Make Room For The Stuttering

Posts Tagged ‘stuttering

There was a very thought provoking post made on Facebook this week from a parent. It seems her teenage son asked her not to speak at a school parent meeting they were attending. Specifically, the boy told his mom that when she “twitches,” she looks weird. When mom asked her son what he meant, he said she twitches when she stutters. Needless to say, she was embarrassed and mortified.

There were dozens of replies to mom’s post, most in support of her and hoping that she was OK. Some, like myself, offered reassurance that teenagers are embarrassed by everything their parents do, but that this issue should be talked about.

Other comments focused on the disrespect of the boy, suggesting that he be punished for what he said. Many then disagreed with those comments, feeling the moment should be used as a talking point and teaching opportunity.

As we know, talking about stuttering can be difficult. Often, it’s the “elephant in the room,” never getting talked about. People are embarrassed to talk about differences or challenges, or feel they risk making things worse by bringing “it” up. Stuttering is complex, as it’s an emotionally charged issue, not just a physical impediment. As we see from mom’s post, she was mortified and embarrassed by what her son said.

But deeper than what he said, mom was probably embarrassed by what her son may think of her. Mom may now be wondering how long her son has felt this way and why it never came up before. Mom may now become even more self-conscious of her stuttering, if she wasn’t already before.

It really struck me how many people responded to this post. I wonder how many times this kind of conversation has occurred between parents who stutter and their teenage children. Or hasn’t. It speaks to me to the reason we should be as open as we can about stuttering. Parents of fluent children should be sure to have open discussion about differences and that stuttering is just the parent’s way of talking.

This very open conversation on Facebook reminded me of a NSA friend, Stacey, who has quite a severe stutter. She is parent to a teenage daughter. The daughter has never been embarrassed by her mom’s stuttering, as they have had open conversations about stuttering since the child could talk. She think’s it’s normal that her mom stutters and isn’t bothered by it, even as an infamous teenager.

What do you think? How would you have reacted had this been your son making this comment to you? How can we use stuttering as a teachable moment?

The second week of May is designated as National Stuttering Awareness Week in the United States. This week was declared by Congress in 1988, through the dedicated advocacy work of persons who stutter.

It is a week where people who stutter speak up and out and educate those who don’t stutter about stuttering. It’s also a week to raise awareness about a communication disorder that only affects 1% of the population. That may seem like a small number, but it amounts to over 3 million Americans. That’s a lot of people who share stuttering.

If there’s one thing I’d like people who don’t stutter to know about stuttering it’s this: Stuttering is so much more than what comes out of our mouth. The repetitions and blocks only last moments. The underlying feelings of shame, guilt and fear can last years and can greatly impact our self esteem and world view.

If you encounter someone who stutters for the first time and you’re not sure how to react, use good judgement and react and listen just as you would to any speaker. Be patient, respectful and maintain eye contact. When you look away, the person who stutters feels uncomfortable and awkward and it may even make the stuttering moment worse or longer.

If you don’t understand something we’ve said, ask us to repeat it. Keep in mind that things like job interviews and public speaking create anxiety for the person who stutters, just as it would for a normally fluent speaker.

I am posting things about stuttering on my Facebook page all this week and also wrote a letter to the editor of the local newspaper that was published on Monday. What will you do to raise awareness about stuttering? If we who stutter don’t do it, who will?

IMG_1086I went to see Drew Lynch, a comedian who stutters, this past weekend. This is the second time I have seen him perform live. He put on a great show and his jokes and stories were genuinely funny.

He didn’t make all of his stories about stuttering. In fact, he only talked about stuttering twice, and poked fun at himself for stuttering just once. The rest of his stories were about other funny things and he stuttered while telling, of course, because that’s what he does.

This time I was at the show with a friend who stutters. She enjoyed the performance as much as I did. Neither of us felt uncomfortable laughing at someone who stutters, nor were we uncomfortable with the audience laughing. And laugh they did! The audience appreciated Drew’s comedy and his story telling. Everything was spot on, especially Drew’s timing, since it’s not always easy for a stutterer to “get” the punchline right.

After the show, my friend and I waited in line to meet Drew and get a picture. I was excited about this, as I had not waited to meet him the last time I saw him perform. When I went up to meet him, I told him I stuttered too and that I greatly enjoyed the show. I told him about the National Stuttering Association , which he didn’t seem to know about. I asked him to consider speaking at a NSA event or conference sometime. He enthusiastically said he would consider it and told me to get in touch with his assistant.

Then we hugged and posed for a photo. I’m glad I got to meet him and glad I enjoyed the show. I’ve come a long way with how I handle seeing and hearing someone else stutter. Years ago, I would have winced and been offended with people laughing at someone who stutters. Now, I take it in stride and just enjoy good comedy for what it is.

This past Saturday I gave a presentation about covert stuttering to a group of mostly speech language pathologists and students studying to be SLPs. This was for the the New York State Speech Language Hearing Association. I spoke about my journey from covert to overt stuttering and how SLPs can best support people who covertly stutter.

There was a lot of interest in how and why I went from covert to overt and there were quite a few questions during my presentation. I also had a few activities for the group to do which illustrated covert stuttering. I quickly realized I had too much material and was going to run out of time. As the group wanted to ask questions, I allotted the last half hour for just that, and ditched the rest of my formal presentation.

An older woman asked me a question toward the end. She didn’t identify herself as a SLP, but I’m pretty sure she was. She prefaced her question with, “You’re not going to like this but . . . ” and then asked the question. She asked, “Don’t you want to be more fluent? Wouldn’t you benefit from speech therapy?”

I was kind of floored. Here I had been talking for almost 90 minutes about how liberating it had felt to finally come out of the stuttering closet and how I was happy with who I was. I responded honestly and said that speech therapy wasn’t a goal of mine. I was most interested in being a comfortable and effective communicator and that I think one can be even with a stutter. I also said that I enjoyed public speaking more than I ever have and that I think I stutter fluently and that was enough for me.

She didn’t offer a response to my response but did come up to me at the conclusion of the presentation and thanked me and even gave me a hug. As did others. That felt great. One other SLP and professor came up to me and also hugged me and said that I was “almost there” with my effective communication. That kind of bothered me, but by that point, I was feeling really good and proud about my presentation.

What do you think? Has anyone asked you if you want to be more fluent? Do you think I answered the question well?

Recently in a Stutter Social hangout, we were having a good discussion about eye contact. We discussed the importance of eye contact, what it conveys and why it can be hard for a person who stutters to maintain eye contact.

I believe that maintaining eye contact when talking to someone is very important. It shows that you are engaged, present and that the person you are talking to is important. Eye contact does not mean staring at a person the whole time you’re talking. Rather, it means holding contact for a moment or two while the person is talking and then alternating your gaze while you are talking.

Gazing or staring at someone for a long time can be unnerving, even a little creepy. It is awkward and can make one or both parties feel uncomfortable. That’s why it’s sometimes hard to gauge how long it’s appropriate to hold eye contact with someone who is stuttering.

A person can be caught in a long block. Do you hold eye contact with them until they get the word out? Might it be uncomfortable for them? What should you do if the person breaks eye contact? Do you follow suit? It can be tricky because you want to be respectful and show you are present but you don’t want to cause an uncomfortable moment. Or longer than a moment – depending how long a person’s block is.

It might be best to ask a person who stutters what they would like you to do if they get stuck, if you and she are comfortable enough to talk about it.

It’s also important to note that sometimes use of the eyes is a secondary behavior of stuttering for the person who stutters. I have long known that one of the things I do when I block is squeeze one or both eyes closed for a moment. Sometimes I know I’m doing it – others times it happens quite automatically and unconsciously.

When we were talking about eye contact in the hangout conversation, someone remarked that I am definitely an eye closer. He was observing people in the video chat to see how we handle eye contact when we’re stuttering. He said some of us were “eye closers” and some of us were “look aways.” It was interesting to see how he could observe and determine that in a matter of just moments.

I think I close my eyes when stuttering for two reasons. I try to force out the word I am stuck on. Sometimes it works, sometimes it doesn’t! The other reason I think is that I am embarrassed or self-conscious about the block and don’t want to see the other person’s reaction. I worry that I’ll see pity, negativity or laughter in the person’s eyes and closing my eyes helps me to avoid that negative reaction.

I am confident in my stuttering. But I concede that I definitely have my moments when a secondary behavior pops up. Like I said, sometimes I’m aware, and sometimes I’m not and it just happens automatically.

What do you think about eye contact? And do you close your eyes or look away?

I was so surprised this past Saturday night to be recognized for my work with the stuttering community. I had been invited by a good friend to hear him deliver a keynote speech at the annual weekend workshop for people who stutter at The College of St Rose in Albany, NY.

My friend Mitch spoke about the benefits of Stutter Social to the stuttering community. Stutter Social is video conferencing using Google Hangout software to hold a virtual support group. I have been lucky enough to be a host for Stutter Social for 3 and 1/2 years now. Every other Sunday I facilitate a 90 minute group for people who stutter from all across the US and other parts of the world too.

Mitch used technology during his keynote speech and brought Stutter Social to life. He had 4 people who are hosts speak about the impact this has on the stuttering community. I thought I was going to do the same thing, but in person, since I was there.

But when Mitch started to introduce me, he gave me a much longer introduction than I expected. He shared all of my involvement with the stuttering community with the audience but didn’t name me by name until the end. He then called me up to receive the first ever Stutter Social service award for my service to Stutter Social and the greater stuttering community.  I was so surprised and happy that several of my good friends were there to see it via technology.

I don’t do what I do for the stuttering community looking for something in return. But it sure felt great to receive this award in such a surprise fashion. I was both proud and humbled. It’s important to give to the stuttering community – you never know the impact you may have on a person.17626544_10212485416399725_6685749424782899232_n

This episode of the podcast has been taken down, on request of the guest. It has been saved and perhaps one day can be republished.

Today I read a really interesting article about using virtual reality to help people who stutter confront some of their social anxieties.

It seems a 24 year medical product designer in the UK is developing software that can expose people to some of their anxiety triggers and help them to improve how they react. The young designer stutters himself.

The software was tested with a stuttering self help support group and participants showed a decrease in anxiety levels after repeated sessions with the software. Some also showed improvement concerning their speech.

The goal of the virtual reality software is to allow people to practice exposure therapy from the comfort of their own home.

You can read the article here.

What do you think? Would you be open to using something like this to work on stuttering related anxiety? It certainly sounds promising!

PamEpisode 168 features Hannah Smith who hails from Langley, British Columbia, Canada. Hannah is a home based Certified Nutritional Practitioner. She is able to work with anyone in the alternative health care field. Learn more about Hannah here at Fraser Valley Nutrition.

Listen in as we discuss how a balanced, healthy and active lifestyle has positively impacted Hannah’s speech. We discuss stuttering and anxiety, being open about and advertising stuttering and how to deal with the stress of stuttering.

We also discuss Hannah’s involvement in the stuttering community. She recalls meeting someone else who stutters for the first time when she was 16 and how that made her feel less sad and alone. And we talk about therapy and how it’s not for everyone and is definitely not “one size fits all.” Hannah also mentions how her stuttering almost serves as an alarm, telling her when she is unhappy or uncomfortable.

The podcast safe music used in today’s episode is credited to ccMixter.

 

Many people who stutter worry about how to manage job interviews. It has been said that interviews are the single most stressful communication situation that a person who stutters faces. It can be intimidating trying to prove that you meet the expectations of excellent verbal communication.

I used to be one of those people. I definitely worried about how I would handle when stuttering reared it’s ugly head during a job interview. I ultimately wound up disclosing at the start of the interview conversation that I stutter.

These days I am dealing with being on the other side of the interview table. I am helping to interview students who are applying to our college in the high school programs. So I am asking the questions and trying to make the student candidates feel at ease.

I have not disclosed at the start of the interviews that I stutter. I don’t feel it’s relevant to why the student is there. I’m stuttering – especially when I have to read one of the questions from the scripted set of questions we use. I’ve noticed a couple of raised eyebrows and smiles when I’ve stuttered but nothing beyond that. I think the students are too nervous themselves to give me and my stuttering much thought.

I am an effective communicator even when I stutter. I am confident in my ability to convey my message and I don’t let my stuttering stop me from doing this part of my job. I think just plowing ahead and speaking with confidence is the way to go, as when I’m confident, it lets the student know to have confidence in me.

Have any of you ever had the experience of being on the other side of the interview table? How did it go?

 

PamEpisode 167 features Hazel Percy, who hails from East London, in the U.K. Hazel works in an elderly care home, but her real passion is in public speaking and giving talks in her community. She enjoys sharing her journey towards getting over stuttering.

Listen in as Hazel shares her experiences with early speech therapy, The McGuire Program, and neuro-linguistic programming (NLP.)

Hazel also talks about how she was influenced by people who seemed to have recovered from stuttering, and she became very interested in learning about natural fluency. These days, she combines techniques learned from the McGuire program with elements of natural fluency. Hazel is also a proud 4 year member of Toastmasters.

The podcast safe music used in today’s episode is credited to ccMixter.

Producer Note: Yes, there is a lot of static in this episode. We had a transatlantic internet connection and it was not always the best. Focus on Hazel’s content – what she has to say is worth listening to!

Last night in a Stutter Social hangout, we had a rousing conversation about whether one would take a pill to cure stuttering if it was available. There were 8 of us in the hangout and there was a lot of discussion on the pros and cons of suddenly being fluent.

Several people said they would take such a pill in a heartbeat. They want fluency and the ease of communication that comes with it. They couldn’t really fathom why someone who stutters would choose NOT to take the pill.

Several people indicated that they wouldn’t take the pill because they’re not sure they’d like the person they might become. After stuttering so many years, one of course gets used to being the person they are, stutter and all. And some said that stuttering has helped shape the person they are.

One person said that stuttering or suddenly being fluent brings us choices. Fluency would bring us choices that we don’t now have. We might choose to put ourselves in speaking situations that we’d never dream of now.

And it was mentioned that if we didn’t stutter, we wouldn’t have the rich connections and friendships we now have in the stuttering community. Of course, we’d have other friendships with people that don’t stutter that certainly could be just as rich as those we’ve made.

It’s certainly an interesting question. Personally, I wouldn’t take such a pill. Being covert so long, I hated my stuttering and did everything I could to deny it existed and to pretend that I was fluent. It worked but at a toll. It was physically, emotionally and spiritually exhausting to live a life of hiding. When I finally couldn’t take it anymore – when I felt so inauthentic I felt like a fraud – I made the decision that I wasn’t going to live like that anymore.

I embarked on a journey of self discovery that I could live, and even thrive, with stuttering. I learned how to stutter openly and to accept that it’s a part of me. I learned how to stutter fluently. It took me over 8 years to reach that point and as far as I ‘m concerned, there’s no going back. I like who I am. I like all the pieces that make up me. And stuttering is one of those pieces.

What about you? If there was a pill you could take that made you fluent, with no side effects, would you take it?

PamEpisode 166 features Kim Block, who hails from Burnaby, British Columbia, Canada. Kim works as a secretary at a school for the deaf and knows sign language. She says, “It’s the only language I am fluent in.” Kim is married to her husband David who also stutters and they have two children.

Students and staff at her school are very supportive of Kim’s stuttering because she celebrates it. Every October, she has a party to celebrate International Stuttering Awareness Day. She emails tidbits about stuttering to colleagues and is very open about her stuttering. Peers are OK with her stuttering because Kim is OK with it.

Kim has also written a children’s book about stuttering. She wrote it for a little girl in her school who stutters because there were no books in the school library about stuttering. The book is called “Adventures of a Stuttering Superhero: Adventure #1 Interrupt-Itis.” Kim has plans for the book to have a total of nine adventures. She has read the book in front of the whole school. Kim wants kids first experience with stuttering to be positive.

Listen in to a great conversation that really celebrates stuttering.

The music clip used in this podcast is credited to ccMixter.

How many of you have speech or speaking goals for 2017? I usually don’t set speech goals for myself, because I tell myself I am comfortable with, and accepting of, my speech.

However, I have given this a lot of thought and there are some things I’d like to work on in the coming year. Since I finished Toastmasters and really don’t have a desire to go back anymore, I find I don’t have as many opportunities to push myself out of my comfort zone. I miss those monthly opportunities to speak regularly but I was tiring of the structure of Toastmasters.

Don’t get me wrong! Toastmasters was one of the best things I ever did for myself as a person who stutters. I found courage and confidence I didn’t know I had. I highly recommend it for anyone looking for speaking challenges. I just found that 7 years of bi-weekly meetings was enough. I do miss the people though.

Some of you may recall that I tried improv in 2016 for the first time ever and found that I really liked it. That was a big time push out of my comfort zone. I liked the “in the moment” spontaneity of improv and being to able to create something out of nothing just by taking a chance and thinking on your feet.

In 2017, I really want to take a second level improv class and learn more about being comfortable with spontaneity. I don’t want my stuttering to hold me back from taking creative chances with speech. So far, a second level hasn’t come up yet, but I will keep my eye out and watch for it.

I have a big speaking challenge coming up in April. I submitted a proposal and was approved to speak at the New York State Speech Language and Hearing annual conference. I will be giving a two hour workshop on “Reclaiming Her Space: From Covert to Overt Stuttering.” I am really excited about this but anxious at the same time. My perfectionist self really wants me to be perfect for this audience of SLPs and SLP students.

I know it’s not realistic to have expectations like that for this talk. I can only tell my story as best as I can and hopefully relay important information to the audience that will help them in some aspect of their work with people who stutter.

I also want to find some other speaking challenge or goal for the year. Does anyone have any ideas? I’d love your feedback.

It’s been a long time since someone told me to “spit it out” when I was caught in a stuttered moment. It happened this morning at work with a colleague.

She’s not someone that I am particularly close with, but I have mentioned to her that I stutter. So I was surprised this morning when she mocked the word I stuttered on and then said “spit it out.” She said it laughingly and while we were with someone else so I was taken off guard and just kind of smiled and walked away.

But it really bothered me!

I felt like I should have said something to her right away that I don’t like when someone says that when I’m stuttering but I let the moment go. I was kind of embarrassed because she said it in front of another colleague.

So, I plan to pull her aside and say something when I feel like it’s the right moment. I always am conscious of not embarrassing the “offender” because that’s not my goal. I just want to educate her so it doesn’t happen again. Hopefully, I’ll have the courage to find that right moment.

What would you have done in the moment?


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© Pamela A Mertz and Make Room For The Stuttering, 2009 - 2026. Unauthorized use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to Pamela A Mertz and Make Room For The Stuttering with appropriate and specific direction to the original content. Same protection applies to the podcasts linked to this blog, "Women Who Stutter: Our Stories" and "He Stutters: She Asks Him." Please give credit to owner/author Pamela A Mertz 2026.
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