Make Room For The Stuttering

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PamEpisode 216 is all inclusive. I bring two guests on air to discuss the importance of challenging the assumption that stammering is inferior to fluent speech. I am joined by Sam Simpson, a Speech and Language Therapist and Patrick Campbell, a pediatric physician. Both Sam and Patrick hail from the UK.

Sam and Patrick collaborated with Chris Constantino to author the book, Stammering Pride and Prejudice. The book delves into how we examine and accept differences that are often conditioned by society.

Listen in as we discuss navigating societal norms, rethinking differences as just a construct of human variation of differences, and understanding the social model vs medical model of disability.

Sam wrote an article about the social model of stammering in 1999, but the “soil wasn’t ready” at that time. Patrick shares a point that really resonated with me about agency. “This is my voice, this is the way I speak, and I’m allowed to speak like this.”

This was such an important conversation and I am grateful for the knowledge and insights shared by both Sam and Patrick.

Anyone in the USA interested in buying the book can visit StutteringTherapyResources.

 

Episode 215 features Helen Carpenter, who does not stutter, who hails from London, England. Helen has a varied work history, with many of her roles relating to personal identity. She worked for the British Stammering Association and came away with an amazing perspective about stammering. She learned things about people and stammering that she didn’t realize she needed to know.

Helen and I serve together at 50 Million Voices, with the aim to increase global awareness of stammering inclusiveness in workplaces.

Listen in as we talk about the core need we humans have for connection, which transcends stammering or fluency. Helen shares that she learned so much simply by being in “sacred spaces,” where conversations were had by people who stammer.

Helen describes her opportunities to learn from people who stammer as “privileged.” I feel privileged to know Helen and to count her as a friend.

PamToday I bring another short episode, solo, talking about identifying feelings and the grief that many of us feel, but don’t rightly recognize as grief.

Three weeks in now to more enforced lock downs and self isolation for the better good of our communities may have many of us reeling and not knowing how to process some or much of this.

This Harvard Business Review article on grief made a lot of sense to me. Hopefully it will be helpful to you as well.

Stay tuned for future episodes. I have several great guests on deck. Listening to others who stutter feels really important to me now. How about you?

 

Today I bring a short episode that differs from my usual format. There is no guest joining me today. I’d like to share some thoughts and feelings that I have that I’m sure many others do.

It can be difficult to verbalize uncomfortable feelings, as we may fear that we may be judged or misunderstood. I imagine that there are a number of universal feelings and thoughts right now, so I just wanted to do my part and honestly talk about that and acknowledge some feelings.

I’m looking forward to offering a new episode with a new guest soon.

Twice in the last month, I heard from people about the importance of “being seen.” Both happened to be women.

This was shared on LinkedIn:

Today I had the pleasure to call into a lecture with Pamela Mertz, the Co-Chair of Special Projects at the National Stuttering Association. She discussed stuttering in the workplace, discrimination, the burden of concealment, and strengths wasted. More than anything, she made me feel seen. As a member of the 1% of the adult population living with a speech impediment, I typically don’t receive the kind of guidance I crave. In hearing the discriminatory experiences of Mertz, many of which I share, I felt understood and that I was part of a group larger than myself. I feel and was encouraged to feel proud to be a communicator and a journalist even on my poor speech days and even more grateful for the allies and supporters I have met along the way!

This was so cool to see and read, that someone I did not know was impacted by the stories I shared.

Not two weeks later, a friend sent me the draft of a poem she had written, that was very personal and open and raw. I loved reading her poem and felt honored she wanted to share it with me. She mentioned that it was important for her to “feel seen.”

It’s very powerful for me to hear how important it is for people who stutter to feel seen, heard and understood. I think it’s important for us to rally together and be open and vulnerable whenever we can so that we help the world better understand stuttering.

Speak. Be heard. Feel seen.

Today I am happy to host a guest blog from Oli Cheadle, a speech and language therapist based in the UK. I had the pleasure of sharing a conversation with Oli a number of years ago on my podcast for men who stutter, “He Stutters: She Asks Him.”

My name is Oli. I am a speech and language therapist and also a person who stutters. I am based in the UK. I have a mild stutter and can block in some specific situations, e.g. making telephone calls to unfamiliar people, asking directions from strangers.

Pam has very kindly given me the opportunity to write about a new intensive program for stuttering called Modifying Phonation Intervals 2 (MPI-2) and to feed back on my own experiences of going through the program.

What is the MPI-2?
MPI-2 was developed by Dr Roger Ingham and colleagues at the University of California and is based on research which shows that when speakers reduce the number of short phonatory intervals in their speech by 50% there is a significant reduction in stuttering. The MPI-
2 program uses an iOS app that gives biofeedback to help you learn a new speech technique that results in very low levels of stuttering.

The program then guides the speaker through progressively more challenging speaking tasks, requiring them consistently use this new technique at every step. MPI-2 is a very fluency-focused therapy and, as a result, it is obviously not a good a fit for everyone.

I have tried to give an idea of the MPI-2 iOS app, what short phonatory intervals are, and the speech technique involved in the below video.

A study by Ingham et al. (2015) found that most participants who undergo this intensive fluency shaping program achieve very low levels of stuttering and are able to maintain this long-term (73% of participants). It is designed for adults and older adolescents approximately 15 years and up.

 Was it helpful for my speech?

Definitely. Having completed the program, which took me about 7 months, I am finding that I am able to speak without stuttering in situations where I previously stuttered often, for example stopping a stranger in the street and asking directions or making telephone calls to unfamiliar people. It has taken a lot of work to complete the program and I have found it really worthwhile.

 

I had such a wonderful experience this week, presenting to an organization and people I did not know about stuttering at work.

This has been a vision of mine for quite a few years now. If people who stutter are going to be truly supported and included in all aspects of life, we have to educate the people in our worlds that do not stutter.

People who stutter want to be successful in school and at work. So schools, universities and workplaces need to hear stuttering, normalize it and get over the fears associated with hiring people who stutter.

It was a very surreal experience for me – to have traveled down to Northern Virginia to meet with people interested in “hidden disabilities” and stutter openly, without fear or anxiety. People at this workplace truly want to be inclusive of everyone who brings difference and new perspectives. I was welcomed with open arms, and spoke to an audience of about 50, 20 or so in-person and the rest calling in from other company sites via Skype.

The main theme of my presentation is what is gained through being completely open and vulnerable about something that is often widely misunderstood and stigmatized. I spoke of the strengths people who stutter have innately, because of our lived experience with stuttering. We bring grit, perseverance, resilience, patience and empathy to work – all of which are valuable competencies any employer wants.

The best way to make change and help people understand stuttering is so simple: TALK ABOUT IT. Make it less of a mystery, normalize it, frame what is often perceived as a weakness as a great strength.

In so doing, we will help workplaces become more inclusive for today’s workers who stutter and for the young people behind us, who will enter the workforce. Hopefully, my efforts and those of other adults who are not afraid to be vulnerable, will help lessen the stigma and burden of trying to hide stuttering in the workplace.

The company that I presented at recorded my presentation. I am looking forward to seeing that, and more importantly, looking forward to getting more workplaces to see the value of talking about stuttering at work.

It’s freeing and hopeful.

I have been having a really hard time over the last 6 months. Some of you know that I lost my job on June 30, 2019 and have been unsuccessful in finding new employment. I am so discouraged and fearful, as I have a chronic illness that I’ve been trying to manage. It’s scary not having income and feeling like I have no control of what’s happening.

But I am heartened when I think of a couple of bright spots to look forward to. I am heading to Virginia a week from now to conduct a training and awareness session on stuttering in the workplace.

And I have been invited to speak at a conference of the French Stuttering Association in March, in Paris. That’s right, Paris. I can’t hardly believe it, that in the midst of financial woes, I am actually going to Paris. I am going to spend a week there, and hang out with some locals who can help me make the most of being a tourist. I have been asked to speak on my advocacy efforts for women who stutter. It will be the first such time where I’ll be speaking to a non-English speaking audience and therefore working with a translator.

When things are especially dim, it’s so important to remember the bright spots. They’re there, we just have to find them and hang on.

I am looking forward to posting about my experience and meeting up with online friends that I have not yet met in person.

Stay tuned!

Episode 212 features Michele Delo, who hails from Buffalo, New York. Michele recently graduated with a degree in Dietetics and Nutrition and is preparing for her exam to be a registered dietitian. One of her goals is to do clinical nutrition to perhaps include diabetes education.

Michele is a a co-chapter leader for the National Stuttering Association in Buffalo. She shares that taking on this role has really helped her with leadership and public speaking skills.

Listen in as we chat about advertising and how she had been a covert stutterer. Michele describes using a higher pitch when speaking, which helps her be more fluent and also more peppy and chipper when she is interacting with patients. I shared how altering pitch has also helped me, and is a skill I learned in Toastmasters. People who stutter who have chosen acting as a career also have noted success when using pitch and vocal variety to help be more fluent.

This was a great conversation with a young woman who owns her uniqueness and encourages other women to do the same.

The musical clip used today is credited to ccMixter.

Editors note: Again I had some trouble removing background static and feedback. Sue me! I’m still an amateur. 🙂

As some of you know, I lost my job at the end of June 2019. I have so far not found another paid position. I’ve been out of the workplace for more than 6 months now. It’s been very stressful and disheartening and I often find myself with heightened worry and anxiety, which triggers my neuropathy. I become more inflamed and then have physical pain to deal with.

I feel like I have fell down a rabbit hole when everything spirals at once.

I have also noticed changes in my speech and stuttering. When I was at work and interacting face to face with colleagues and students all the time, my stuttering was fairly consistent – mild to moderate most of the time.

Now, because I am home most of the time and can go days without speaking with anyone, I notice that when I do speak, I stutter much more often and more pronounced. I think it’s because I am simply not exercising my speaking chops enough.

In fact, I went out with a sister a few weeks ago and we went to bingo, (which I love by the way) and she complained that I was talking a mile a minute and causing her to not be able to concentrate. I found that very telling – since it’s not me at all. But I guess when you go days or weeks with out talking with anyone, you try to catch up.

I think I need to make a more concerted effort to talk to someone, anyone, at least every day. I hope whoever the lucky one is that they don’t tell me to shut up!

Episode 211 features Jazmynn Davis, who hails from Maumelle, Arkansas. Jazmynn is a licensed dental assistant, a Regional Chapter Coordinator with the National Stuttering Association and is actively involved in the world of beauty pageantry.

Listen in as Jazmynn talks about interacting with patients and peers and how she handles her stuttering. She also shares how she has made stuttering awareness her platform when competing in beauty pageants. Jazmynn gives us a primer on pageant protocol and explains how it’s not just beauty but all aspects of a woman’s life. We talk about how well prepared for public speaking one becomes after participating in on stage interviews that are timed and judged.

Jazmynn has also used this platform to mentor and coach girls and young women interested in competing in the pageant world.

Music used in today’s episode is credited to ccMixter. Editors note: There are a few areas of background static that I was unable to edit out. Sorry!

I am not sure what has made me think of this, but I’ve noticed that I’ve been paying attention to this more and more, and only lately. I’ve begun to notice that sometimes when I am thinking what I am getting ready to say, or “thinking my thoughts,” what I think and how I say it, don’t always match.

I think a fluent thought and intend to say a certain word, but sometimes that word or thought changes mid-stream. It’s almost like somehow the word goes through some type of “parsing system” before it’s allowed out as a verbalization, and if my brain thinks the word might come out stuttered, something different comes out.

This is certainly not a new phenomena for me. As a seasoned stutterer who was extremely covert, I was always very conscious of word switching. I was afraid of stuttering and being judged or laughed at, or both. So I spent a lot of time anticipating what I might say that might come out stuttered, and I would intentionally switch the word. Or more than word. And as I’ve shared in different forums, the switched words didn’t always make sense in the context of what I was trying to express. But oddly, I was OK with sounding scattered or nonsensical, as long as it came out fluent.

What I remember most about word switching then as a covert stutterer was the reasoned choice I was making. I chose words that I believed I would say fluently, to save myself from embarrassment or the pain of being judged.

What is happening now, from time to time, is that I notice that a word or group of words comes out differently than how I thought it. I’ve never been aware of this quite happening before. I am not rehearsing before I speak so as to not stutter, but instead, almost reflexively, the word(s) are not the same as I thought them.

I am always fluent in my head. I am not always fluent when I speak. These days, I am quite fine with that. I’ve grown to accept and even respect that I talk differently than the norm sometimes. It doesn’t bother me.

But maybe it does, on a deeper, unconscious level. I have been very aware of this from time to time. Somewhere in the milliseconds it takes for a thought to become a spoken word, something changes. I can almost visualize my brain having the word “pass through” a system that deems it OK for the word to come out.

It kind of reminds me of the game that used to be on “The Price Is Right,” an old game show from the past. A chip or marble is let loose and what you think might just be a straight line trajectory actually veers off and goes a slightly different way, and comes out at the bottom. That’s what I have been sort of visualizing lately when I notice that my spoken words do not match my “thought words.” The new word that lands on the bottom gets higher points than the original stuttered word might have.

I wonder why this is happening now, 10+ years since I’ve actively stopped trying to not stutter. There must be a lot of chaos going on upstairs, given that I am seeing this quite clearly and the words don’t always match.

I am not worried about this at all – just being mindful that this is happening.

Has anyone else experienced this?

Episode 210 features Dana Koprowski, who hails from the Chicago suburbs. Dana is a newly promoted Director of a large child care center. She keeps busy as a Family Chapter Leader for the National Stuttering Association and has also taken on the coordinator role of a new NSA mentoring program called Generations.

Dana was a guest last summer, soon after returning from her first NSA conference. In episode 182, Dana talks about having finally found her tribe. I was interested in chatting again with Dana because I have witnessed the dramatic changes she has experienced in such a short time. She is a completely different person from the one I met not quite two years ago. She has also shared her story on the NSA Career Success profiles, something the “old Dana” would never have done.

Listen in as we chat about all the “firsts” Dana has celebrated and how she is proud of herself in becoming the person she believes she is meant to be. Dana feels she has found true purpose in combining her love of children with promoting acceptance. “It’s OK to feel what you feel,” Dana says and describes how meaningful it has been to connect young people with mentors that will help them feel OK and feel hopeful for the future.

This was such an important conversation that truly illustrates the power of mentoring. 

Music used in today’s episode is credited to ccMixter.

Over the last few days, I have been thinking and talking a lot about stuttering. That’s not all I do – Eat, Sleep and Dream stuttering.

I need to acknowledge this which is true. I have been home everyday since losing my full time professional job in June. So, it’s been more than 5 months that I haven’t had any kind of typical day; no coworkers to catch up with on Monday; no students to give the look and ask to remove their hats.

Yep, suffice it to say, I have been isolated and find myself staying in 3-4 days a week. Not going out to drive to work, making errands on the way, and no “happy feet” dance on Fridays, when all of our feet were trying to leave a few minutes before our regular time, when the bells would ring 4:30 pm and we’re on the run to our cars.

Now, with talking to only a few people for a few minutes a week, I haven’t been able to have conversations often. So, when I do, I’m struggling a little more because I just haven’t talked to enough people today.

So how does all of this pertain to the title, “The Essence of Stuttering.” I’m titling this piece such because I have thought about what the true essence of stuttering really is. For me, the essence of stuttering is “what’s left unsaid.” We, me, people who stutter feel emotional and physical signs of struggle – our faces flush, our chest tightens, we squeeze one or both eyes shut while talking/stuttering because it seems that might loosen the words to fly out.

In addition to those physical feelings, we have the emotions: shame, guilt, fear, helplessness, self loathing.

I spoke with someone last week in a video chat and we were discussing anything positive that has come out of stuttering. We wanted to have a short list of attributes and assets that validate the reasons why companies should hire people who stutter.

We shifted so far from that conversation, that it became something else. We acknowledged that having dealt with stuttering and false assumptions for so long, some may think that since we have stuttering superpowers, we should always get the job or promotion.

Nah! What my friend and I came up with is this:

People who stutter have many strong workplace aptitudes, such as strong listening skills, the ability to be empathetic, always over prepared. But the thing with this is – there are thousands of fluent people out there with those same skills. Having those attributes is great for any employee hoping to be the next hire. But we who stutter want the world to see that aside from stuttering, we have all of those other traits too. The difference is with the “false assumption cloud” hanging so close, it clouds our ability to see the skills the candidates have, both the persons who stutters and those who don’t.

If an employer can see past the stuttering and look for the strengths that person brings (whether they are the stutterer or the fluent) then we will have captured the “essence of stuttering.”

Not long after this conversation and encounter, I happened to get an email from good friend Barry, who penned a stellar article about stuttering, published in The Baffler. Read his article here. His article also sums up the true essence of stuttering.

Episode 209 features Phyllis Edwards who hails from New Zealand. Phyllis shares that she is 66 years young and has finally felt empowered to tell her story. I “met” Phyllis through her amazing contribution on the 2019 ISAD online conference. Phyllis has a supportive husband and children and works in an early childhood center, with 2-5 year old children.

Phyllis only discovered the stammering community about 18 months ago when she searched the internet about stammering and then found herself attending two conferences in different parts of the world, the BSA conference in 2018 in Cardiff, Wales and the World Congress in Iceland this past June 2019. To say that magic has happened in Phyllis’s life is really an understatement.

Listen in to this conversation, so full of emotion, from being a bit choked up to laughing quite freely, about a topic that Phyllis never dreamed she’d be so open about. Phyllis shares how her husband and children helped to make conference attendance a reality.

Part of Phyllis’s story that we as women who stutter can probably all relate to is that we have something in us – a seed – that makes us stronger, and it takes each individual to find that exact right time to be open to and embrace that we are worthy, stammering and all.

Phyllis believes it is time to pay it forward, and talks about how it “takes a village” to own our stammering.

I am glad I am a small part of Phyllis’s village.


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© Pamela A Mertz and Make Room For The Stuttering, 2009 - 2020. Unauthorized use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to Pamela A Mertz and Make Room For The Stuttering with appropriate and specific direction to the original content. Same protection applies to the podcasts linked to this blog, "Women Who Stutter: Our Stories" and "He Stutters: She Asks Him." Please give credit to owner/author Pamela A Mertz 2020.
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