Make Room For The Stuttering

Posts Tagged ‘acceptance of stuttering

As I wrote in my last post, I have been reflecting so much more recently on my stuttering journey. Maybe it’s because somehow I feel I have not been as helpful to others as I once was. I have not been as active in the community as I once was. I have had other BIG issues this year that have taken up more headspace. I have not been thinking as much about stuttering as I used too.

But, I have allowed myself to jump into spaces where there are other people who stutter. I am still really involved with the NSA and I help create some great virtual events. I try to attend them every chance I get. And as I used to be a host for Stutter Social, I have been trying to jump in on those conversations once in a while.

Something that was recently discussed at one of those stutter social hangouts was the idea of how people who stutter feel when they get caught in a long block, trying to say something and nothing comes out. I don’t experience intense blocks where my mouth hangs open when I am waiting for my word or sound to come out, but I definitely do experience blocks.

I know of a lot of people who do experience much more intense blocks, who have told me they absolutely hate it when they are in mid thought or mid sentence and then wham, they stop and are stuck. They describe the “stuckness” as mouth wide open, gaping, utter silence. They describe their listeners as impatient shrews, who can’t or won’t wait, who just walk away while the person stuck in the block just stands there, embarrassed once again that they couldn’t get a word out fast enough before someone walked away.

What came to mind when thinking about this recently was that we who stutter have choices. We can choose to stutter well. That sounds ridiculous, right? But it’s not. I have stuttered for more than 50 years so I am very good at it, in fact I am an expert at my stuttering. Of course I stutter well, it’s what I do. When we choose to adopt the mindset of stuttering well, we can choose to not let other people dictate how we feel about stuttering. If someone else doesn’t like my stuttering, fine. So be it. There’s nothing I can do about that. Because I stutter and I stutter very well.

I also struggle well. I didn’t always used to think that. If I got caught up in a huge stuttering moment, with a long block or many repetitions, I would do my best to duck my head, pretend to cough, and get out of the situation as quick as possible. Many times, I’d find myself going out to my car and crying.

But not anymore. Struggling is part of life. It’s part of stuttering. When I struggle, I don’t run away from it anymore, I run towards it. Struggling well helps me figure out what to do best in a situation that will leave me feeling intact and whole and equipped to handle the next challenge.

Stutter Well. Struggle Well. Sometimes that’s all we can do.

Episode 273 features Halie Matthews, who hails from South East Georgia. She is a toddler teacher and works with 2 and 3 year old’s in a pre-school. She is also in the process of getting her degree in Early Childhood Education.

Listen in as we discuss what it’s like working with young kids and their interest in her stutter. She usually refers to it as “silly speech day” with the kids, and sometimes they will help her with a word.

We also talk about how during speech therapy, Halie’s SLP would pull up an episode of this podcast to listen to, which helped Halie so much toward acceptance. This made me feel so good as the host of this podcast that it was used and found helpful by a SLP.

Halie reports that it helped her to remove the pressure to be fluent, which actually helped her become more fluent.

What a great conversation!

whs logo smallEpisode 271 features Paula Campbell-Schwab, who hails from Houston, Texas. Paula is a retired Special Education teacher and spends her time doing lots of fun things, such as yoga, water aerobics, and Tai Chi. At 72 years young, Paula is a force to be reckoned with.

Paula grew up in the Northeast, and lived in nine different states, before moving to Houston. She has been very active in the National Stuttering Association and in 1985, she helped co-found the NSA Houston Chapter. Fast forward to 2024, Paula was inducted into the NSA Hall of Fame. She said she found it so surreal, and tried to concentrate on all the others at the conference while on stage accepting her award.

Paula shared that a friend recorded her acceptance speech and she hasn’t watched it yet. Paula doesn’t like seeing herself stutter on screen, can be highly self-critical, and described years of wanting to be invisible, wanting to blend in, feeling like she didn’t have a voice. She goes on to share that now that she has found her voice, she likes “Authentic Paula” who is more “Real” than the Paula she knew growing up.

Listen in as Paula talks about why she chose teaching, learned ASL, how stuttering runs in her family, and what brings her back every year to the NSA.

Paula was very touched by a book written by mutual friend Hanan Hurwitz titled Stuttering: From Shame and Anxiety to Confident Authenticity. She brought copies of the book and gave one to every member of the Houston Chapter and arranged to have Hanan join a meeting and have an open discussion about the book and its meaning to members. 

If you don’t know Paula, make it your business to get to know her. She is a treasure.

whs logo smallEpisode 269 features Brittney O’Neal who hails from Sacramento, California. Brittney is busy with a wife and almost 3 year old daughter and her career. Brittney is a Certified Prosthetist/Orthotist and is preparing to soon open her own clinic.

In her work, Brittney makes artificial limbs and custom braces. She combines her lifelong passion for building things and helping people. 

She stuttered covertly for a long and did not meet another person who stuttered until she was 25 years old. Because she felt alone with her disability, she looked up to those with visible, physical disabilities.

Brittney had plans to enter the Marine Corps and during basic training was told she needed to “fix” herself and she entered into speech therapy for the first time ever. She enrolled into the two-week intensive therapy offered at AIS. She was expecting to learn fluency enhancing strategies and found instead it was all about acceptance. She decided against enrolling in the Marine Corps, as acceptance of stuttering and letting it out opened new doors for her and she couldn’t close that door.

She attended her NSA conference this year. She felt is was so freeing, and she was so happy that she gave herself that time and space. 

Listen in to this great conversation and learn how Brittney wants to be a good role model for her daughter.

whs logo smallEpisode 257 features Gabriela Perez, who hails from Guilford, Connecticut. Gabriela just graduated from the University of Chicago with a major in Global Studies and Spanish and Portuguese.

She is going to Brazil for the next year under a Fulbright Scholarship to teach English at a Brazilian university.

Gabriela has a very tight knit family. She has a twin who also stutters and her younger sisters are also twins. Her entire family is attending the upcoming National Stuttering Association conference in July in Fort Lauderdale, FL, which was Gabriela’s first conference.

Listen in as we discuss using social media as a way to advertise stuttering, early and young adult experiences with speech therapy, and how Gabriela really believed that therapy would “cure” her stuttering. She set out to read scientific research articles so she would have a foundational understanding of stuttering.

Gabriela aspires to go to law school and hopes to one day work with victims of human rights violations, perhaps with the UN in a Latin American country.

Look out world. Here comes Gabriela!

whs logo smallEpisode 252 features Callie Brazil, who hails from Irvine, California. Callie is the Director of Digital Marketing and Storytelling at UCLA Law School. Her focus is on social media storytelling and brand journalism. 

Callie shares her story of how many doors open when one door closes. And this is not cliché at all!

Callie thought she was going to be a lawyer, but now realizes she is in the right place at the right time. She talks about endless speech therapy that was “fluency first” focused. There were times when she felt she had failed, so wanted to silence her voice. She started ASL classes to communicate. 

Callie reached a point when she was truly ready for resources and support. Her life changed when her amazing SLP (shout out Loryn!) told her it was OK to stutter, something no one had ever told Callie. And be sure to listen closely as Callie talks about one special conversation with her grandmother.

Listen in to a great story that wraps up the 12th year of sharing powerful stories from and about women who stutter.

whs logo smallEpisode 248 features Lindsey Lambert, who hails from Kansas City, Missouri. Lindsey is in her 30’s and is an R.N. working as an assistant nurse manager on the oncology floor at a VA Hospital.

Lindsey recently attend her first National Stuttering Association conference, which she describes as finding the family you didn’t know you had.

Listen in as we talk about Lindsey’s experiences with avoidance and being covert. She says she practiced a lot of avoidance for a really long time. She was tired of walking through life not being who she was. She is still working on her journey to acceptance.

Lindsey’s conference takeaways include: she found empowerment in getting out of her negative mindset. She discovered overwhelming love and support, and the deep conversations with others who stutter to be so freeing. She challenged herself to maintain eye contact, and she did.

Lindsey wants to heal. I’d say her first conference experience and all the people she met puts her well on the path to that healing.

“A turtle only makes progress when it sticks its neck out.”

I love this quote. How do we define progress? Progress in school (think report cards,) progress at work (performance evaluations, or getting a raise,) or just doing something really uncomfortable. Maybe public speaking, performing improv, or giving a toast at a wedding.

All of those things can be challenging for people who stutter. I was always afraid to volunteer at school or work, afraid they would think I wasn’t competent or laugh. I unconsciously thought those things would happen, so I learned to hide my stutter as deeply as possible, without looking like a recluse.

Do you ever look at stuttering as something with which we can make progress? I mean like stuttering more openly, more comfortably, or even taking part in therapy to lessen our stuttering or struggle behavior.

I had such a long experience with covert (hiding) stuttering. I was swimming in shame and the belief that no one would want to hear my voice, or even that I was unworthy of talking, as it was different than “normal” speech.

Progress for me was just letting go and confronting my shame, which took a long time. I began to open up more, took speaking risks I never would have dreamed of, and most importantly, I met other people who stutter, especially other women. Through the community of the National Stuttering Association which offers one day and 4 day conferences, chapter support meetings, and online webinars and groups, I found out that progress means something different for everyone.

Discover what it is you want to do, and go after it, as slowly or quickly that YOU want to. It’s not a race, it’s a journey.

Progress – “A turtle only makes progress when it sticks its neck out.”

whs logo smallEpisode 245 features Caitlin Franchini, who hails from Atlanta, Georgia. Caitlin is a second year graduate student studying speech language pathology. She is currently participating in an externship with high school students and loves it. Caitlin is also a self professed foodie – she loves cooking and baking.

Listen in as we discuss all things stuttering. We talk about the changing relationships we have with our stutter, the journey to self confidence and acceptance and Caitlin’s own experiences with speech therapy.

Caitlin is new to the stuttering community and has gone from thinking she was the only who stuttered to realizing there is a huge network of support out there. We talk about disclosure and the importance of validating our identity as a woman who stutters.

Caitlin had the opportunity to work as a counselor at Camp Say last summer. It was a wonderful experience. “I thought I was going to change lives, but my life was changed.” Those epiphany moments are the best.

** Host note: As I listened back to this episode, I was stunned at the number of times I used filler words such as “uhm” and “you know.” I was in Toastmasters for many years and had worked specifically on recognizing and reducing filler words. For a long time, filler words were “run-ups” to words that I thought I was going to stutter on. An old avoidance tactic. Does anybody else find this creeping back in? **

whs logo smallEpisode 243 features Akaiya Bryant, who hails from Indianapolis, Indiana. Akaiya is 19 and a part-time university student majoring in special education, with a minor in American Sign Language (ASL). She also has a part-time job working at a grooming salon. 

Akaiya has been active in the stuttering community since age 12. She and her mom have attended the annual Friends conferences together and it has been life changing for both of them. She has also helped to facilitate online teen support groups.

Listen in as we talk about good and not so good therapy experiences, the value of disclosure, and the need to “keep going.” Akaiya has a great way of describing her experience of stuttering, as being “Disabled by Environment,” and how it’s helped her to self advocate.

Akaiya also talks about a project upcoming next month at her university. She has collaborated with the college Disability Office to have a screening of the powerful film My Beautiful Stutter. Simply by asking, Akaiya has made it happen.

I was honored to have this great conversation with a young woman who is making such a difference in the world.

whs logo smallEpisode 242 features Angélica Bernabé who hails from Lima, Peru. Angélica is a Psychologist who is also studying to be a Speech Language Pathologist.

She has her own Stuttering Center which is focused on an interdisciplinary, holistic approach to stuttering therapy. The Center will celebrate its third anniversary in December. She is also a member of Stamily, serving as part of the content team.

Listen in as we discuss the goals of stuttering therapy and the importance of being honest with clients, especially parents of children who stutter, who may be looking for “the fix”.

Angélica shares that she is not a “superhero” nor wants to be! She advocates showing vulnerability, with both good and challenging situations. She also states with confidence (and shares with her clients), “This is my way to talk. If you don’t like it, that’s not my problem”. What a statement of personal empowerment that can and is shared with clients.

It was such a delight to chat with and get to know Angélica. 

download people talking

As I mentioned earlier this month, I’ve had the good fortune to be involved in several fun activities this week promoting awareness and education about stuttering.

My favorite was yesterday, the actual day of International Stuttering Awareness Day. I moderated a panel of 5 people from around the world talking about stuttering across the globe, and what we have in common no matter where we are from.

I felt proud to have international connections and to be part of such a valuable conversation.

We talked about how stuttering is seen/viewed in different countries, what types of resources are available, and individual and societal acceptance of stuttering.

Opportunities like this to chat with people from other countries enriches our understanding of the stuttering experience. And further cements wonderful friendships.

whs logo smallEpisode 240 features Shiran Israel, who is from Israel. Shiran is a busy woman. She is a mom of two children and works as a Behavioral Economist in a hospital’s quality control department. She has been a member of the Israeli Stuttering Association and manages the Facebook groups, media and translations of materials.

Her BA degree is in Psychology and Economics. Life took her to a Masters degree in Behavioral Economics, which worked out well for her. She did a thesis on the relationship between mindfulness, compassion and the experience of stuttering. 

Listen in as we talk about therapy experiences, concealment vs. acceptance and “making people listen”. Shiran also says when she stopped hiding, she found peace. “It’s the way I speak”.

We also discuss how she creates “branches in her mind” to give her alternatives when word searching, juggling many roles, and the need to be gentle on ourselves.

This was such a wonderful conversation with an inspiring woman.

I am excited that I will be speaking about my story and journey at The Indian Stammering Association’s National Conference in early October.

I’ve been asked to speak covering three key points: searching for acceptance in relationships, how to break free from self-imposed shackles, and authenticity as a core value. The organizers want me to speak a bit specifically to the challenges that women who stutter face (although there will be men in the audience). 😊

One of the organizers works in IT and put together a short video of me talking about stuttering and sharing some of the poems I have written over the years. I was so surprised that she had “stalked” me and found some of my old stuff and did great editing to make it all flow.

It is so important to share our stories. Sometimes we forget that so many people who stutter feel frightened and alone. Those farther on our journeys sometimes need to step back and think (humbly) that what we share can lift someone up, and help them feel seen and heard.

Many of us who stutter have similar stories. But we often don’t hear those stories because not enough stutterers  stand up and speak out. Many people try to pretend that everything is OK, but inside they feel alone and rejected. I felt like that for years. I had created a “Fake Pam” that I wanted the world to see, but kept “Real Pam” hidden. I often felt suffocated by my own doing.

Being able to share how I found freedom with others is a gift to me. I am honored and humbled to be asked.

Episode 234 features Alexis Connolly, who hails from Baginton, England. Her village has a tiny population of about 700. She has worked for the NHS – National Health Service – full time for 25 years. She progressively advanced in her career, in positions she was interested in. She presently works part-time as a radiology assistant.

Listen in as we discuss fears and thoughts about stuttering. Alexis shares that her stammer “made me feel ugly.” I think many of us can relate to that. She eventually reached the point where she no longer cared or feared other’s perceptions. She proudly claimed “I am who I am.”

Alexis found support from online women’s stuttering groups and found others who had similar worries and fears. She shared in the group that she was anxious about saying her wedding vows, afraid that she would stammer. She soon realized that her husband loved her with or without stammering.

Alexis shares throughout our conversation how she has become close friends with other women who stammer, thanks to taking a risk in the online groups.


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