid who stutters who wanted a support organization that was specific to the needs and goals of young people and their families who live with stuttering.

The attendees of that first conference are all grown up now, and still attend every year. They have grown up together, and each year welcomed new kids and parents to the family. People who know each other for 10 or 15 years and watch their kids grow up together are indeed family.

So it was not unusual for a group of  these kids, ages 14-22, to have planned in advance to go to the midnight premiere of the Batman movie in Aurora. The older brother of a young woman who stutters was with the group and had organized transportation.

No one could have expected that this small group of kids who stutter would have been affected by senseless tragedy. But they were indeed. Our Friends kids were in the next theater when a young man opened fire in the theater next door.

Bullets came through the wall, hitting one of our teens in the arm. At first, he didn’t realize he’d been hit.

In fact, many of the kids didn’t realize what was happening, as the loud “pops” of gunfire were at first thought part of the movie. But as smoke and screams filled the air, the Friends teens indeed knew they were in trouble. Their survival instincts, and love for each other, took over and they all calmly and quickly got out of that theater.

Accounts from the kids, who are survivors, and their parents can be found here (Gage and his parents) and here (Linnea and Melia and their mom’s account.)

I wasn’t at the theater. None of the adults who stutter or parents in our group were. I can’t provide an eye-witness account. So why am I writing about this?

I am reflecting on what can be learned from horrific random acts of violence. Because there are lessons learned.

When the calls and texts started coming in from the kids at the theater to the parents at the hotel, everybody acted together as family. Parents made sure that the parents of the kid who was shot got transported to the hospital. Parents made sure that the 14-year old brother who’d been at the theater was cared for all night and the next day. That call that is every parent’s worst nightmare was a little easier because so many other parents were there for support.

As the other kids returned to the hotel, shaken and emotional, the hotel staff were wonderful. They brought blankets, pillows, snacks and drinks, so the kids could stay together as a group in the lobby all night and process what they had experienced together.

In the morning, as news spread among the conference attendees, people wondered what would happen. Would the conference proceed? Would activities still happen?

The answers were YES and YES!  Normalcy needed to prevail. The group needed to come together in workshops and sessions and experience the love and support that is unique to FRIENDS. When 300 people who share stuttering and the impact of “too close to home” tragedy, the natural instinct is to continue on and share the love and support of family.

That is what I am writing about here – the healing nature of support and family. The kids who were in the theater helped each other by being together all weekend. The parents and families and adults who stutter helped each other by sharing and talking, hugging and crying together, all weekend.

The only change to the conference agenda was the addition of group counseling sessions late Friday morning that were made available to anyone in need. Teens, parents and friends of the kids affected took advantage.

It seems cliché to talk about how senseless tragedy brings people together, closer, or helps us see what good can result from a major tragedy. So I won’t say that.

The FRIENDS friends were already a supportive close-knit family. The power of family and unconditional love and support helped our FRIENDS family process the magnitude of these tragic events and keep talking and holding tight to each other.

And that is the power of support.

Episode 89 features Mandy Taylor, who hails from Belfast, Northern Ireland. Mandy returned to college about 5 years ago to study accounting.

Mandy felt unsupported by her family, especially her father. Her journey began when she left home at 18.

After seeing the movie “The Kings Speech” she felt empowered to research stammering for the first time and learned about the British Stammering Association. She attended her first BSA conference last year, meeting other women like herself.

We discuss raising stammering awareness, the support group that Mandy started herself, stuttering as a disability, employment discrimination and the need for advocacy. Mandy concludes by sharing her belief that persons who stammer have to be the ones to tell others about stammering, so people will understand and know what to expect.

I had so much fun chatting with Mandy and hearing her story. Feel free to leave comments below for either of us.

The podcast safe music used in this episode is credited to ccMixter.

I can’t resist sharing this video of Katherine Preston talking about her journey to finding her voice. I had the pleasure of meeting Katherine in person at a NSA conference and at a FRIENDS convention during the summer of 2010.

Katherine was a guest on my podcast “Women Who Stutter: Our Stories,” in the 25th episode Think With Your Heart in September 2010.

Katherine was interviewed by Jonathan Fields for his Good Life Project. Fields is the author of  Uncertainty: Turning Fear and Doubt into Fuel for Brilliance. I read this book last year, within a week or so of it’s release. I highly recommend it for anyone who needs a push outside of their comfort zone.

This is a great interview for two reasons. Katherine stutters with confidence, and Jonathan Fields is a patient and respectful interviewer who found no need to rush the conversation.

This is a must see – whether you stutter or not!

First open mic session of the conference: a first-time adult stutterer from Mexico gets up and talks about the warmth and emotion he felt so quickly by being with so many people who stutter. His wife got up and shared that she couldn’t have realized how great support feels and burst into tears, with no shame at all.

Workshop: “Inviting Women Who Stutter to the Table” – about 25 women talked about issues unique to women. We discussed claiming our space, strengthening our voice, and how stuttering affects our femininity. Many shared that it was a very powerful workshop, that it’s important for women who stutter to share with women who stutter. Many came up to us suggesting that this be a staple at future conferences.

Presentation: “The Stuttering Monologues” – first time ever trying something new, a story telling performance that included lessons learned, inspiration, humor and dignity. The room was packed, standing room only, until someone finally decided to raise the wall and open another room. People came up to me saying how great it was. It was such a good feeling to see that this worked as well as I had hoped it would. Hope we get to do it again.

First-timer moment: met Kurt from Austria, as he was heading up to his room about 9pm on Tuesday night. I introduced myself and asked him where he was going. He said he didn’t know what to do and how to meet people. We chatted for a while and I suggested he come with me to the hotel lobby and I introduced him around. By Friday’s first-timer luncheon, he looked right at home and shared that he was so glad he had not gone upstairs that night.

First-timer moment – met Ali from Montreal, Canada in person after having only talked over Skype and briefly communicated via Facebook. It seemed like we already knew each other, as we had an instant connection.

Impact moment: seeing Anita from Sweden in person after several years. She told me that she heard from a lot of people that I have made an impact on their lives. That was a shared “cry” moment.

Impact moment: Tracy called me over to show me a picture on her cell phone that she has kept since last year. It is me wearing my tee-shirt that says “I Stutter. Deal With It.” She says she shows people that all the time. Made me feel really good!

Impact moment: had quite a few people come up to me and say “Are you Pam?” I’ve heard your name so much I really wanted to meet you in person.” So humbling to know that a lot of people know me from how “out there” I am.

Impact moment: chatting with the wife of a second-timer who stutters on the hotel veranda Saturday night. We got talking about how much she learned in such a short time. She said, “I never knew how much he really goes through with his speech, because he never told me. Being here has completely opened my eyes. I will be a more patient listener.” She had tears in her eyes.

Workshop: “Using Story Telling to Create a Culture” – participants paired up and shared a personal story with each other. It was so special to see the oldest guy in the room, a stutterer, paired up with the youngest guy in the room, a 14-year-old guy whose brother stutters. These two actively shared stories with each other, and then were seen exchanging contact information with each other.

First-timer moment: meeting Kervin (originally from St. Lucia) in the hallway of the hotel, as he stopped me and asked, “excuse me, what do we do now?” We chatted for a bit and I took him and introduced him to a bunch of people, who I later saw him with throughout the weekend. We touched base every day, and on the last day, he came up to me and told me he knows we are going to be great friends for a long time. We have already emailed each other since being home!

Impact moment: getting the chance to really spend time with Hanan (from Israel) and realize how much we have in common even though we come from different worlds.

First-timer moment: meeting Connie (from Alberta, Canada) who had emailed me a few weeks ago to tell me that she was scared to get up in front of others at an open mic session, but really wanted to do it. We had also talked on the phone before the conference, and talked about what to expect. I was so proud to see her speak with confidence at two open mic sessions.

It’s these little moments that paint the picture of how significant it is to come together in a community of support.

Unbelievably,October will soon be upon us. For the stuttering community, that means it will soon be time for the 14th Annual International Stuttering Awareness Day (ISAD) on-line conference.

October 22 of each year is the designated world-wide awareness day about stuttering.

For the three weeks leading up to the 22nd, there is an on-line conference that consists of papers and multi-media presentations written and shared by people who stutter, professionals in the speech and language field and college students and professors.

It is the one time a year where there is a virtual smorgasbord of all things stuttering, contributed, read and shared by people affected by stuttering from all over the world.

The conference is organized and maintained by the wonderful Judy Kuster, who maintains The Stuttering Homepage year round, and archives past ISAD conferences as well.

Please check into the ISAD conference once it goes “live” on Oct 1. The best thing about the on-line conference is the opportunity for readers to interact with presentation authors, through threaded discussions which remain active for the entire 3 weeks. That means you can leave comments and questions for contributors, and get responses back.

College students can get college credits for participating and reading all of the papers. And there is a section called “The Professor is In”, where anyone can ask a licensed speech professional any questions about stuttering related issues.

This year’s theme is very telling – “Sharing Stories: Changing Perceptions.”  I suspect this means we will be treated to a multitude of presentations where we will learn the stories from people all over the world.

Stories do change our world view. That is evidenced by the stories that are shared on my podcast, Women Who Stutter: Our Stories.

Check out the 2010 ISAD conference for a taste of what this is all about and be sure to check in this year. Tell them Pam sent you!


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© Pamela A Mertz and Make Room For The Stuttering, 2009 - 2026. Unauthorized use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to Pamela A Mertz and Make Room For The Stuttering with appropriate and specific direction to the original content. Same protection applies to the podcasts linked to this blog, "Women Who Stutter: Our Stories" and "He Stutters: She Asks Him." Please give credit to owner/author Pamela A Mertz 2026.
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