Make Room For The Stuttering

Posts Tagged ‘feelings about stuttering

“Are you sure?”

I was covering the phones this past Friday afternoon in my office for colleagues who were in a meeting. We answer the phones by saying good morning or afternoon, and state the name of our school building.

One call I answered I stuttered pretty good on all three words of our building name. The caller laughed and then said, “Are you sure?” and laughed again. I so wanted to say something to her, but didn’t.

She went on to introduce herself as being from the department of social services. I wondered if she laughs at clients who might sound different than she does on the phone.

I wasn’t in the mood to hear a sarcastic “are you sure?” that day. I politely and professionally helped her and then cursed at myself when I got off the call.

Would you have said anything to her about laughing?

I had a situation this week that brought back all the bad memories of reading aloud in school. Oh, how I hated to do that. Like many who stutter, I attempted all kinds of strategies to get out of reading aloud, as I always stutter when I can’t switch words and feel the pressure of others listening and watching.

I remember counting ahead to when it would be my turn and frantically trying to read the section and rehearse it in my head before my turn came. Or when there was only two people ahead of me, I would suddenly have to go to the bathroom or get sick and ask to see the school nurse.

I still have a piece of pencil lead in my hand from when I stabbed myself with a pencil so that I could go to the nurse’s office. Just to get out of reading aloud in class and feeling humiliated.

I sit on the Board of a non-profit literacy organization. We had our board meeting this week. The Director wants to introduce sharing the profiles of some of the individuals we serve at every meeting.

She had a list of about six paragraphs, each describing the profile of an individual on the waiting list to get literacy tutoring services. She thought we should share the wealth and each of us read one of the profiles aloud.

My mind went right to panic mode. My first instinct was to somehow figure out a way to opt out. I did not want to stutter in front of my fellow board members. I was new, so several of them did not know that I stutter. I didn’t want them to find out about my stuttering when I’m at my best with it.

After a quick moment of pondering how I would explain that I didn’t want to read aloud – sore throat, laryngitis – I realized that it would be worse for me to opt out. I just needed to do it like everyone else and be as smooth and confident as possible.

So, that’s what I did. When it was my turn, I read my paragraph and stuttered on about every other word. During the stuttering moments, I felt my face flush and felt embarrassed. But it was over quickly and we moved on to the next item of business on the agenda.

No one reacted. I didn’t sink into the floor or get hit by lightening. The worst that happened is that now everyone there knows I stutter. It’s out there now, so I won’t have to worry about it anymore.

How do you react when something like this happens?

I tend to stutter the same way on the same words all the time. Even when I try to focus and use a technique or slow down, there are just certain words that come out the same way, every time.

Communication is one of those words. I don’t stutter on the first “c” in the word. No, I block and stutter on the second “c” sound – right in the middle of the word. It usually takes the form of three or four repetitions on the “ca” sound. Communi-ca-ca-ca-ca-tion. I am very aware of when I am in the stuttering moment with this word, as it’s a word I have to say a lot in the presentations I deliver to high school students.

I talk to them about career planning and the essential skills needed to be college and career ready, with good communication being one of those essential skills.

I am not ashamed that I stutter and I am of the belief that good communication is so much more than perfect fluency. But for some reason, when I block and stutter on key words, the same way, every time, I feel quite vulnerable and exposed. Perhaps it’s because this mostly happens when I am speaking to young people.

It’s important to me to be a good role model when I am speaking to people, especially young people. I maintain eye contact when I’m blocking and when I complete the word, I usually smile and just keep moving forward. I like to think that communicating in my own style, with confidence, is good role modeling for young people.

I want them to see that moving through vulnerability can yield good results.

A good friend of mine suggested I do a little dance when I say “communi-ca-ca-ca-ca-tion.” To the beat of the “ca-ca-ca-ca.” I think it would be a good ice breaker when I am giving a presentation on stuttering, but maybe not so much when I am talking career preparation to high school students. They might think I’m nuts and call the security officer.

What about you? Do you have words that you stutter the same way every time? How does it make you feel?

Someone wrote this on one of the stuttering email groups I participate in. It really resonated with me.

“The pain of stuttering is not in speech interruptions as that just takes an extra moment… And the speaker sometimes doesn’t even know it’s happening.  What’s painful is feeling different and feeling that the difference is unacceptable to you and to the world….”

How many of us can relate to this? How many of us have had a stuttering moment happen and we felt so embarrassed that we felt different? That stuttering was unacceptable?

I first experienced the pain of stuttering as a young child. I don’t remember what stuttering was really like for me at 5 years old, but I do remember the pain I felt when it seemed that my father was ashamed of me. He would yell at me when I stuttered and make me feel as though I was doing something bad.

As an adult, I stutter pretty openly and confidently but sometimes I still experience the pain and shame of stuttering. And I believe some of that rises up from those early painful memories.

I feel the pain of stuttering when I get stuck and someone laughs at me. Or looks at me quizzically, asking if I’ve forgotten my name or where I work. I am sure everyone who stutters has experienced that and probably more than once.

I feel the pain of stuttering when I feel I’m being judged by someone in authority. That makes me feel inadequate, thankfully only momentarily, but inadequate nonetheless.

I feel the pain of stuttering when I explain myself to put a listener at ease. Sometimes it’s painful because there’s times I just don’t feel like explaining.

I feel the pain of stuttering when I want to chime in with a joke and I stutter on the punchline and people give me “the look.”

There has been more and more awareness of stuttering in the media, especially over the last year. But I’m not convinced that the world is ready for stuttering yet. It’s still not acceptable.

What do you think?

 

There’s been a couple of good pieces by women recently related to being honest with our speech and our stuttering. I posted Erin Schick’s brilliant poem, Honest Speech, last month.

And today, Katherine Preston has a great piece, Speaking Honestly, published in The Huffington Post.

Both authors are women who stutter and speak to the importance of being authentic with our stuttering. Erin talks about speaking fluently when she stutters and Katherine talks about liking being remembered for her stuttering.

Both of these pieces resonate with me, as I did a speech on Being Memorable at the National Stuttering Association annual conference in D.C. in July and again for my 2014 ISAD contribution.

Stuttering is a part of me. For years, I tried to hide it, push it away, deny it. I was ashamed of being associated with stuttering, for I had been conditioned to believe that stuttering was bad and that I deserved the sometimes negative reactions I received from society.

But something changed. I stopped trying to hide it, I began stuttering openly and honestly, I talked about stuttering and began to accept that some people were going to associate me with stuttering. And, THAT’S OK. It’s a part of me. It’s who I am. It’s good to be remembered in today’s world. I rather like having people remember my name.

Just yesterday I was at a school doing some presentations and someone came up to me and said, “I remember you. I took an excellent bullying class from you several years ago and you talked about stuttering. And you came to our school and did a talk on stuttering. It’s so good to see you again. You’re a great speaker.”

That made me feel good, and proud and happy that she remembered me.

Being honest with our speech and with ourselves is so much easier than hiding and pretending to be someone we’re not. I’m sure happy I just let my stuttering hang out these days.

 

No words needed for this. Utterly powerful. Thank you, Erin.

PamEpisode 130 features Debbie Rasaki, who hails from London, England, UK. Debbie works as a nursery nurse in a day care setting and aspires to be a Social Worker.

Listen in as we discuss how stammering (as it is known in the UK) made Debbie a quiet person who lacked courage. She feels her “real self” is bubbly and animated, but her stammering caused her to hide the real Debbie.

Things have changed dramatically for Debbie since July of this year, when she participated in The McGuire Program and was featured in a TV documentary called “Stammer School.”

Debbie shares her experiences with both – giving us a good overview of how she benefited from participating in the intensive speech management program and opening up from her private self for the documentary.

This was a great conversation, full of honesty and insight and a reminder to dream big. Feel free to leave comments or ask questions in the comment section, for feedback is a gift.

The podcast safe music clip used in today’s episode is credited to ccMixter.

 

 

mirrorWhat do you see when you look in the mirror? Do you see how great you are, or do you look for the things that need to be fixed?

Like many people, I often notice what’s wrong instead of what’s right. I lament over a new zit or a sudden sprung hair. I check to be sure my hair looks OK and look to see if I messed up my make up.

Rarely do I just look in the mirror and smile and say to myself, “you look great.” I have long struggled with thoughts that I’m not good enough and that often translates over to what I see when I look in the mirror.

I heard a powerful keynote speaker last month who reminded us that we need to like what we see when we look into that mirror. We need to tell ourselves that we like what we see and start our day off on a positive note.

That resonated with me, especially as I was working on a workshop about positive affirmations that friend Annie and I would present at a stuttering conference in early October.

Annie and I worked on our workshop for 6 weeks, trying out different affirmations that we would encourage people to use when looking in a mirror, both generally and about their stuttering as well. We caught ourselves saying things to ourselves and each other that were not affirming and found out how loud our inner critic’s voice can really be.

We did our mirror workshop on Saturday at the NSA regional conference in Anaheim. We were both a little nervous, worried that people wouldn’t get “into it” and that we were not well prepared enough.

We were prepared enough and people did get into it. We handed out small mirrors and asked people to look deep into their eyes while we took turns gently reading positive affirmations. We then invited people to come up and sit in front of a large mirror and say something aloud, affirming their self and their stuttering. Several people took the risk and we then shared out at the end how all of this felt.

It was a powerful workshop where we were present with each other. We ended by sharing this with the group, which everyone read aloud together.

I AM STRONG

I AM KIND

I AM BEAUTIFUL

I AM SMART

I AM IMPORTANT

I AM FEARLESS

I AM AMAZING

This is the documentary that appeared in the UK about two weeks ago, featuring several people who participate in the 4 day McGuire program, an intensive stuttering management program.

All of the participants bare their emotions for us during the documentary, so we get a real glimpse as to how complex stuttering really is.

Thank you to Maria McGrath for sending me the YouTube link, so those of us outside the UK could watch the film, which is great.

https://www.youtube.com/watch?v=gEUi6nYwVQ0

What do you think of this? Being around other people who stutter is like seeing a reflection of our self. We see ourselves in other people who stutter.

Maybe when you are around other people who stutter, you think to yourself, “oh, that’s how I sound.” Maybe you’re OK with that. Maybe you are not.

Maybe it makes us feel vulnerable when we’re around other people who stutter.

Other people may remind of us ourselves, both the parts we love and the parts we don’t love quite as much.

I’d love to hear your thoughts on this.

 

 

How many times has this happened to you? You’re in a conversation with someone, either someone you know well or someone unfamiliar. You’re going along fine with what you are saying and then it hits – a big block.

You get stuck and nothing comes out. You feel helpless and the moment feels like an hour. Your mouth is open and nothing is happening. Or sound is coming out but not the word.

And then your listener tries to help and finishes the word or sentence for you. Maybe they even got it right.

Or maybe they get it wrong, and say something not even remotely close to what you were actually going to say.

How does this make you feel? What do you do?

When this has happened to me, sometimes I feel angry. Angry that the block has happened in the first place and that someone has seen what I look like when I get stuck. I imagine it looks awful, but I’m sure in reality it doesn’t.

I also might feel angry if the listener has finished my word and they guessed wrong. I do one of two things: finish what I was going to say anyway and move on, or move on and pretend like nothing happened.

I don’t like to do that – pretend nothing happened, because something did. I got stuck in a block and someone reacted to it.

I wish I had the guts to acknowledge my feelings when this happens but I often don’t. I don’t like to draw more attention to my stuttering.

What about you?

I wrote a post on Loss of Control five years ago! And it still rings true today. I want to share parts of that post in today’s blog post.

Probably one of the most helpless feelings a person can have is that feeling you get when you lose control when speaking. You probably know what I mean.

My stomach feels like its going to bottom out, my chest gets tight, and my heart starts to pound so hard it feels like everyone can hear it. And my face heats up, I feel a lump in my throat and then my eyes start to well up. If the feeling lasts longer than a few seconds, my eyes spill over.

I feel loss of control when I get embarrassed, because these reactions happen automatically and involuntarily. I also feel loss of control when I get angry, or sad. I always felt like I should be able to control my reactions to feelings. Almost all of the same physical reactions occur.

I used to feel I had some control over my stuttering. Fairly early, I began to know which words or sounds I might stutter on, and concentrated on switching words or doing the avoidance thing. That stopped working for me long ago.

I started feeling more in control when I dropped most of the covert stuttering and just let natural stuttering out. Since not fighting so hard to not stutter, I have felt pretty controlled with my easy, relaxed repetitions.

But sometimes my speech is messy. I can’t predict stuttering moments like I used to be able to, and I feel more tension and lack of control.

I often feel helpless, especially when around someone new or who is impatient.

Even though I tell myself I don’t care what others think, I still sometimes feel the sting of judgment and fear rejection.

What do you think? Do you feel out of control when you get really stuck in a stuttering moment? Does this feeling ever go away?

No words needed for this one – watch this truly inspiring video of a dad talking about what he learned at the recent National Stuttering Association 2014 conference.

https://www.youtube.com/watch?v=g2PJ5hlRKPQ&feature=youtu.be

PamEpisode 122 features Yousra Ouchen, a 25 year old who hails from Casablanca, Morocco. Yousra works as a financial consultant in an accounting company. She enjoys playing the guitar, drawing and writing.

Yousra is a founder of the new Moroccan Association of Stammering, which is on its way to becoming official. The association currently has 15 members.

Listen in as Yousra discusses what it’s been like getting the association off the ground and the work it involves.

We also discuss the perception of stuttering in Morocco, and how people who stutter are seen as not having confidence. Yousra also shares her speech therapy experiences, and how talking about stuttering helps her to feel better about it.

This was a great conversation with a strong young woman who is determined to help people who stutter in her country. Feel free to leave comments or questions for Yousra. The podcast safe music used in this episode is credited to ccMixter.

 

One of the best workshops I attended at the recent NSA conference was called Creative Movement and Storytelling for People Who Stutter. The workshop gave people a chance to see how well their bodies can work, while also helping them express their stories.

It gave people the opportunity to express themselves in different ways than just our verbal communication.

The session was facilitated by Barry Yeoman, an award-winning journalist who has studied dance and story telling.

The workshop included ice-breaking exercises, improvisations and simple movements. By the end, we all worked together to create a more complex piece that we all built together as a group.

I had marked this workshop as one I really wanted to attend, but also told a friend I was nervous about it, because I feel I have two left feet and I am not very good at creative, expressive movement. It takes me way out of my comfort zone to do things like this.

In the end, I was very glad I attended. It was a beautiful, simple, fun way to let go and be creative and not have to worry at all about our speech.

Below is a brief clip of what some of the free expression looked like.

 

 


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