Posts Tagged ‘women who stutter’
A Monday WOW Moment!
Posted on: March 1, 2011
- In: Posts
- 22 Comments
I had a great experience yesterday at my school that I wanted, well needed, to share. Two weeks ago I did a workshop at a library called “An Un-Royal Talk About Stuttering: Lessons from The King’s Speech”. It was free and open to the community and we had close to 50 people there. One of them present was a colleague of mine, who had seen the movie, knew I stuttered and was really interested in learning more. She also brought her mother.
She came to me the next day and asked if I would do a similar presentation to the Adult LPN classes, one today and the other one, in a more remote location, next week. She felt students preparing to work in the medical field could benefit from hearing this information from someone who lives it every day. I was nervous, but agreed.
I changed the presentation slightly to adapt to a nursing student’s point of view but planned to keep it close to what I had already done, so I didn’t have more work to do.
One of the first things I started with was the question how many in the class had seen the movie! ZERO! These are all working adults with families who take a demanding and intensive LPN course in 10 months and have little time to breathe, let alone watch a movie.
So I quickly changed my focus, and started telling MY story, hoping they wouldn’t be bored to tears. I shared about my covert years, why I chose that, the hidden feelings of shame and my reluctance to ever show emotion and vulnerability, in addition to stuttering publicly. I shared how I got fired, there was a collective gasp, they wanted to know wasn’t that illegal, etc. I started getting emotional, and one of the teachers brought me the Kleenex box!
Then I shared how my family had NEVER talked with me, or about stuttering, so it was always hard to talk about. I talked about how profoundly my life changed when I was fired and how I decided I wasn’t going to pretend anymore. I was going to let ME out.
You could have heard a pin drop in the room. I noticed and heard a few sniffles. At one point, I asked if anyone knew anyone who stutters, or does anyone stutter. One young woman in her 20’s raised her hand – she said , “I stutter” with tears streaming down her face.
I asked if her class knew, they were all looking now, and she said no, not until that moment. Her classmates then applauded. One girl said, “I thought so, but you are always so quiet, I wasn’t sure”. Heads were nodding and the girl who had disclosed smiled and looked OK.
I started talking about what stuttering is and what it isn’t, and the teacher in the room asked if it drove me insane if people finished my words for me. I smiled and said yes, she said, that as nurses, they are inclined to just want to help.
I then described the different ways stuttering can manifest, and when I got to sometimes people will use lots of filler words, like uhm, and that I used to do that, another hand went up, and a woman said, “OMG, that’s exactly what my 14-year-old son does, all the time. Maybe he stutters. I keep telling him to slow down, take a deep breath”, and she asked what I thought of that. I smiled and said that’s generally not helpful.
She looked concerned and asked out loud, “have I been making it worse for him?” and I said “if we could, we would”. She said she was going to talk to her child about it. She whispered “thank you” to me.
Towards the end, we were running out of time. We had not talked about the movie at all. I showed 1 minute of the 2 minute trailer. They got it. I then asked them if they had ever heard of Porky Pig, and what was he known for. They all knew. They stayed 10 minutes over, which the teachers told me they NEVER do. And they gave a huge applause at the end.
Several came up to me privately, and one more admitted she stutters and is dyslexic but has not told anyone, and that she “got me”. She said she has felt such a huge disconnect, but felt connected with my story as soon as I started telling it. She started crying as we spoke privately and she said she never heard anything this courageous as a teacher standing up in her school telling this story. She kept saying over and over “I got you.”
Who would have thought? 40 students in this Adult class, 2 stutter and one has a child who stutters.
This was a WOW moment for me and I wanted to share it!
Standing Up – Episode 47
Posted on: February 24, 2011
Episode 47 features Nina G, the Bay Area’s Only Stuttering Stand-Up Comic. Nina is a return guest. We first met Nina and heard her story in Episode 17, back in early August 2010. At that time, Nina talked about how she always wanted to get into comedy and what finally prompted her to take the plunge.
In today’s episode, Nina shares how it feels to be approaching her one-year anniversary as a comic and what the experience has really been like. She also shares the significance of how performing stand-up on stage allows her to perfect real “standing up” for herself.
We also discuss how important validation is, the importance of laughter and giving people permission to laugh, and how comedy has brought Nina much closer to authenticity, which is what we all strive for.
Nina also shares what the reactions have been to her comedy, from her stuttering peers, her family and mainstream audiences. And we talk about how stuttering more, and in comedy, has crossed over into other areas of her life.
Listen in to this great episode and hear how stand-up comedy from a person who stutters really does mean “standing up”. I must get to the San Francisco area one day to see Nina G perform on stage. She has offered me a “standing” invitation. Please be sure to leave comments or questions for Nina, and me too, if you wish!
Credit for the podcast safe music used in this episode goes to DanoSongs
Also, if you have not seen a clip of Nina, please be sure to check this out. Nina G – a stand up woman standing up for all of us.
Episode 46 features Kay, who hails from West Africa. Kay is a lawyer currently working as counsel for a litigation firm. Kay spent many of her childhood years in France. French is her mother tongue.
We spoke with each other via Skype in early February, when Kay was in the US at the University of Minnesota. As of the posting of this episode, she is now back in West Africa.
We first met on the Covert-s email support group, where Kay was posting a lot and asking questions. I took a chance and emailed her off list. We got to know each other a bit and Kay quickly agreed to share her story to help others.
Kay shares some very personal glimpses into her life, including the effects of some early abuse. She also shares how she chose to become a lawyer, and how very hard it was for her due to her stuttering. She had grave doubts about her abilities to appear competent as a lawyer and worried how her father, an esteemed public figure and lawyer in West Africa, would perceive her.
Kay is gut-wrenchingly honest about disappointing her father and buckling under the pressure of the legal profession and communicating in courts and trials.
We discuss not only covert stuttering, but also the notion of the need to be covert for professional reasons, for self-preservation and protection. We also discuss how Kay never talked about stuttering with anyone until 6 months ago when she entered into some therapy here in the US.
She was always concerned with making her parents, friends and colleagues comfortable around her, and she tried hard to not have to subject them to listening to her stutter. She never let on how anxious and fearful she was, always putting other people’s comfort ahead of her own needs.
This was a powerful conversation. There is some background noise I was unable to remove, but the content of Kay story far outweighs any editing issues. Feel free to leave comments for Kay or just simply let her know how much you appreciated hearing her story. Credit for the podcast safe music used in this episode goes to DanoSongs.
Road To Empowerment- Episode 45
Posted on: February 10, 2011
Episode 45 features Perla Ernest who hails from Mexico, by way of the UK, Saudi Arabia, and Brunei. She is 23 years old, British/Mexican, and has a history of covert stuttering, except when she couldn’t hide it! Today, Perla views herself as a recovering stammerer.
Perla is an ambitious young woman. She wants to use her years of experience abroad to start her own business of cross-culture training. She sees a need to teach multi-cultural norms and differences in a global business world.
Perla and I were introduced by Maria McGrath, featured in Episode 38. Perla shares how the McGuire therapy program changed her life. Perla explains many of the basic tenets of the McGuire program, including breathing and voluntary stuttering.
Listen in as we discuss career goals, communication and covert stuttering. Perla tells some great stories about the elaborate avoidance techniques she used to keep her stuttering hidden. Perla poignantly shares the story of how the mother of an ex-boyfriend who referred to her as “Perla the Stammerer”, and how that jolted her out of her belief that she had hidden her stammering successfully.
We also discuss inspiration, empowerment and leadership. And we talk about rock bottom and acceptance. Perla hopes to bring the McGuire program as an option to people who stutter in Mexico.
Credit for the podcast safe musical clip”Scott Waves to April With Salty Grace” goes to ccMixter.
Feel free to leave comments for Perla (or me). Feedback is a gift!
Facing The Monster – Episode 44
Posted on: February 1, 2011
Episode 44 features Anna Margolina, who hails from Redmond, Washington, by way of Russia. Curiousity compelled me to find Anna and “hear” her story. Let me explain!
I found the January 2011 issue of Toastmasters Magazine in my mailbox two weeks ago. The headline “From Stuttering to Public Speaking” on the cover grabbed my attention immediately. I flipped open to the article and saw five people profiled.
They were all successful Toastmasters who also happen to stutter. Four of the five profiles were men, one of which I know – Russ Hicks from Dallas, Texas. That was pretty cool, but I didn’t want to know more about Russ (sorry, friend). I wanted to know about Anna!
I was drawn to “her” story, because women who stutter are practically invisible in media, and here she was a Toastmaster and featured in a magazine. There was no personal contact information provided for Anna, but her Toastmaster club name and city was noted. I knew that was enough for me to find her!
I found her club on the Toastmaster International website and sent an email to the club contact. I asked if they would forward a message along to Anna. They did, Anna responded, and we connected. Anna was happy to share her story and voila, here we are.
Listen in as we chat about acceptance, negative self-talk, and positive change. Anna demonstrates “blocking” and how voluntary stuttering helped her face her monster. We also discuss Toastmasters, of course, John Harrison on Redefining Stuttering and Neurolinguistic Programming.
This episode is an absolute treasure trove. We dive into everything. This is the link to the article on “From Stuttering to Public Speaking” which only scratched the surface and fueled my fire to “meet” her and hear her story.
Anna also happily shares a video of one of her speeches on stuttering. You have to see this! She’s great!
- In: Posts
- 4 Comments
With all of the media attention and buzz surrounding the movie “The King’s Speech”, I wondered why there was no coverage in my area. We have a local college with a 40 year history of working with people who stutter. And the College of St Rose has an affiliated chapter of the National Stuttering Association as well.
So, I emailed one of the popular local anchor/reporters, told her a bit of my story and shared that I have a unique perspective on the experiences of women who stutter. I asked her if she would be interested in doing a story. She responded the next day, saying she would love to, and we set a date for a week later. Wow!
On Friday morning I welcomed Elaine Houston and her camera technician, Jesse, into my home. It was exciting and surreal at the same time. Elaine and I chatted while Jesse transformed my living room into a studio, complete with bright lights and lots of cameras. And then we got down to the business of talking and stuttering and talking about stuttering.
Turns out, Elaine had not even seen the movie. We were not going to talk about “The King’s Speech”. I wasn’t fully aware of this, but the reason that Elaine jumped at the opportunity to hear this story is that she is passionate about women’s issues. She was excited about the podcast highlighting women who stutter telling their stories. She does a weekly segment called “Today’s Women” which airs on News Channel 13 which is also included on the station’s website.
So, we discussed the “often not talked about” issues of stuttering, including the emotions and vulnerability, and how I have been affected personally and professionally. We talked about my journey,why I started this blog and how the women’s podcast morphed from there. Elaine was really interested in the women I have talked to, their hopes and dreams, and how stuttering does not limit anyone from living life fully.
Elaine had this huge, bright, enthusiastic smile the whole time we were chatting. Her passion is obvious, and she shared with me about her visit to Africa. She is working on a documentary about the lives of women around the world. I was telling the perfect person about my journey. And what I have learned from being brave enough to start talking to women all over the world.
We spent over 90 minutes together, taking lots of pictures and talking about everything. Especially about the powerful stories of women who stutter and how my life has been enriched simply by being part of this. I was grateful to have this opportunity to tell this story, and open up a conversation about stuttering from the women’s perspective.
Funny how things happen, huh? I have been so empowered by inviting women to share their stories. Elaine has had the same experience. Check out the book she wrote, The Friendships Between Women.
Things happen for a reason and usually at just the right time.
Letting Go Of Fear – Episode 43
Posted on: January 27, 2011
Episode 43 features Elaine Saitta, who hails from Seattle, Washington. She has been an active member of the National Stuttering Association (NSA) for many years. She has held several NSA positions such as Chapter Leader, Regional Chapter Coordinator, Board of Directors member, and Executive Director.
Elaine is a SLP in the Seattle school system and also works in private practice with children who stutter. She coordinates a teen support group as well as youth and adult workshops locally and nationally.
She believes in being open about her stuttering and educating others. But that wasn’t always the case! Like many people who stutter, Elaine was covert for a long time. Even though her stutter was mild, she was always very embarrassed and felt shame. She shares that she didn’t have the tools to talk about stuttering and her feelings.
Listen in as we talk about how and what changed for Elaine. Meeting other people who stutter had a profound affect on her perspective and her very sense of self. Elaine also shares “the conversation” she always wanted and needed to have with her dad. And she talks about the journey and how she arrived at acceptance.
We wrap up with how being more open to life’s experiences in general can broaden one’s life. I prompt her to share her recent solo journey to China and how letting go of fear enabled that. How powerful those four words are – letting go of fear!
Speaking of that, Elaine was recently featutred on NPR in Seattle to raise awareness on stuttering! Check it out here!
Feel free to leave comments or just let Elaine know what a great job she did. Feedback is a gift!
Credit for the music clip “Echoed” used in this episode goes to ccMixter.
What Happens When They Forget?
Posted on: January 24, 2011
- In: Posts
- 8 Comments
I had an interesting conversation Sunday with a friend. She wondered out loud what will happen when the attention surrounding “The King’s Speech” dies down and mainstream forgets about the movie. They will, you know.
By the end of the year, people who don’t stutter won’t even remember the movie. Attention will shift to the slew of movies that are always released at the end of the year, just in time for Academy Award buzz.
My friend mentioned that someone told her that right now, the movie almost makes it “cool to stutter”. A year from now, we will still have to worry about sending the message that it is “OK to stutter”.
In this fast paced world, people’s attentions spans are about as long as my pinkie-finger. We move from one thing to the next at lightening speed. I even have trouble these days recalling what I said an hour ago, unless I write it down. And then I can’t always even read my hand-writing any more. And speech recognition software doesn’t work well if you stutter! I tried it years ago!
So what do we do? How do we keep a reasonable focus on stuttering and remind the world that we are here, competent and able?
Another friend posted on Face book that the DVD and Blue Ray for “The King’s Speech” will be available on April 29, 2011. Who needs to know that? Who will buy the DVD? My bet is that most sales will be to us – people who stutter and people who care about people who stutter.
So we will need to continue educating others, raising awareness, talking about stuttering openly and advocating for ourselves. That includes keeping our blogs and podcasts alive and current, encouraging people who stutter to step out from behind the shadows and do everything we can to eliminate bullying of kids who stutter and workplace discrimination of adults who stutter.
That stuff will still happen. Kids will be teased and adults will be passed over for opportunities because people just don’t understand something outside of their “own world” realm.
Reminds me of a comment I saw posted on one of the stuttering email groups a few months ago. A woman asked, “are there any women who stutter in high power, visible,management positions?” Like CEO or Executive Director of known businesses?
We hear about Jack Welch of GE (20 minutes from me) and John Stoessel of 20-20 News (but he records his broadcasts and edits out stuttering). And here in my community, we have a male Mayor who stutters. But where are the women who stutter?
That’s why we will still need to keep talking and making our voices heard long after this movie is forgotten. For the kids who come behind us, and for the women who stutter openly that are not visible in those high level positions.
I recently met a woman who stutters who is her company’s Chief Branding Officer and the company is very successful. Hopefully, we will hear her story soon.
But in the meantime, we can’t complacently ride the coat tails of this movie. We who stutter every day and make room for it in our lives will have to be stronger and louder than ever to keep teaching the world that we are OK and what we have to say is important.
What do you think?
I Am Enough – Episode 42
Posted on: January 21, 2011
Episode 42 features Nora O’Connor, who hails from Los Angeles, California. Nora is a Licensed Clinical Social Worker. She presently works as a therapist in a residential drug treatment program for male parolees.
Nora shares how she always wanted to be in the helping profession. But she thought for a long time that being a social worker with a severe stutter (that she did not accept) was a real oxymoron. It’s a good thing for us that Nora worked this out, because as you will hear, she is a real gift.
Nora shares glimpses of her very personal journey with addiction and the dark depths of hopelessness. She turned to alcohol and other drugs to deal with her stuttering, and has now celebrated 15 years in recovery. She strongly believes that this journey has influenced every aspect of her being. It has also helped her find the beautiful, strong woman Nora always was, just waiting to emerge.
Listen is as Nora talks about what authenticity means to her, and how she discovered that bringing her whole true self to the table is very inviting to others. We also discuss finding acceptance, and how Nora wants to move beyond that, to just “being”. Not being a woman or person who stutters, but just being and breathing. (By the way, check out Nora’s blog, Just Breathe and Stay Human, for more on that).
We also talk about the important people in her life, and how Nora is excited to discover the opportunities that await her in the next decade. I always look for a key phrase or thought that a woman who is telling her story shares with us. This was hard, as Nora shares many gems. But in addition to the apt title of this episode, I loved how Nora refers to stuttering as “humility in disguise.”
Nora also co-wrote a paper on Self-Image Issues as part of a panel presentation on Women Living with Stuttering for the 2002 International Stuttering Awareness Day (ISAD) on-line conference, which can be found on The Stuttering Home Page, an absolute wealth of information on stuttering.
The podcast safe music clip, “Today Then Tomorrow” used in this episode is credited to DanoSongs.
If Nora’s story touches you (as it did me), be sure to leave a comment. Feedback is a gift.
Why It Matters – Episode 41
Posted on: January 17, 2011
Episode 41 is a departure from the usual format of this podcast. A woman of strength and courage, Irina, whom we met in episode 16, takes the microphone and the lead and invites me to tell some of my story.
This felt strangely awkward, but I was so glad that Irina was the one asking the inviting questions. We have become friends and share a lot in common. We had to do the Skype session twice, because the first time we had such a poor connection between New York, USA and Burgas, Bulgaria.
I hail from Albany, New York and have been “out” about my stuttering for about four years. My whole life changed in an instant in 2006, when I was fired from a job due to stuttering. That rock bottom moment helped me find resources and support, and my voice. Turns out, I always had a voice, but just didn’t know it.
Listen in as I share what it has been like for me going from “covert to overt”, how stuttering has affected me both personally and professionally, and how I really am not the same person I was just four short years ago. Irina invites me to share how and why I started this unique space for women who stutter, and how this has changed me as well.
I am proud of my journey and have no idea where it may take me next. I look forward to whatever it may be. And I am grateful for what I have learned from the strong, beautiful women from all over the world I have met. My heart and soul has been touched by each of you. Thank you!
Credit for the podcast safe music clip “Fire Babies” goes to ccMixter.
- In: Posts
- 6 Comments
Women Who Stutter Have Different Brain Connections Than Men Who Stutter; Findings May Help Explain Why More Men Than Women Stutter – – ScienceDaily (Nov. 18, 2010)
I could not resist re-posting this article. My risk-taking friend Lori San Martin posted this link on Facebook and made reference to me in her comment. Lori mentioned that she participated in the clinical research for this study, at NIH in Bethesda, MD. So did I, way back in 2006.
Neither of us knew each other then, so there was no way of knowing this shared connection. Interestingly, Lori chose to post this link on Face book, hoping I would see it and her comment, “Eat your heart out Pam.” When I read the article, I recognized the lead author was the researcher conducting the trial when I flew to Bethesda that summer.
I volunteered for the study because I could. I was available, healthy and willing to help unlock any clues to the mysteries of stuttering, and particularly why women are a “minority within a minority.” Plus, they compensated you, and I had just been fired from my job for stuttering. I felt I could contribute somehow by letting interested researchers study my brain. Lori must have felt the same way.
I even went to Columbia University in 2009 for a similar study of different brain activity. Again, making sacrifices for the good and welfare of the stuttering community. (And it was a sacrifice indeed. I stayed with a friend overnight in his Brooklyn apartment with his wife and two cats. Suffice it to say, I am not a cat person).
Here is the content of the article! As Lori says, “Eat your heart out.” We already know women are special and unique.
According to new research, women who stutter show brain patterns that are distinct from men who stutter. Finding diagnostic brain markers that are unique to people who stutter could help scientists develop treatments that target those areas in the future.
The research was presented at Neuroscience 2010, the annual meeting of the Society for Neuroscience, held in San Diego.
About five percent of young children stutter, but up to 80 percent of them recover. Of those who don’t, most are men; about five times more men than women stutter. These new findings show one difference in brain connections that may explain the striking sex difference in chronic stuttering.
“Girls who continue to stutter past childhood may have greater deficits that are not overcome during development,” said lead author Soo-Eun Chang, PhD, of Michigan State University. “Knowing the sex-based differences in brain development that underlie stuttering may help us find sex-specific neural markers for it.”
Chang and her colleagues mapped participants’ brains using two imaging tools: functional magnetic resonance imaging (fMRI), which showed brain areas active during speech, and diffusion tensor imaging, which provided structural information on connections between brain regions. They tested 18 volunteers who stutter and 14 who don’t.
The images showed that speakers who stutter had fewer connections between the motor planning and execution areas in the left hemisphere of their brains, as well as increased connections between hemispheres. In addition, the women who stutter had distinctly greater connectivity between the motor and sensory regions in both hemispheres than men who stutter. These findings may indicate that the link between motor control and sensory functions may be abnormal in women who stutter.
“These results need to be replicated in young children to examine whether this is the case at stuttering onset or whether it later appears only in adult females who continue to stutter,” Chang said.
Research was supported by the Intramural Research Programs in the National Institute of Neurological Disorders and Stroke and the National Institute on Deafness and other Communication Disorders.
So, what do you think? Comments, thoughts, questions. Come on guys! Can there be discourse about this? Hmm?
Doors Of Opportunity-Episode 40
Posted on: January 10, 2011
Episode 40 features Mary Rose Sevilla Labandelo, or Mary Lab,as she is known on Facebook, who hails from Vancouver, British Columbia, Canada.
Mary is the founder/coordinator of the Vancouver Support Group for Stutterers and has been a board member of the British Columbia Association for People who Stutter. She is presently a Pre-school teacher.
Mary has always enjoyed being around children, and finds she stutters much less when around children. She finds she has more control, when being in the “role” of teacher, and therefore, has more control over her speech. Mary discusses how she finds that “acting out characters” when reading to children really helps her!
Listen is as we discuss the impact of stuttering on Mary’s childhood and how its been different for her as an adult. We discuss disclosure, acceptance, and the value of using her own experiences to help others.
Mary shares how attending a conference of the Canadian Stuttering Association helped her finally embrace herself and drive her towards acceptance. Mary also discusses how she views her stuttering as different from the “stereotypical” image of stuttering.
The podcast safe music clip, “I’m Gonna Shine” used in this episode is credited to DanoSongs.
Please feel free to leave comments for Mary, or just let her know what a great job she did! Feedback is a gift, as I keep learning!
We Never Know Our Reach
Posted on: January 7, 2011
- In: Posts
- 14 Comments
I was so surprised and honored to receive a recent message from a woman in Brazil who had sent me a friend request on Facebook. Because I did not know her, I inquired who she was and why she was interested in connecting.
Ignes wrote: “I am the president of the Brazilian Institute of Fluency – IBF. I’m a speech pathologist specializing in the treatment of stuttering, however I’m not a person who stutters. This is my personal website: www.gagueiraonline.com.br. It is written only in Portuguese yet, but I plan to translate it into English and Spanish soon.”
“I really admire your work. Here in Brazil we use a video of you – in lectures and courses to educate teachers about what stuttering is and how to treat a person who stutters. I visited your blog and really enjoyed it. I forwarded the link to several people from the Institute and two colleagues in particular who are also founders of the IBF and women who stutter. They will probably write to you.”
“It is indeed a great pleasure to establish contact with you and be able to exchange knowledge.”
Now maybe I am just getting wimpy in my old age, but this really touched me. I did not even know that somewhere in Brazil, teachers are looking at a video of me talking to kids about stuttering so they would understand it and know how to best work with those children. The kids I talked to that day did not stutter. I was teaching them about it so they would not be afraid when they encounter someone who talks different and not laugh at someone who stutters.
What a powerful message this was for me when I read Ignes’ response. We never know who we might touch. We never know how what we do today may impact someone else tomorrow. I visited that middle school to talk to kids about respect for differences during National Stuttering Awareness Week two years ago and it is making a difference in Brazil today as well. Wow!
Moments like this remind me of why I keep doing this. Sometimes I don’t get any feedback and wonder if I should keep on writing and sharing my journey, my story. Thank you , Ignes, for reminding me that what we do does matter.
What people are saying!