Make Room For The Stuttering

Posts Tagged ‘public stuttering

I am excited to be heading off to Scottsdale, Arizona in a few days for the 30th Annual National Stuttering Association conference. There will likely be over 700 people in attendance, including hundreds of us who stutter, as well as family, friends and professionals in the field.

There are many educational and empowering workshops planned, as well as social activities to encourage talking and interaction between newcomers and veterans alike.

It promises to be a hot time – literally! Parts of the southwest, Arizona included, are experiencing record-breaking heat right now, and temps are expected to be well above 100 degrees (F) for the 5 days I will be there.

I am excited to see friends and make new friends. Like many of us, this is a special time of year for me. It is where stuttering is OK, and people who stutter are in the majority, which is a rarity. Restaurants, bars and shops will get to listen closely to stuttering as we invade AZ.

I look forward to reporting on this blog some of the highlights of the workshops, as I have done for the past several years.

I am also looking forward to relaxing and having some FUN.

Well, Lazaro Arabos made it through another round on American Idol this week. In fact, voters put him in the top three this week.

This came as a surprise, since Lazaro forgot some lyrics in his duet performance this week, just like he did in last week’s performance. And Jimmy Iovine, the show’s mentor, had predicted that Lazaro should be in the bottom two or voted off the show.

The judges thought Lazaro’s solo performance of “We Are The Champions” was a perfect song choice for him, as the song signals that Lazaro is a champion after defying the odds to sing so well despite his severe stutter.

But many critics are saying that Lazaro is getting through when he should not, and at the expense of much better singers.

Do you think Lazaro is getting the sympathy vote? Do you think people are voting for him just because he stutters? To make a statement that finally, someone with a disability, can get this far?

I have been following the show every week this year. As a person who stutters myself, I greatly admire what Lazaro is doing. He is a great singer, but clearly struggles with interviews. But he does them anyway. He’s a great role model in that regard.

But I don’t think he is the better singer over some that have been eliminated since the top 10 was established.

If you are a person who stutters, are you rooting for Lazaro just because he stutters? Do you think he deserves to have made it this far? If you don’t stutter, what do you think?

Pam

Episode 98 features Danielle W, who hails from the Bay area of California. Danielle is 17 years old and a senior in high school.

Danielle is currently applying to colleges, and hopes to double major in musical theater and either business or psychology.

As you will hear in our chat, Danielle is passionate about musical theater. We discuss how stuttering impacts Danielle when she performs, and what it’s been like for her on auditions.

Listen in as we also discuss family support, speech therapy and the need for a good sense of humor. Danielle is a fighter and doesn’t let her stuttering hold her back. “Just because someone hasn’t done it, doesn’t mean you can’t.”

Danielle is an inspiring young woman with a great attitude and outlook on life. It was such a honor to get to know her more. Danielle and I met at the FRIENDS conference last summer in Colorado.

Feel free to leave comments for Danielle in the comment section. Remember, feedback is a gift. Music used in this episode is credited to ccMixter.

1. If you are meeting someone new for the first time, and you are engaging in small talk that leads to sharing a little about yourself, consider mentioning that you stutter. An easy way is to say something like, “One of the really unique things about me is I stutter. If you don’t know much about stuttering, ask me, because I’m an expert.”

2. If you are doing a small or large group presentation to people you don’t know well, consider disclosing your stutter early on in your talk. Do it in such a way that you are very confident and matter-of-fact. Let people know that you are comfortable with it. You might say, “Oh, by the way, I stutter, so you may hear some repetitions or pauses. It’s nothing to worry about. I’m OK with my stuttering and I hope you will be too.”

3. Use humor. Try not to take yourself too seriously. If you find yourself talking with someone and you’re self-conscious of a stuttering moment, take some of the pressure off yourself. Consider saying something like, “I hate when that happens. My stuttering seems to be on autopilot today!” And then laugh! If your listener sees that you are comfortable enough to use humor, they will take the cue from you to be a comfortable listener. It’s also a good way to lessen any anxiety you may be feeling.

4. If someone makes fun of you – laughs, mimics, or says something hurtful – feel the “pain” for a moment and then say something. You might try, “maybe you didn’t realize it, but I stutter. This is how I talk. I didn’t like what you just said. Please don’t say it again.” Most people will feel bad and apologize. I always feel a little guilty when that happens, as I don’t purposely want to embarrass someone. But I find that many people really respect the courage it takes to address the fact that we were offended by their teasing or hurtful remark.

5. In a job interview, which most people who stutter think is highly stressful, consider mentioning stuttering as a strength. Yes, a strength! You can say, “I stutter, and because of that, I am an excellent listener, am always well prepared for any speaking engagement and I’m very compassionate, all valuable qualities in today’s workplace.”

Do you have any other ideas as to how to disclose your stuttering? Please share them – I’d love to hear your thoughts.

Make your plans now to check into this years’ International Stuttering Awareness Day (ISAD) on-line conference that starts on October 1 and runs through ISAD,  October 22,2012.

This is always one of the marquee conferences of the year, because of its unique format. Presenters submit papers or presentations that are available to be read and commented on for three weeks. There are live threaded discussions where you can post a comment or question to an author, where you will get an answer.

There is also a section called “The Prof Is In” where a team of noted professionals and researchers in the field of communication disorders are available for three weeks to answer questions. This is a great way for parents to ask questions from some of the top stuttering specialists in the country, as well as a great way for SLP students to learn.

Many papers are written by consumers as well, meaning that you get a smorgasbord of different perspectives on all different issues of stuttering.

You can find all of this years action, as well as all of the past year’s conferences in archives at The Stuttering Home Page. Do check it out, participate and read a variety of different papers.

Thanks to Judy Kuster for all the work she does to coordinate these annual conferences of the international stuttering community.

An interesting story came my way yesterday. Friends from the stuttering community passed this article around – “Did Michelle Obama Fake A Stutter?” to see what “real stutterers” think of someone who may have used stuttering to exude sincerity.

Stop for a minute and think about that. Why would someone giving a powerhouse political speech at the Democratic National Convention “purposefully stutter?” To add sincerity and impact to her speech? To win the hearts of her audience members? I don’t think so.

Michelle Obama doesn’t need to try and win over her audience. She already is a strong speaker, and knows how to connect with her audience.

This is just one more way to confuse people about stuttering. As we know, the average person has normal dis-fluent moments while speaking. Even presidents do!

If  Obama did have word repetitions, it wasn’t to purposely stutter so she could come off as more sincere or authentic or likeable. She had a few moments of imprecise speech like everyone does. She wasn’t using stuttering to win votes.

That’s just ridiculous!

You all know that I write about my experiences involving stuttering. I have wondered what will happen when the day comes when I don’t have anything more to say. Well, I am not wondering today.

Last week, I presented a training to a professional audience on public speaking and communication. The group consisted of speech therapists, occupational therapists and training coordinators who are all terrified of public speaking.

As an ice breaker, I asked everyone to introduce themselves and use one word or phrase to describe what public speaking means. Like expected, most of the responses were negative. We heard words like nervous, anxious, stressful, shaking, sweating, fear, and embarrassment. The last person said she didn’t want to stutter when speaking.

I felt my face flush when she said that. I had not yet disclosed my stuttering. She provided my cue. I reintroduced myself and said my word for public speaking was opportunity. I then added, “oh, by the way, I stutter, and I am OK with it. I hope you all are too.”

No one said anything, but I did notice a few glances toward the woman who had mentioned stuttering. I did not say this to embarrass her. It just seemed like the perfect time to disclose and advertise.

As soon as I did, I put it out of my mind and proceeded. Towards the end of the training, someone asked me why I had used the word opportunity.

I was the only person who had chosen a positive word to describe public speaking. I replied that it allows me to grow and push outside of my comfort zone, and that I don’t let stuttering hold me back.

This past week, I facilitated the second of two adult education graduations in one week. I had coordinated both events, arranged for speakers, and was the emcee at the first one. One of our district superintendents spoke at both affairs. He spoke on the same theme, changing the second speech up just slightly from the one he gave earlier.

After the ceremony, and before we proceeded to join the graduates for a reception, the administrators were chatting and I happened to be close by.

I overheard one assistant superintendent say to the one who had spoke, “hey, you did a nice job. You didn’t stutter as much as last week.” And she laughed. I glanced at them both – she was laughing, he was not.

I felt uncomfortable. It seemed like an insensitive remark to make, given that I had stuttered openly when I had emceed last week.

Maybe I am overly sensitive. What do you think? Would you have said anything?

How many of us have ability that we are not using? Sometimes we don’t allow our skills and talents to shine through because we think (or fear) that our stuttering will overshadow everything else.

I used that excuse myself for a long time. I was afraid people wouldn’t see me or my ability if I stuttered openly. Of course, I also used the excuse that it was safer.

When I stayed quiet, no one had the opportunity to react negatively. In an earlier post, I wrote about choosing to be anonymous. That protects us from negative social consequences, but it also often keeps us from growing.

Never in all the years that I was covert could I have imagined that I would have a job that requires regular public speaking. And that I would also volunteer for speaking challenges through my affiliation with Toastmasters.

I knew deep down that I had ability that I purposely was not using just because I stutter. Along with ability, I also had ambition. I wanted to be successful and do the things I knew I could and not let anything hold me back. I have a voice that I wanted heard.

Recently, I heard or read something about ability which really struck a chord and got me thinking about this. I do not know the source, but I hope it gets you thinking about your abilities and ambitions.

“Ability without ambition is like kindling wood without the spark.”

What do you think?

Yep, I obsess sometimes. I know I do. When I speak publicly and communicate very well, I almost never focus on how well I did if I also stuttered. Like many of us, I tend to focus on the one tiny little thing that I didn’t like instead of all the good things that did happen.

Take last night, for example. I was at a Toastmasters meeting and volunteered to facilitate the Table Topics section of the meeting. This is the part of Toastmasters meetings where we practice impromptu speaking.

I thought of some questions during break and proceeded to skillfully carry out this part of the meeting. I also had a couple of moments where I had an uncomfortable block. Where nothing came out for about 20 seconds and I also squeezed one eye shut at the moment of the block.

As I drove home from the meeting, that’s what I thought about. Not how great I did at filling the role at the last-minute, but what did the two visitors think of me when they saw that weird blocking behavior? I obsessed about whether I should have said anything to acknowledge that I had stuttered.

As people who stutter, we also seem to obsess a lot over the conversational use of the word stuttering when it does not apply to what we know as a speech disorder.

For example, recently on the popular TV show “American Idol,” a 16 year-old contestant sang a song called Stuttering. She has a beautiful voice and sang the hell out of the song.

The next day, the Facebook forums were full of comments from people who stutter who felt offended by the song. Many stated they didn’t like the song because it implied the wrong reasons why people stutter.

Often in the news, especially regarding sports, we will hear or read accounts of a team or player getting off to a “stuttering start.” I have heard people who stutter comment that they are offended by these casual uses of the term stuttering, as it implies negativity about stuttering.

I understand (to a degree) why I sometimes obsess about my own speech and focus more on when I have had uncomfortable stuttering moments and blocks. I always wish it hadn’t happened at that particular time.

But I don’t always understand the reactions the stuttering community has when the non-stuttering public uses “our” word for our speech in another context.

What do  you think?

Many of us in the stuttering community were happy to see stuttering realistically portrayed on the television show “What Would You Do?”  On the April 6, 2012 show, there was a segment about a teenage girl who stutters trying to simply order in a local ice cream shop.

Actors were hired to make fun of her, mimic and bully her while she was speaking. The premise was to see if ordinary, unsuspecting people would stand up and confront the bullies. You can see what happened here.

This was one of the most realistic portrayals of stuttering in the media I have ever seen. Why? Because the young girl actually stutters. She wasn’t acting. And the bullying she faced, along with rude remarks and general impatience, are faced by people who stutter every day.

It was refreshing to see ordinary people come to her defense, and confronting the people bullying the person who stutters.

My question today: how many friends of yours came up to you and said they saw the show and thought of you? Does that happen?

I had at least 5 people mention to me they had seen the show, and asked if I had. They said they thought of me while watching it.

Is it because I stutter that people I know automatically think of me when they see this stuff? Apparently yes!

At work yesterday, one woman said she thought of me when watching it Friday night. She asked if I  had seen it and had something like that (bullying) ever happened to me. Two other women said they had missed it. So we put on the video and all watched it together.

I asked them, lightheartedly, “do you guys always think of me when you see or hear something about stuttering?” They said, “YES.” I said, “Why?’ They said, “because you are so open about it.”

They then asked me if anything like that had ever happened to me. I shared the time a few years ago when a deli clerk made fun of me when I couldn’t say “ch-ch-ch-cheese.” The guy went on to say if I couldn’t say cheese, I’d have to take chicken wings.

My friends  were shocked and asked me how I had reacted. I said I felt humiliated and didn’t do anything – left as quickly as I could and was in tears by the time I left the store. They said I should have called the manager and complained. It’s easier said than done. This happened with 3 people standing in line behind me. No one said anything or came to my defense.

Anyway, does this ever happen to you? Friends see or read something about stuttering and they mention it to you? Or cut the article out of a magazine and give it to you? 🙂

The story about Shaq (Shaquille O’Neal – former US basketball player) coming out as a person who stutters has got a lot of attention on the blogs and social media.

On March 3, a video clip was released featuring Shaq discussing that he stutters for a Dove (soap) commercial. I didn’t like it! I don’t buy it! Shaq was a huge media presence in his basketball prime and he never spoke about stuttering when legions of kids adored him and looked up to him. He would have ramped up his role model status if he had “come out” when he was actively playing hoops!

My fellow blogger and mentor Daniele Rossi, of Stuttering Is Cool writes his reflection about another famous stutterer getting attention, even though he doesn’t stutter. Daniele and I appear to agree on this issue.

I think if famous people are going to be asked to promote stuttering awareness, then they should stutter. At least on one or two words. Or have at least one person who actually stutters be a spokesperson for something. Hey, maybe even a woman!

I posted my thoughts about this on one of the stuttering Facebook groups, and I got a lot of heat. People said I should give him a break – that it’s great that there is one more avenue for stuttering awareness.

Here’s what my comment was:

Sorry Shaq! I don’t buy it!  Ordinary people who stutter (and use Dove soap) can also be comfortable in our own skin!

Here are some of the responses:

Love this clip, any one that puts themselves forward to talk and advertise their own stuttering, as Americans call it, deserves applause in my eyes, whether they are celebs or ordinary folk.  In fact celebs can get criticised and people assume its for their own gains, which is often wrong. The way the media has spun it about being comfortable in his own skin is just advertising, that’s the way I look at it.

Pam- I think you are over thinking this. Remember it is after all an ad campaign. Remember he is being paid to use Dove products, of which there are many besides soap. Is anyone trashing Vice President Biden because he came out of the stuttering closet later in life, as did James Earl Jones? I for one think it’s great that he’s out of that closet. The youths out there love him and he is a wonderful role model, far better than Kobe Bryant, Charles Barkley or the other bad boys of basketball. This man is a gentle giant and I applaud him.

I’m thinking that you would like to see “regular” people cast in the limelight as people who stutter and “overcame” stuttering, correct?

 Not sure what the big hooplah is…yes, celebrities endorsing a product is always a bit cheesy, but I think that the ad raises stuttering awareness in a light-hearted and approachable way to a mass audience. I applaud him and I make no claims to know whether or not he uses Dove soap or truly stutters, and find myself truly concerned with neither. I suppose we could raid his shower in a soap detection effort and personal files for formal diagnosis documentation, but why? He’s a relatively positive public figure and he’s not only raising awareness, but also promoting positive self-image and self-acceptance. A bit kitschy? Maybe. But, effective, nonetheless.

I understand the frustration regarding predominantly male PWS role models who are mostly/completely recovered. It’s definitely a sore point–however, since there tend to be more males who stutter than females [to our current knowledge], I suppose I have come to just not fixate on that particular disparity in public portrayals of stuttering. And, yes, it would be desirable and healthy and refreshing to see someone stutter openly–onscreen, on camera, etc. Perhaps, one day we will arrive at that point. For now, I suppose that any progress toward giving stuttering a somewhat positive, vocal, national, viral platform is progress in my book.

I like the fact that he said he was comfortable in his skin, AND he still stutters. It’s Dove’s tag line, but I think it’s a great message for PWS – that we can be comfortable in our skin AND stutter. Being comfortable with our speech is part of being comfortable in our skin. This may be the first time he’s talked about it, and I think it’s a great thing.

The last comment reflects that Shaq says he is comfortable in his own skin and he still stutters. Wouldn’t it have been great if he had stuttered, just once, in this clip?

What do you think?

I have been involved with Toastmasters for almost six years. I love it! It has changed my life and I tell people that all the time, especially new members and those who may be interested in learning more about Toastmasters.

This year, I have been serving as an Area Governor, which means that I lend guidance and support to several clubs. I have to visit each club a couple of times a year and provide support and feedback as needed to help the members and the club grow.

I visited one of my clubs a few evenings ago and had a great experience. Whenever a Toastmaster leader visits a club, we are always asked to speak a few minutes. I noticed there were newer members and at least one guest. I chose to include in my introduction how much Toastmasters has helped me grow in confidence and courage, especially as a person who stutters.

To my amazement, two other people in the group also stutter. After I spoke, everyone else introduced themselves. One young man, a member for only a month, shared that he could relate with me. He said it was good to hear a Toastmaster leader talk about stuttering, as he also stutters.

And then, the guest at the meeting shared that he too stutters. He is from Copenhagen, Denmark and is here for a semester as an exchange student. He stuttered openly and shared that he too was happy to hear a Toastmaster leader openly acknowledge stuttering. He mentioned he had heard about Toastmasters through the McGuire (speech therapy) program he had taken in Denmark.

After the meeting, this young man said he felt comfortable and planned to join Toastmasters and then transfer his membership when he returned home to Denmark.

This made a great impact on me that night. I wondered if I had not shared about my stuttering in my introduction, would these two young men have shared? Maybe, maybe not. They might have felt no one could understand and might have felt they needed to keep it hidden.

I felt inspired that my choice to share personal information about my stuttering might have inspired those two young men to feel comfortable enough to disclose.

And what are the odds that 3 people who stutter would end up at the same Toastmasters meeting, totally unaware of the coincidence? Something tells me we were supposed to be there that evening to encourage and inspire each other!

What do you think?

Episode 4 of this occasional series with men who stutter features my good friend Joseph Diaz, who hails from Dallas, Texas. Joseph and I met at my first NSA conference in 2006, which was in Long Beach, CA. We have been fast friends since.

Joseph is a long time member of the National Stuttering Association (NSA). He has held many leadership positions with the NSA, including being a long time board member.

Joesph started stuttering rather late. His stuttering didn’t make an appearance until he was a junior in high school.

Joseph shares his long journey with stuttering. He talks about the times when stuttering consumed his life, avoidance behaviors and negative self-talk. He also talks about his “rock bottom” and how he turned the corner.

Joseph honestly shares about what it was like socializing, making friends and dating. We also talk about acceptance, and how that conscious decision to accept himself as a person who stutters shaped his life.

Joseph also shares his career path, and his very active involvement with Toastmasters.

We hope you listen in! Feel free to leave comments or questions for Joseph, or just thank him for sharing and doing such a good job!

Music used in this episode is credited to ccMixter.

A friend and I were at a tavern over the weekend. We were meeting in person for the first time, so I chose a place that I have been to before and is close to where he is living temporarily.

We had originally planned to meet at a coffee shop, but we changed up because it was so COLD the day we met and it was easier for my friend to just cross the street.

A tavern meant we could grab a beer together instead of just coffee.

When our waitress came over to take our orders, I stuttered on what I wanted, and she filled in the word for me. No biggie.

My friend blocked and stuttered, and she proceeded to finish the word for him as well. When they were done speaking, I piped up, “Hey,just want you to know, we both stutter, so you may hear a bit of that while we are here today.”

She responded back quickly, “Oh, so what would you prefer? Should I finish the words for you or would you rather I just patiently listen?”

I said I prefer that she be patient and allow me to say my own words, and then I said, “but I can’t speak for my friend. (Looking at him, I asked him) what do you prefer?”

He said, “the same thing, please patiently listen for me to finish my own words.”

I was so impressed with this little 45 second exchange. This waitress showed a respect, tolerance and understanding for difference that we often don’t see.

By bringing it out in the open the way I did (I hope I didn’t embarrass my friend!) we clearly advertised and educated.

And to me anyway, we got the by-product of a greater sense of permission to stutter away. Both of us seemed to stutter more freely for the remainder of our visit there. (Or maybe it was the alcohol. I’m not telling!)

What do you think?

Episode 79 features Jacquelyn Revere, 25, who hails from Los Angeles, CA. She is presently in NYC attending the The New School for Drama, and is in her last semester. She is getting her Master’s degree in Acting.

Jacquelyn has loved drama and acting from a young age. She stopped acting in high school though, thinking it wasn’t realistic. She switched her interest to entertainment law, where she interned with Johnnie Cochran (yes, O.J. Simpson’s lawyer!)

Her internship taught her that she did not want to be a lawyer! She changed her major to theater in her junior year of college, giving in to her heart’s passion.

Jacquelyn and I met one night through the Stutter Social Google hangout, then became Facebook friends, which led to this chat!

Jacquelyn discusses her speech therapy experiences – school based, which was not helpful and her experience with intensive therapy at the Hollins Institute.

Jacquelyn now works with a private therapist, Lee Caggiano, who is also the Director and co-founder of FRIENDS. Jacquelyn works on the mental aspects of stuttering, particularly shame.

I had no idea that Jacquelyn works with Lee, as I have been involved with FRIENDS and edit their newsletter, since 2008. What a small world! Jacquelyn found Lee through Taro Alexander, of  Our Time, of which I am also familiar!

Jacquelyn discusses challenges and opportunities, advertising, stress, stuttering while acting and pity parties!

This was a great conversation with a confident, courageous young woman whom we will see on stage one day. Feel free to comment or ask questions. Feedback is a gift.

Music used in this episode is credited to ccMixter.


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