Make Room For The Stuttering

Posts Tagged ‘stuttering therapy

PamEpisode 180 features Petra Ammerlaan who hails from Dreischor, The Netherlands. Petra has been a nurse caring for the elderly for 28 years. She is married to a very supportive husband who never cared that she stutters.

Petra got into nursing because she always liked taking care of people. She works mostly with people at the end of their lives and treasures the stories they tell.  Patients have never cared about her stuttering, but it’s sometimes been a different story with bosses and coworkers!

Listen in Petra shares about being covert for a long time, still trying to hide it sometimes. “Being yourself is often hard with a stutter.”  We also talk about speech therapy experiences, being around those who love and care about us, and the importance of taking baby steps on our journey with stuttering.

We also chat about the Facebook group Stuttering Community and Petra’s recent leap of courage to record and post a video to the group, for the first time.

The music clip used in today’s episode is credited to ccMixter.

PamEpisode 176 features Lisa Wilder, who hails from Toronto, Canada. Lisa has been involved with the Canadian Stuttering Association for about 11 years. She prefers behind the scenes work and thus enjoys serving as the webmaster for the CSA.

Listen in as we discuss the goals and vision of the Canadian Stuttering Association, it’s annual conference held in October and how the CSA is essentially a labor of love for those involved.

We also discuss speech therapy, keeping up on research and new ideas in the field of therapy, and how change in attitude and mindset is often more of a game changer than actually focusing on speech strategies.

We also talk about the importance of not caring so much about what other people may think about your speech and looking at options if you think stuttering is holding you back.

The music used in today’s episode is credited to ccMixter.

 

PamEpisode 165 features Emily Purkey who hails from Portland, Oregon. Emily is 17 years old and a senior in high school. She is applying to colleges and plans to create her own major. Emily is actively involved in leadership activities in school and is passionate about raising awareness about stuttering.

Listen in as we talk about experiences with speech therapy, the importance of working on confidence, and Emily’s involvement in several stuttering associations. She talks about The Stuttering Association for the Young, or SAY and the National Stuttering Association or NSA. SAY helped Emily find her way and changed her life.

We also discuss the importance of finding community, stepping out of your comfort zone and the value of your voice. Below you can see Emily’s TED Talk, which she delivered in April of this year. Talk about stepping out of your comfort zone!

Music used in today’s show is credited to ccMixter.

 

PamEpisode 159 features Jaime Habing, who hails from Westerville, Ohio. Jaime is married to Andy and has three wonderful kids, Kerrigan, Jameson and Finn. Jaime is a registered nurse and currently works in a plastic surgery doctor’s office.

Listen in as Jaime tells parts of her story, from initially studying communication and journalism to eventually choosing nursing. We talk about how challenging nursing school is, and that she had teachers along the way who asked her if she was sure she was making the right choice, because of her stuttering.

We also speak about moments of shame and turning points for Jaime in her journey with stuttering, which were her first National Stuttering Association conference in Cleveland in 2010 and attending intensive therapy last year at the American Institute for Stuttering. Jaime shares that the more she talks about stuttering, the better she feels about herself.

And Jaime shares the very personal story about having an accident that has left her chin and bottom lip permanently numb. That coupled with stuttering certainly brings challenges. We wrap up this fantastic episode talking about Jaime’s 3 kids and their understanding of mom’s stuttering.

The music used in today’s episode is credited to ccMixter.

 

 

PamEpisode 150 features Jia Bin, who hails from China. She is currently living in Michigan in the U.S. while studying for her Master’s degree in secondary education. Jia taught English in China for 9 years, and is currently teaching Chinese here in the U.S. to high school students.

Listen in as Jia describes why she wanted to come to the U.S. She was looking for a way out and thought she’d find the answers to stuttering in the U.S.

We have a fascinating conversation about the cultural differences between China and the U.S. Jia describes China as a “culture of shame” where it comes to being different. In China, it’s all about being the same. Differences are shameful and shame is hidden in China.

We also have a rich discussion about covert stuttering, finding support through the National Stuttering Association and stuttering with confidence. We also talk about Jia’s speech therapy experiences and the huge emotional attachment that stuttering really is. She talks of carrying her country on her back when she talks.

This was a great conversation that could have gone on for hours. Feel free to leave comments or questions.

The music used in this episode is credited to ccMixter.

 

PamEpisode 141 features McKenna Rankin who hails from Dallas, Texas. McKenna is 26 years old and is currently studying for her National Counseling Exam. She will then be credentialed as a Licensed Professional Counselor. McKenna plans to be a mental health counselor and is interested in working with children.

Listen in as McKenna shares her journey with stuttering. She has found she has had to educate mental health counselors about stuttering, many who believe stuttering is anxiety based. It is exciting that McKenna is going into a field that she will be able to dispel a lot of myths about stuttering.

We also talk about a rock bottom moment that McKenna had when interviewing for grad school, where an interviewer asked her if she really thought she could be a counselor with her stuttering. This was the first roadblock McKenna saw to doing what she really wanted to do.

This propelled her to enroll in the Successful Stuttering Management Program (SSMP.) She says that was a life changing experience. She no longer shuts down because of stuttering.

We also discuss how stuttering helps her to have more empathy with clients and she thinks that will be an asset in her counseling practice.

The podcast safe music used in today’s episode is credited to ccMixter. Feel free to leave comments for McKenna.

PamEpisode 137 features Autumn Seigel, who hails from Wapakoneta, Ohio. Autumn is a 21 year old writer who will soon self-publish her first book, ReAwaken, which will be a young adult novella. She writes in the science fiction, paranormal genre.

Listen in as we talk about how Autumn got involved in writing and what it was like for her growing up with a stutter. Autumn also has a learning disability, which she is open about in our conversation.

We discuss Autumn’s experience last year at a two-week summer intensive stuttering camp through The University of Toledo Speech, Language and Hearing Clinic. It was the first time Autumn had met other people who stuttered like herself. She felt she gained fluency, confidence and a more positive mindset after completing the camp.

Autumn has her own blog, The Dreamer, where she describes herself as writer, artist and dreamer. Autumn also maintains an authors page on Facebook for more information on her book.

The podcast safe music used in today’s episode is credited to ccMixter.

EpiPamsode 136 features Dori Lenz Holte, who is a parent of a child who stutters. Dori hails from Minneapolis, Minnesota and is the author of the book, “Voice Unearthed: Hope, Help and a Wake-Up Call for the Parents of Children Who Stutter.”

Dori also has a blog and a Facebook group offering support for the parents of children who stutter.

Dori says she wrote the book she wished she had read when she was starting out on the journey with her son Eli, who stutters and is now 18.

Listen in as Dori describes how traditional speech therapy affected her child and the frustration and desperation she and her husband felt as parents.

She talks about being told to “keep looking” for a speech therapist who was a specialist in stuttering.  That period of “keep looking” added to the silence and withdrawal that her son was experiencing as a young child who was trying, and failing, to use speech tools and techniques.

Dori also discusses the need for parents to keep their eye on the big picture, which is to raise confident and happy children. And parents should listen to their instincts.

This was an important conversation. Thanks Dori for being a guest.

The podcast safe music used in today’s episode is credited to ccMixter.

 

Episode Pam133 features Shilpa Sagwal, who hails from Mumbai, India. Shilpa is 23 years old and is studying for her Masters degree in Chemical Engineering. She is enjoying exploring her world and moving out of her comfort zone.

Listen in as we discuss Shilpa’s journey toward acceptance and how openly bringing up stammering with family and friends has helped her. She feels more supported and is enjoying life.

We discuss what it’s like to be a woman in India who stammers, how it’s a “big big issue.” Women who stammer don’t want to expose themselves and are fearful of almost everything. Stammering is seen as an imperfection. We discuss how women in India can’t speak for themselves anyway and how having a stammer only makes that worse.

We discuss The Indian Stammering Association (TISA) and how Shilpa has found support through weekly meetings and the national conference.

This was an enlightening, honest conversation that could have gone on for hours. Feel free to leave comments or ask questions.

The podcast safe music used in today’s episode is credited to ccMixter.

 

 

PamEpisode 124 features Natalie Bragan who hails from Fairfield, Maine. Natalie works for the state of Maine as a managing accountant. She is also a member of the Maine Chapter of the NSA.

Natalie recently returned from her first National Stuttering Association conference. She discusses what it was like, describing the gamut of emotions from overwhelming to empowering.

Listen in as we also discuss covert stuttering, the road to confidence and acceptance and stuttering more in intimate situations. Natalie also shares about her home schooling experience, which gave her many opportunities to be covert.

This was a great conversation and a chance to relive conference moments through the eyes of a first time attendee. Feel free to leave comments or ask questions, as feedback is a gift.

The podcast safe music used in this episode is credited to ccMixter.

One of the most popular posts on this blog, the one that gets the most visitors, is a post titled Breathe In, Breathe Out, that I wrote on April 15, 2010. I think it’s so popular because people who stutter are often looking for techniques that can help to manage stuttering.

The program that focuses most on breathing is the McGuire program. This program stresses the use of costal breathing, where students are taught diaphragmatic breathing techniques. Graduates of the McGuire method practice breathing techniques daily in order for speaking to sound natural.

When I attended speech therapy a few years ago, one of the techniques that the student clinicians taught us was “full breath.” This was part of traditional fluency shaping therapy.

For me, I always found it difficult to concentrate on my breathing and trying to speak at the same time. Both are automatic, things I do without thinking. I breathe with ease. Sometimes I speak with ease, sometimes I struggle when I speak.

When I block, I can sometimes feel myself run out of air and feel breathless. That can be such a helpless, out-of-control feeling. But I still don’t want to take the time to stop and think about breathing and speaking on a full breath.

To me, breathing is just breathing and shouldn’t require extra, specific thought. I’m curious – what do you think?

 

Pam

Episode 121 features Natalia Kissamitaki who hails from Athens, Greece. Natalia is a graphic artist and she describes herself as very communicative and social. She is also a newlywed, having just married in January.

Natalia is one of the founders of the Greek Initiative for People Who Stutter. The idea for this initiative was planted several years ago, and was officially licensed by the Greek government one month ago. Check out their Facebook page here.

It is named the Greek “Initiative” because Natalia and others took initiative to advocate for an individual who was fired from his job as a police officer because of stuttering. They won, and the individual got his job back.

Listen in as we discuss workplace stuttering, the positive side of stuttering and learning to respect and accept differences.

We also discuss how the Initiative works with individuals and points them in the direction of the Greek Union of Speech Therapists.

This was a great conversation with a woman who does not let stuttering stand in her way. The podcast safe music used in this episode is credited to ccMixter.

 

PamEpisode 118 features Natalie, who hails from London, England and currently is based in Bristol, England. Natalie is a beauty therapist and absolutely loves her job. She enjoys helping women look and feel good about themselves and looking the part herself.

Listen in as Natalie talks about the challenges and opportunities of a service profession that requires constant communication.

We talk at length about The McGuire Program, which has helped Natalie become a competent and confident communicator. She aspires to one day be a coach and course instructor for the program.

Natalie is an upbeat, social and bubbly young woman who doesn’t let stuttering stand in her way. It was a delight to chat and get to know her.

Feel free to leave comments below, for feedback is a gift. The podcast safe music used in this episode is credited to ccMixter.

 

There is quite a discussion roiling on one of the email groups about stuttering being renamed “childhood onset fluency disorder.” This classification will be found in the DSM-5, due to be released in May 2013.

The DSM is the Diagnostic and Statistical Manual of Mental Disorders. All mental disorders (and medical conditions for that matter) are coded for insurance coverage and reimbursement purposes. Changing the name from stuttering allows for all communication disorders to be covered, and gives parents with kids who stutter more options for quality speech therapy that insurance companies will pay for.

That is the layman’s (mine) explanation, from what I’ve gleaned from doing some reading and understanding what one of the writers and contributors to the section on communication disorders shared on the email group.

Many in the stuttering community are finding this classification of stuttering as a mental disorder to be disturbing. Many of us who stutter do not believe that we have a mental disorder.

And this label might just further the beliefs, and myths, that stuttering is a psychological problem. Many walked away from the 2010 movie “The Kings Speech” believing that stuttering was caused by bad parenting and psychological reactions to trauma and bullying.

People who stutter already have trouble with bullying in school and often being assigned to special education classes, even though there is no learning impairment. There is also workplace discrimination, with employers not fully understanding stuttering and making assumptions about ability and stability. If employers get wind of stuttering now being classified as a mental disorder, that could further diminish employment opportunities for stutterers.

Some could argue that everything we do is “mental.” We use our mental faculties everyday to communicate and interact with the world.

I don’t think I have a mental disorder because of my stuttering. Maybe for other things, but not for stuttering! 🙂

What do you think? Would you feel comfortable being diagnosed with a mental disorder due to your stuttering?

Thanks to Google alerts, I received this update today, about the Kirkup Center for the Medical Treatment of Stuttering. The Kirkcup Center is associated with UC Irvine Health (in California.)

The center is (claims to be) the only program that treats stuttering as a medical condition, and combines medication and psychotherapy with speech therapy to reduce stuttering symptoms.

I find it interesting that this model uses the concept of symptoms to describe what we know as stuttering: frequent pauses, repetitions of words or phrases, prolongations and secondary behaviors. It’s of interest because symptoms are usually associated with a medical condition.

Most treatments for stuttering focus only on changing or modifying our speech, through traditional fluency shaping, stuttering modification, or avoidance reduction therapy.

This model suggests that stuttering can be treated as a medical condition, which for many people (in my opinion) might reduce the stigma of stuttering if it is seen as a medical problem.

A medical problem may seem more acceptable to many of us. It might not bring the same degrees of shame, guilt, fear and inadequacy that many of us now experience. With a medical model, self blame may be reduced, as we may think stuttering is not “our fault” much as cancer is not our fault.

What do you think? Is it more acceptable to you that stuttering be viewed and treated as a medical condition?


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