Make Room For The Stuttering

Archive for August 2012

Episode 15 of the series of conversations with men who stutter features Hanan Hurwitz, who hails from Ra’anana, Israel, via South Africa.

Hanan is an electrical engineer, and works for a company that makes server control equipment.

Hanan attended his first National Stuttering Association conference in 2010. We discuss the power of support and community and what a relief it is to realize that we are not alone.

Listen in to a rich conversation about Hanan’s journey, one which he describes as one of incremental steps.  He is excited about sharing his story, as it has been so valuable for him to hear others who have shared their stories.

We talk about avoidance, “mental gymnastics,” losing track of conversations, and talking about stuttering. One thing (among many) things that I loved in this conversation was when I asked Hanan if he does any advertising of his stutter.

His response: “People know I stutter because I stutter.”

Please leave comments for either of us in the comment section, or just let Hanan know what a great job he did. Feedback is a gift.

The music clip in this episode is credited to ccMixter.

I recently read the e-book What Stuttering Treatments Are Effective? by Thomas David Kehoe.

This is a survey of more than 200 scientific reviews of therapy approaches, mechanical devices or software and medication. Kehoe makes no attempt to state which approach is best. Instead, he just makes evidence-based research available for the reader in an easy-to-read manner. We are then free to draw our own conclusions.

This survey considers research and approaches from many different countries. The author also separates therapeutic approaches geared toward children who stutter from those geared more towards adolescents and adults who stutter.

Kehoe sprinkles in his own opinions of what has worked for him, and includes a review of a product manufactured by his own company, Casa Futura Technologies.

One of the reasons Kehoe offers this overview of scientific reviews is his concern that most non-profit stuttering organizations do not indicate on their web sites what types of therapeutic approaches are out there for consumers and SLPs. He also shares that at a recent stuttering conference, he heard a young adult comment that most speech therapy approaches are “hit or miss.”

The stuttering organizations do not include specific treatment information on their websites so that they don’t promote or favor one treatment approach over another.

Kehoe’s main premise is that there needs to be more dollars spent on stuttering research, so that consumers and professionals can choose approaches based on evidence based outcomes.

His work also includes testimonials from consumers who have used various approaches, although many happen to be reviewed by the same person (Paul from Norway.)

I have only personally participated in one type of therapy approach reviewed in this survey – traditional fluency shaping  – which I did not find helpful. I tried that for the first time as an adult in my 40’s.

Evidenced based research on stuttering treatment would be helpful if I was looking to invest time and money in a specific therapeutic approach today. There are so many different approaches advertised today, and not all can be trusted. Social media has given rise to increased scams and promises of “quick fixes” and “cures.”

If you are interested in a straightforward review of stuttering treatment approaches, you might find this helpful. And you might conclude, as I do, that more research is definitely needed in the area of stuttering treatment.

Episode 14 of the series of conversations with men who stutter features Grant Meredith, who hails from Victoria, Australia.

Grant works at the University of Ballarat, as a Lecturer in multimedia and gaming. He is also coordinator for introduction and welfare for first-year students.

Grant takes a very matter of fact approach to his stuttering, and will tell his students upfront that he stutters, and then never mentions it again. His expectation that stuttering is not an impediment cues others to follow his lead.

We have a great discussion about public speaking, and how stuttering can make us more lively, interesting speakers. And Grant makes a great analogy about how understanding stuttering is akin to learning a foreign language.

Listen in as we also discuss the expected reactions of listeners, positive attitude and mindset, perception, and being self aware.

This was a great conversation between two lively speakers and great communicators! Feel free to leave feedback for either of us.

The podcast safe music used in this episode is “The Living Physicist” by DanoSongs.

Even when stuttering is safe and encouraged, and in the majority, some people still struggle with the social interaction. It may be because they never learned how to be social. They missed out on learning conversational skills because they feared  judgment

I was one of those people. I was ashamed of my stuttering, so I tried to hide it. Which meant that I rarely talked to people I didn’t know. If someone approached me, my response was usually a head nod or one word answer.

I definitely was exposed to social interaction. As the oldest of 6 kids, there was constant competition among my siblings to be heard. That competition was intimidating for me as a stutterer, but I did get to see kids talk to each other and negotiate the back and forth of communication.

I may not have talked much, but I knew what to do.

I always wanted to be social, but I just wouldn’t risk it. I didn’t put myself into talking situations, whether safe or not.

Six years ago, I found stuttering self-help and Toastmasters, safe and supportive environments that felt comfortable. It took a while, and I hit some potholes, but I allowed myself to express myself, stutter and all. And I got better and better at it. And comfortable.

I am acutely aware of how many people who stutter are NOT comfortable in social situations. Even amongst other people who stutter. I recently returned from two stuttering conferences, where meeting other people who stutter, while stuttering, is encouraged and expected.

A lot of people never learned how to introduce themselves or join existing conversations or have the courage to join existing groups. Even among stutterers, it can still be intimidating.

I saw first timers at both recent conferences. At the large NSA conference, I noticed some people by themselves, on the fringes of conversations, clearly unsure how to break into established groups.

I also saw first-timers at the FRIENDS conference, which is much smaller. It appeared easier for new comers to break into established groups because they saw children do it. And at a smaller conference, it is more obvious if you are sitting alone. Someone will draw you into a group and get you talking.

I’ve heard it said that you have to take some responsibility and initiative to introduce yourself at stuttering community events. But for those who never learned how, or are painfully shy (regardless of the stuttering,) it can be hugely intimidating.

I think it would be a good idea to have small group sessions at the stuttering conferences to discuss how to actually socialize in real-time, face to face with each other, and practice doing it.

What do you think?

Episode 90 features Briana Pipkin who was born and raised in Dallas, Texas. Briana is 21 years old and currently a senior at Lamar University in Beaumont, Texas. She is studying to become a speech language pathologist.

Briana decided to study speech language pathology after ruling out other career paths and remembering a positive experience she had as a child.

Listen in as we discuss stuttering choices, disclosure and fear of judgment.

We also discuss covert stuttering as it relates to choices and the responsibility of educating others so they know how to respond. We also talk about the rise of on-line stuttering forums and support groups.

Feel free to leave comments for either Briana or me in the below comment section.

The podcast safe music used in this episode is credited to ccMixter.

I host two podcasts for people who stutter to share their stories. The Women Who Stutter: Our Stories is going strong more than two years in. And the occasional series for men who stutter, He Stutters: She Asks Him, is more than a year old.

Here’s an interesting trend happening with the women’s stories. About 8 women, months after their episode has been published, have contacted me and asked if their conversation could be removed. That is a little complex, as they are numbered, archived and on iTunes.

Compromises were reached and the last names of some of the women were removed. Some names were changed entirely.

Why?

People are discovering that upon a Google search, their names are popping up associated with stuttering. If they are doing a job search, they don’t want to be linked to anything relating to stuttering. They are afraid that potential employers will draw conclusions that may result in adverse employment decisions.

Several women came right out and told me that is the reason they wanted to remain anonymous and not be outed on Google.

As open as we are about stuttering, and the more progressive we get about advocacy and raising awareness, some things don’t change.

We still fear being exposed and still believe that being found to be a stutterer will result in negative social punishment. Including missed job opportunities or promotions.

And it appears to be more of a women’s issue. Hmmmm . . . . . .

Thoughts?


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