Make Room For The Stuttering

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I had a good experience last week with someone who was meeting me for the first time. During our conversation, I was stuttering quite well.

After several moments of really good stuttering, she leaned in and asked me how did I want her to respond when I was stuttering. She said, “you don’t want me to finish your words, right?” I said no, that I preferred to finish my own thoughts.

We talked about that for a moment. I told her people often guess wrong when they try to finish my thought and it’s just more respectful to let me finish. After all, it only takes a few extra seconds.

I thanked her for asking and bringing it up. I let her know I also appreciated her keeping good eye contact and staying present with me. I was so pleased with her interest and willingness to talk about stuttering.

Have you ever had someone ask you so directly how best to respond while your stuttering?

People who stutter tend to be very good at avoiding. We avoid speaking situations in which we fear we’ll stutter. We avoid certain words and switch to words we can say without stuttering.

For a long time, as I’ve written before, I was extremely covert and avoided situations where I’d be vulnerable and exposed as a person who stutters. I always had the fear of being negatively perceived or judged or labeled.

As I’ve gotten older, I find that I don’t care as much about my stuttering and am largely open about it. I stutter openly, without apology, and feel I am living a much more authentic life, at least as far as stuttering goes.

But what I’ve found is that avoidance has seeped over into other parts of my life. I’m sure many of you have found this as well. How could it not? Practicing stuttering avoidance for many years becomes such a strong habit that it almost seems to become default behavior.

What am I talking about? Well, I find that I avoid difficult conversations. I avoid conflict. I sometimes avoid change. I sometimes avoid making decisions. I sometimes avoid being too assertive at work, for fear of rocking the boat and being perceived or judged negatively, much like when I was covert and avoiding stuttering.

I’d like to say that I have transcended all of this now that I am overt with my stuttering but I can’t. I keep noticing pockets of avoidance that I am positive relates to my stuttering. This is something that I am continually working on. I am mindful of when I seem to be avoiding something big and acknowledge that it’s happening.

Acknowledging avoidance is only half of the battle. The other half of the battle requires action and courage. I’m working on both. How about you?

I’ll never forget the time at a Toastmasters meeting where we had a visiting “dignitary” with us to install new officers. It was the beginning of a new Toastmaster year and it is tradition in Toastmasters that a leader performs an induction ceremony.

I was so surprised when our Area Governor, whom I had not previously met, started speaking and I realized he stutters. In a way, I was kind of excited to realize there was another person in the room and in Toastmasters that stutters like I do.

I have often heard that people who stutter have a sense of radar when we hear other people who stutter. We can hear the repetitions, the breaks in speech, the blocks, all signs that a person stutters. I found myself hanging on this person’s every word as he completed the induction. He spoke slowly, deliberately, with repetitions and blocks.

After the meeting, I went up to introduce myself and congratulate him for a job well done. I also decided to disclose that I stuttered too, and that I was pleased to see a fellow stutterer do so well in Toastmasters.

Well, he became quite defensive and denied that he stutters. I remember this like it was yesterday. He got a little red in the face and adamantly let me know that he does not stutter. I felt foolish, as I had “outed” him when he clearly did not wish to be identified as a stutterer. I remember apologizing quietly and hurrying away, feeling embarrassed that I had embarrassed him.

Has this ever happened to you? How did you handle it?

Another time, I was at a networking meeting and heard a woman talking about her organization and clearly stuttering. I remember having self-talk with myself, again excited to hear another person who stutters in a professional environment and feeling conflicted if I should say anything to her.

The negative experience I had at the Toastmasters meeting still hung over me and I felt it was best that I not “out” another person. Disclosing that you are a person who stutters is a personal choice that needs to be respected, despite the overwhelming inside urge to yell, “hey, over here, me too. I stutter too.”

I remember being introduced at a Toastmaster meeting where I was to be a featured speaker. A fellow Toastmaster was responsible for introducing me and I thought he would share my usual bio which I had provided to the club, as we were all asked to. He ad-libbed a bit and added some extra things to his introduction of me.

He included that I was a proud stutterer and an inspiration to the club. I remember feeling embarrassed that he said that about me. There were people in the audience who were new and didn’t know me and now knew something about me that was very personal. It didn’t bother me that I stutter because I do and am open about it in Toastmasters. What bothered me was not being able to disclose it myself – I felt like I had been “outed.”

Now I knew what I felt like to be outed, even in a very well-intentioned manner and in a moment of pride. Ever since then, I have been very cautious about going up to anyone I hear stutter and saying anything, even the “I stutter too.”

It’s a slippery slope, outing someone as a stutterer or being outed yourself in a way you didn’t expect.

What do you think?

I just returned from the annual National Stuttering Association conference, held in Baltimore, Maryland this year. I spent a week at the conference site, catching up with friends for a few days before the actual conference started.

To say I had an outstanding experience would be an understatement. It is hard to put into words what it is like to be immersed in the stuttering community for 5+ days. It is a time filled with connection, bonding, laughter and tears. Even though it had been a year since I had seen most people, we picked up as if it had only been a week. That’s the beauty of community.

It is also the time each year where stuttering is normalized. It is freeing to stutter openly with hundreds of people who share and get the otherwise isolating experience.

I was very involved in first timer activities at this conference, hosting the first timer’s orientation workshop and welcome luncheon. It was great to meet new people just coming into the community who have not been in an environment where stuttering is the norm.

Everywhere I turned, I heard people stuttering. It is almost magical to hear the different types of stuttering and to see people thrive in a patient, non-judgemental environment.

One first timer I met in person after having “met” him online in Stutter Social hangouts was Shane. He kept looking around in wonder and exclaiming how unbelievable it was for him to be there and to hear so much stuttering. He kept saying “thank you” to us “old timers” he met, as he was so grateful for the experience to be in a normalized, inclusive stuttering environment.

The sense of community at a stuttering conference picks you up, holds you up and surrounds you with love and support. People meeting each other for the first time hugged in greeting, as if they were old friends. Sharing something as personal as stuttering is an almost instant bond. Lifelong friendships are made at conferences and people eagerly look forward to the next one before the current one is even finished.

On my last day, I became overwhelmed with emotion as I was saying goodbye to new and old friends. As I hugged people, tears flowed and I got choked with emotion so strong it surprised me.

I guess I figured after 10 years of attending stuttering conferences, saying goodbye would be easier. Not true. I felt sadness and a yearning to stay with the community rush over me like waves crashing against a shore. It will be another year before I see most of these people and get to experience the magic of the stuttering community again.

Now, I am transitioning back into a world where fluency is the norm and I am in the minority. But I take the love and support of my stuttering family with me and I will remember the power of support and community. I can’t help but remember – it flows through my veins.

I’m a huge fan of the Netflix series “Orange Is The New Black,” about the lives of women in prison. It is well written and has great character development. In season two, and now in season three, we learn more about major characters through flashbacks.

We learn why Norma is mute in season three. This is a spoiler alert – if you’re a fan and are not up to season 3, episode 7 yet, don’t read any further! 🙂

Episode 7 reveals in a flashback scene that the reason Norma doesn’t speak is that she is a stutterer. We see her attempt to speak in a scene from her youth to a cult leader. When she stutters, the leader tells her she doesn’t need to speak around him – that he hears her. We then understand that she chooses not to speak thereafter.

Several times in season 3 we also see Norma pull out a notepad and write the words that she chooses not to speak.

What do you think? Has anyone ever considered selective mutism as a way to deal with stuttering? Or using a notepad to write what you want to say?

I’ve read that the famous James Earl Jones chose to be mute when he was a child because he stuttered. I believe he didn’t speak for a number of years. It wasn’t until a sympathetic high school English teacher encouraged him to recite poetry that he began speaking again. James Earl Jones credits reciting poetry with helping him manage his stuttering.

I heard James Earl Jones perform at a local venue here in Albany, NY about 8 years ago. He read from his own poetry and wowed the audience with his booming voice and his heartfelt words. He stuttered openly several times during his reading. It was a wonderful night that was in sharp parallel to his choice to silence his own voice many years ago.

I’ve never considered choosing to be mute to manage my stuttering. I want to be heard too much. What about you?

Last week, I had the opportunity to emcee an awards event at my school. I call it an opportunity because I try to seize every chance I get to do public speaking. I enjoy it, while many of my fluent colleagues hate it and avoid it all costs. My co-workers were glad that I was willing to do it.

I have had years of experience with public speaking, through my association with Toastmasters and no longer dread it like I once did when I was really covert and afraid to stutter openly. But I still get a little anxious, like anyone would. My adrenaline gets flowing because like anyone, I want to do the best that I can at events like these.

As a stutterer, my biggest challenge is reading names aloud and introducing people. That was to be my primary role as emcee at the awards event – introducing each person and keeping the ceremony moving and flowing.

I was anxious about saying people’s names – as I knew I would stutter on them. And stutter I did. Some with light, easy repetitions, a couple with blocks.

No one seemed to care, as the event was about celebrating success and I was just a cog in the wheel to make sure everything went smoothly. The people whose names I was calling were getting certificates of appreciation – that’s what they focused on.

But it bothered me. It always does when it comes to names. I feel getting a person’s name right is important. Our name is our identity and it’s important. I feel bad when I stutter on a name and it “doesn’t come out right.” I feel like pronouncing someone’s name correctly is a show of respect.

I always worry about this – perhaps needlessly, as like I said, no one seemed to be bothered by it except me. It’s important to me that people get my name right, so I think I should get their’s right too.

What about you? Do you find it difficult with people’s names? Just your own name? Do you place importance on getting someone’s name right?

Another TV reality show features someone who stutters, trying to make it big because of, or in spite of, their stuttering.

In the show, America’s Got Talent, we have a young man who stutters and is a comedian. His story is interesting because he says he stutters due to a sports injury. He explains it in the clip below.

Drew Lynch is a comedian and he’s trying to get people to laugh, but I would have liked to see some material that wasn’t encouraging laughing at just stuttering. All of his jokes were about stuttering.

What do you think?

Earlier in the week, I did a presentation on stuttering to high school seniors who are taking a scientifc research biology class. In addition to talking about stuttering in general and my own experiences, I also touched on genetics and the neurological basis of stuttering.

The students were wonderful and asked so many smart and thoughtful questions. Truth be told, I was a little intimidated by them because they are so smart and all biological science enthusiasts. But they made me feel so comfortable and welcome, our time together just flew by.

Below are some comments from the students, which their teacher emailed to me. Feedback is so important. It helps us determine if we met our objective and did a good job. I felt I had and these comments made me feel so good!

Ms. Mertz

Your presentation was such an inspiration. I never fully recognized the emotional trauma that can accompany a stutter. It takes a strong person to be able to accept that and continue living their life. The video you showed us was especially moving, proving that a stutter can’t stop someone from living their dream.

Thanks so much for taking your time to speak with us,

Dear Pam,

I appreciated you coming to speak with us about your stuttering. You showed a lot of confidence when giving your presentation and did a very good job explaining the struggle you went through as a child. It was nice to hear about all of the programs that are available now a days to help people with stuttering issues get to know people that have the same disability. I was unaware that such programs existed.

Dear Ms. Mertz,

Thank you for coming in and speaking with our class. Your presentation was very interesting and informing. Before your presentation, I had never thought about the physiological affects stuttering could have on a person. After meeting with you  I now have a better understanding of the struggles a person who stutters and will be more open-minded in the future.

Dear Ms. Mertz,

Thank you so much for speaking with our class, it was so inspiring to see how comfortable and confident you were, I also thought it was so interesting how rare stuttering is in women. I never knew that! Thanks Again!

Dear Ms. Mertz.

Thank you so much for stepping out of your comfort zone to tell us about the struggles you, and others who stutter, have dealt with throughout your lives. I had no idea that stutters were cause by genetic and neurological factors. I always thought they were caused by stress or anxiety. Thank you so much for enlightening me and promoting a better understanding of those who stutter.

Dear Ms. Mertz,

I’d like to thank you for coming and speaking to our class. I understand how it must have felt for you to have done that, but I want you to know that we all benefited from your talk. By you putting yourself in that situation for us, we all have a better understanding of both sides of your iceberg. I hope you continue to do talks like the one you gave us, as to help remove some of the stigma that surrounds your disability.

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I had this article published today in my local newspaper. The commentary editor told me they don’t usually take “issue” pieces because it might sound like a PSA (Public Service Announcement.)

But he told me it was well written, interesting and effective and they would publish it as is, this week for National Stuttering Awareness Week.

This week is National Stuttering Awareness Week in the United States. It’s an opportunity for people who stutter to talk about stuttering to those who don’t, to educate and raise awareness.

There are many ways to advertise and promote stuttering awareness. Here are a few.

1. Consider wearing a stuttering awareness tee-shirt, wrist band or lapel pin to work or out in the community. If people ask about it, mention you stutter and take the opportunity to explain what it is and how it feels.

2. In your office, display posters or a coffee mug that says something about stuttering. (These items can be found in the store at the National Stuttering Association.)

3. Consider contacting a radio station and asking if you can make a public service announcement (PSA) about stuttering.

4. Read blog posts or articles or literature about stuttering to educate yourself more about stuttering. Great free resources are available at The Stuttering Foundation.

5. Stutter openly this week. If you are usually covert about stuttering, try to allow yourself to stutter openly. Be open if people have questions about your speech. Seize the opportunity to raise awareness.

This week I am speaking to a high school senior class that is specific to scientific research and public health. I will be addressing my personal experience with stuttering along with talking about the neural and genetic basis of stuttering.

I have also submitted a brief article to my local newspaper about how to listen to someone who stutters. It has been accepted for publication and will be printed in the paper tomorrow.

What will you do this week?

I had a really great conversation this week with a colleague about stuttering. I was talking with a new staff member about a Google hangout I participated in with people from all over the world, and how much I enjoyed it. She asked me what was the topic and I said stuttering.

I read a post on a stuttering forum about a woman who has been asked to record a training video for her job.

She was asked to make this promotional video because she is good at her job and has a great attitude.

She posted that she really wanted to make the video but is afraid of “messing up” since her speech has been “really bad” lately. She said she wouldn’t want to do the video and have it turn out less than perfect.

Several people replied, encouraging her to take the chance and do it. Several other people wished her good luck and that they hoped she has good speech on the day of the recording.

I replied as well, encouraging her to do it and to be happy with her efforts no matter how her speech is on that given day. I said that imperfect people will probably be encouraged by seeing someone who isn’t perfect either.

None of us are perfect. Perfect doesn’t exist. Especially when it comes to the speech of people who stutter.

It has taken me a long time to believe this, for I grew up under the burden of trying to be a perfectionist in order to compensate for my speech. I thought if I was perfect at everything else, my stuttered speech wouldn’t be noticed and judged.

I was afraid of the judgement. If I didn’t sound perfect, I feared people would judge me negatively. Some did, as evidenced by the teasing and mimicking I tolerated growing up. Hell, I’ve been teased and mocked as an adult.

But I’ve slowly learned to shed the drive to be perfect. I think I am in recovery.

We can use all the tools and techniques we have to shape our speech into fluent speech. But if we stutter, we’re going to stutter. That’s all there is to it.

I hope the woman asked to do the video does it and stutters well. She doesn’t have to be perfect.

There is no perfect.

I participated today in a great conversation about all things stuttering on the weekly Wednesday Stutter Social hangout.

We were talking about stuttering with confidence and whether practicing our speech increases confidence.

A couple of people mentioned that they intently practice speaking every day for one to two hours, to themselves. This practice helps those particular individuals feel more confident when they are speaking to others.

One guy mentioned that sometimes after practicing and feeling more confident, when he is speaking with others that he actually forgets he stutters.

I did a double take and mouthed “what?” I couldn’t wrap my brain around this.

The facilitator of the hangout asked us to reflect on “forgetting that we stutter” and think of a time where we might have experienced this.

To be honest, my first instinct was, “Nope I have never forgot that I stutter.” For years I tried to hide my stutter. I dealt with the mental gymnastics of word substitution and avoidance,which was a constant reminder of stuttering.

Now that I no longer do that (mostly) and stutter openly – more on some days than others- I am reminded every day that I stutter. Sometimes those stuttering reminders come at the most inopportune times.

But after the hangout was over and I thought about this some more, I found myself thinking that I sort of knew what the guy meant. There are times when I am very fluent and if I have a stuttering moment, it’s not really noticeable. At those times, when I’m not thinking of stuttering, I can understand how you can actually forget about stuttering.

At these times that I am not thinking about stuttering, I am also not acknowledging it. Perhaps by not acknowledging it, for a brief time, we can actually forget we stutter.

What do you think? Can you fathom ever forgetting that you actually stutter?

Interesting reference to stuttering!

I was watching an episode of “Nurse Jackie” on Showtime this week with a friend that also stutters. There was an interesting reference made to stuttering, which was comedic and meant to be funny.

A doctor character out of the blue grabbed the breast of the main nurse character. She became angry and immediately pulled away, saying something like, “are you kidding?”

The doctor explained that this was a reaction to stress that he gets, similar to Tourette’s Syndrome.

The doctor grabbed the same nurse’s breast later in the episode. She reacted the same way and the doctor responded with “I can’t help it. When I get stressed, I react like this. It’s like a physical stutter.”

Both my friend and I laughed. We weren’t at all offended by the reference to stuttering, which of course does not manifest itself in such a way.

What do you think? Would you have found it funny? Or do you think it was in poor taste?

Like most people who stutter, I often find myself feeling self-conscious and vulnerable when I stutter publicly. I do a lot of public speaking for my job, and this is my busy time of the year. I have been conducting tours and presentations to prospective students interested in applying to our school.

Sometimes, I find myself hoping that I’ll be mostly fluent in my presentations so I don’t encounter teens snickering when I stutter during my talk. That’s happened often, as my fluency has been very inconsistent and teens don’t quite know how to react when they hear an adult unexpectedly stutter.

Today, I had a big group that was touring. I make a 15 minute presentation at the start of the visit and then take questions as we walk around on the tour. Sometimes, I find myself very fluent when giving these presentations, as I have to project my voice to a big group and that really helps with my control.

I was very happy today that I had a great speech today. What does that mean, a “great speech day?” For me, it means that I felt comfortable and in control while speaking and took the stuttering in stride. I had a few moments of stuttered speech but felt so comfortable that I didn’t let it bother me. I did not feel self-conscious or embarrassed and I did not experience any physical tension or blushing.

Being able to take the stuttering in stride is what it’s all about. We need to remember that good communication is about the message we are conveying, not whether we stutter or not. We can be excellent communicators and stutter.

When I was younger, I never believed that. I thought my stuttering meant I was doomed to be a poor communicator. Well, that is so wrong. I stutter and I’m a great communicator. Take it in stride.

What about you? Can you take your stuttering in stride and just be OK with it?

 


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© Pamela A Mertz and Make Room For The Stuttering, 2009 - 2026. Unauthorized use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to Pamela A Mertz and Make Room For The Stuttering with appropriate and specific direction to the original content. Same protection applies to the podcasts linked to this blog, "Women Who Stutter: Our Stories" and "He Stutters: She Asks Him." Please give credit to owner/author Pamela A Mertz 2026.
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