Posts Tagged ‘acceptance of stuttering’
Three Telephone Calls
Posted on: April 28, 2011
In early March, I had the opportunity to visit Milwaukee and talk about stuttering, something I rather enjoy doing. I stayed with Barb and her husband Chuck, and was treated like a rock-star. Barb is the NSA chapter leader in Milwaukee, and she had coordinated a workshop that was held at the University of Wisconsin-Milwaukee.
There were about 100 people in attendance, including professional SLPs, students, adults who stutter and several parents of kids who stutter. I “told my story” for a little while and then a 5-person panel talked about their experiences and interacted with the audience. It was a very empowering experience for all involved.
Barb had been relentless about getting media coverage for the event, and a reporter from the Milwaukee Journal Sentinel wrote up a great piece about the event, which included contact information if people wanted to know more about the NSA. You can see the article here.
About a week after the article appeared, Barb contacted me to let me know she had received a phone call from 83-year-old Jane, who had seen the article and felt inspired to call Barb. She had never talked with anyone about her stuttering, ever. She had always kept it hidden, found ways around it, and thought she had not let it limit her.
But seeing the article triggered feelings for Jane and she was inspired to call Barb and talk openly about her stuttering. She did not want to publicly”come out of the closet” or attend a meeting – she just wanted to share her feelings with someone. She did agree that it would be OK for Barb to call her again, and that it would be nice if I called sometime too.
I called her a few days later, and Jane was cordial and pleasant, and told me a little bit of her story. She also said she had made a mistake, that it wasn’t good for her to open “Pandora’s box” after all these years, and that the memories were just too painful. She asked that I never call her again.
She also called Barb and left her a similar message. Jane had initially felt it might be OK to “reveal her secret”, but she changed her mind and asked that neither of us contact her again.
Case closed. It is what it is, and you respect a person’s decision. I was just glad that I had called her and heard about this.
A third phone call came. Barb emailed me on Easter Sunday evening to let me know Jane had called her late Easter afternoon to tell her this. On Easter Sunday morning, with her family gathered, Jane chose to tell her family that she has been a life-long stutterer. She wanted no discussion or feedback from her family, she just wanted to be honest and tell them.
Jane called Barb and told her what she had done. Jane said at 83-years old, she wanted to “get her life in order” and part of this included verbally acknowledging to her family that she stuttered. And even after stating she wanted no further contact with Barb, Jane called her.
After reading Barb’s email, I called her, and we talked. Both of us were profoundly moved by this chance encounter with a woman we never met named Jane.
We will probably never hear from Jane again, but we will not soon forget this story.
Let It Be
Posted on: April 7, 2011
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I found myself responding to someone who was thinking out loud about stuttering. She said, “I just don’t get it.” I mused she probably was referring to, “Why is stuttering so unpredictable?”
The variability and complexity of how we sound, how we feel, how one day it’s one way and the next it is completely different is quite amazing. To me, anyway. There are some who will surely find ways to describe stuttering that does not include the adjective “amazing.”
For a long time, I tried to figure things out – why this, why that, why some people react one way, why others say dumb things, why sometimes I am like an open book, and other times, I find myself with heat on my face and my heart thumping. I stopped trying to figure it out.
It is so much easier to just let things be the way they are going to be. It sounds simplistic. Perhaps it may even seem to minimize the struggle of stuttering for some.
I have an embroidered framed art piece of one of my favorite sayings, “It Is What It Is”. I used to think that even thinking that about stuttering or my reaction was a “cop-out”. Some things are just going to happen and life will go on. I have determined that to be a fact.
No matter how hard I try to analyze or rationalize or convince myself otherwise, some days I am going to stutter a lot and feel tense, and some days I am going to hardly stutter at all.
I think sometimes its harder to just relax and let my natural self be. I had become so used to making excuses, rationalizing, over-thinking, obsessing about everything. It’s what I did, all of the time. That was when I considered myself very covert about my stuttering.
Now, to just relax and be, really BE, sometimes I have to remind myself of just that – that who I am is really OK. Screw everyone else who doesn’t think so.
Yes, this is hard to do in a (perceived) judgmental world, but I guess I just have reached the point where all the needless worrying about how I will sound or what someone will think is just not so important anymore.
Just like the song says, “Let It Be”.
The Outer Rim Of A Bowl-Episode 49
Posted on: March 14, 2011
Episode 49 features Hannah Laday, who hails from Central New Jersey. Hannah came out of the woods of rural Maine to attend a stuttering retreat, met and married George, and moved to New Jersey.
Hannah is the leader of the Central New Jersey NSA chapter. We got to know each other through NSA conferences, email, the covert support list and phone chats. Hannah also works as a direct support professional for women with developmental disabilities.
Hannah has had quite the journey. She literally moved out of the woods onto a road and began using a phone after a long time of not doing so. “Bottoming out” finally propelled her to make changes in her life.
She has pushed outside of her comfort zone many times. She “exposed” herself at the NSA Covert panel workshop and contributed a paper about covert stuttering to the 2010 ISAD online conference. Read and learn about “Lightening the Load of Covert Stuttering”.
Listen in to a robust dialogue with plenty of emotion. We talk about how and why we limit ourselves, being in groups but not really part of them, courage and change. The take away from this episode – never, ever think you don’t have a story that needs telling. We all need to be heard. Our stories are powerful!
Credit for the podcast safe musical clip “Echoed” goes to ccMixter. Be sure to leave comments. Feedback is a gift!
Standing Up – Episode 47
Posted on: February 24, 2011
Episode 47 features Nina G, the Bay Area’s Only Stuttering Stand-Up Comic. Nina is a return guest. We first met Nina and heard her story in Episode 17, back in early August 2010. At that time, Nina talked about how she always wanted to get into comedy and what finally prompted her to take the plunge.
In today’s episode, Nina shares how it feels to be approaching her one-year anniversary as a comic and what the experience has really been like. She also shares the significance of how performing stand-up on stage allows her to perfect real “standing up” for herself.
We also discuss how important validation is, the importance of laughter and giving people permission to laugh, and how comedy has brought Nina much closer to authenticity, which is what we all strive for.
Nina also shares what the reactions have been to her comedy, from her stuttering peers, her family and mainstream audiences. And we talk about how stuttering more, and in comedy, has crossed over into other areas of her life.
Listen in to this great episode and hear how stand-up comedy from a person who stutters really does mean “standing up”. I must get to the San Francisco area one day to see Nina G perform on stage. She has offered me a “standing” invitation. Please be sure to leave comments or questions for Nina, and me too, if you wish!
Credit for the podcast safe music used in this episode goes to DanoSongs
Also, if you have not seen a clip of Nina, please be sure to check this out. Nina G – a stand up woman standing up for all of us.
Road To Empowerment- Episode 45
Posted on: February 10, 2011
Episode 45 features Perla Ernest who hails from Mexico, by way of the UK, Saudi Arabia, and Brunei. She is 23 years old, British/Mexican, and has a history of covert stuttering, except when she couldn’t hide it! Today, Perla views herself as a recovering stammerer.
Perla is an ambitious young woman. She wants to use her years of experience abroad to start her own business of cross-culture training. She sees a need to teach multi-cultural norms and differences in a global business world.
Perla and I were introduced by Maria McGrath, featured in Episode 38. Perla shares how the McGuire therapy program changed her life. Perla explains many of the basic tenets of the McGuire program, including breathing and voluntary stuttering.
Listen in as we discuss career goals, communication and covert stuttering. Perla tells some great stories about the elaborate avoidance techniques she used to keep her stuttering hidden. Perla poignantly shares the story of how the mother of an ex-boyfriend who referred to her as “Perla the Stammerer”, and how that jolted her out of her belief that she had hidden her stammering successfully.
We also discuss inspiration, empowerment and leadership. And we talk about rock bottom and acceptance. Perla hopes to bring the McGuire program as an option to people who stutter in Mexico.
Credit for the podcast safe musical clip”Scott Waves to April With Salty Grace” goes to ccMixter.
Feel free to leave comments for Perla (or me). Feedback is a gift!
I Am Enough – Episode 42
Posted on: January 21, 2011
Episode 42 features Nora O’Connor, who hails from Los Angeles, California. Nora is a Licensed Clinical Social Worker. She presently works as a therapist in a residential drug treatment program for male parolees.
Nora shares how she always wanted to be in the helping profession. But she thought for a long time that being a social worker with a severe stutter (that she did not accept) was a real oxymoron. It’s a good thing for us that Nora worked this out, because as you will hear, she is a real gift.
Nora shares glimpses of her very personal journey with addiction and the dark depths of hopelessness. She turned to alcohol and other drugs to deal with her stuttering, and has now celebrated 15 years in recovery. She strongly believes that this journey has influenced every aspect of her being. It has also helped her find the beautiful, strong woman Nora always was, just waiting to emerge.
Listen is as Nora talks about what authenticity means to her, and how she discovered that bringing her whole true self to the table is very inviting to others. We also discuss finding acceptance, and how Nora wants to move beyond that, to just “being”. Not being a woman or person who stutters, but just being and breathing. (By the way, check out Nora’s blog, Just Breathe and Stay Human, for more on that).
We also talk about the important people in her life, and how Nora is excited to discover the opportunities that await her in the next decade. I always look for a key phrase or thought that a woman who is telling her story shares with us. This was hard, as Nora shares many gems. But in addition to the apt title of this episode, I loved how Nora refers to stuttering as “humility in disguise.”
Nora also co-wrote a paper on Self-Image Issues as part of a panel presentation on Women Living with Stuttering for the 2002 International Stuttering Awareness Day (ISAD) on-line conference, which can be found on The Stuttering Home Page, an absolute wealth of information on stuttering.
The podcast safe music clip, “Today Then Tomorrow” used in this episode is credited to DanoSongs.
If Nora’s story touches you (as it did me), be sure to leave a comment. Feedback is a gift.
Doors Of Opportunity-Episode 40
Posted on: January 10, 2011
Episode 40 features Mary Rose Sevilla Labandelo, or Mary Lab,as she is known on Facebook, who hails from Vancouver, British Columbia, Canada.
Mary is the founder/coordinator of the Vancouver Support Group for Stutterers and has been a board member of the British Columbia Association for People who Stutter. She is presently a Pre-school teacher.
Mary has always enjoyed being around children, and finds she stutters much less when around children. She finds she has more control, when being in the “role” of teacher, and therefore, has more control over her speech. Mary discusses how she finds that “acting out characters” when reading to children really helps her!
Listen is as we discuss the impact of stuttering on Mary’s childhood and how its been different for her as an adult. We discuss disclosure, acceptance, and the value of using her own experiences to help others.
Mary shares how attending a conference of the Canadian Stuttering Association helped her finally embrace herself and drive her towards acceptance. Mary also discusses how she views her stuttering as different from the “stereotypical” image of stuttering.
The podcast safe music clip, “I’m Gonna Shine” used in this episode is credited to DanoSongs.
Please feel free to leave comments for Mary, or just let her know what a great job she did! Feedback is a gift, as I keep learning!
The People In Our Lives
Posted on: December 22, 2010
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Short and sweet today. I have spent a lot of time reflecting on how rich my life is. And that is because of the many people I share my life with. It is so true what they say that it is not money that measures our riches – but indeed the relationships we build.
My life has been enriched by the people I come into contact with, and I truly feel I am a better person because I let my heart be open to new people and experiences.
Thank you for enriching my life!
I went alone to see the movie
What people are saying!