Make Room For The Stuttering

Archive for April 2016

 

PamEpisode 154 features Sharon Steed who hails from Chicago, Illinois, and presently lives in Pittsburgh, Pennsylvania. Sharon is a freelance business writer and also a professional speaker.

Sharon tells us that stuttering had such control over her life that she was terrified to speak to people. Sharon reached a point where she knew she needed to face her fear head on and she decided to tackle it by taking on public speaking.

Listen in as we discuss how Sharon has used speaking as a way to build business. She says “Being vulnerable and open helps you a lot more than it hurts you.” This applies to both business and stuttering.  We also talk about active listening, effective communication, empathy and patience. In fact, those are some of the topics Sharon has spoken about in her business talks.

Sharon wants others who stutter to know, “I struggle with it too. I’m not any more courageous than anyone else. I’m just willing to try and fail.”

Music used in today’s episode is credited to ccMixter. Below is a video of one of Sharon’s talks.

 

PamEpisode 153 features Lisa Costello, who hails from Las Vegas, Nevada, although she is originally from the East Coast. Lisa works in real estate and enjoys yoga, cooking, traveling and poker.

Lisa is new to the “stuttering world.” She only began researching stuttering about 6 months ago and has pretty much immersed herself since then. Prior to that, Lisa led a covert life.

It was when she began to be overly tired and drained all the time and realized it was from the mental exhaustion of hiding stuttering, that she decided to take action.

Listen in as we talk about Lisa’s recent experience at the America Institute for Stuttering’s (AIS) 3 week intensive therapy program. She explains how she has pledged to herself that she is no longer going to hide and wants to be open. She talks about advertising, telling clients, “Don’t fret, I just stutter.”

Lisa also talks about how much she has done that keeps surprising her, in such a short time. Since returning from AIS, she has led two of her National Stuttering Association chapter meetings. And she says she’s more at peace than she’s ever been. She’s learned she’s an effective communicator.

Lastly, we talk a little about Lisa’s love for poker. This was a great conversation that went way too fast. Check us out.

The music clip used in today’s episode is credited to ccMixter.

Stuttering CardUp to this point, I’ve been quiet about the Stuttering ID Card that has been created by the Stuttering Foundation for people who stutter to carry in their wallet. This card was created in response to an incident that occurred at an airport where a person who stutters claims to have been detained because of her stuttering.

When I first heard about it, I did chime in on Twitter to say there is going to be hundreds of people who stutter coming through the airport in July for the annual conference of the National Stuttering Association. But I’ve been quiet since, as there has been no word from the airport about what happened and there is always two sides to a story.

The young woman has garnered a lot of attention in the stuttering community. She has written articles for the Huffington Post and was also featured in The Mighty.

Recently, I saw that the American Speech-Language-Hearing Association wrote about the ID card on their blog, The ASHA Leader.

So, now, two prominent organizations have advocated that people who stutter carry this card when going through customs at airports, to help explain that they stutter.

I wouldn’t feel comfortable carrying this card. I don’t need a piece of paper to state that I stutter. I can tell people that myself, if it becomes necessary. Sometimes, it’s very obvious that I stutter, sometimes not so obvious. There are times when I feel comfortable advertising that I stutter and times where I am not.

I’m curious. How do you feel about this? Would you carry this card with you when traveling?

 

A very courageous poster today made a comment in a Facebook stuttering group about how hard it is to watch himself and other people who stutter on video.

He shares very honestly that he can’t stand to see himself stutter and can’t bring himself to watch other people who stutter either. For him, it’s not a way of desensitization, but rather a form of torment.

This made me think about how hard a time I had when I was asked to make a video of myself stuttering when I did speech therapy some years back. I remember quite vividly how much I resisted doing it. I just did not want to see myself stutter. I felt my stuttering was ugly and I was aware of how I tensed up when I blocked and I just did not want a video reminder of that.

My speech therapist at the time really wanted to deconstruct my stuttering with me and felt strongly that viewing my stuttering was the best way to do it. She also wanted to be able to “count” my stutters as part of required data collection for her class. I hated that too, as I felt it made me nothing more than a piece of data to be collected and not really a person who just happens to stutter.

It took me the whole semester to allow her to record me doing a very short monologue where I hardly stuttered at all. Even looking at that with  her, with very little stuttering, made me feel self-conscious and embarrassed. I just didn’t like to see myself on video. I didn’t believe it could be helpful.

Fast forward, about 9 years later, and I find I am one of the people posting a video of me talking and stuttering in some of the Facebook groups. Something I never thought I could or would do, now I am doing with ease and posting publicly on the Internet. Wow!

What’s changed? Mostly, my attitude. I have reached a point in my life where I am OK with my stuttering and feel that I can  help educate and raise awareness about stuttering. I am OK with looking at myself and hearing myself on video. I think most of this comes with maturity and experience and a good dose of “I don’t give a crap.” 🙂

I am in awe of all the members in the stuttering groups who have taken a risk to post videos of themselves talking about their story with stuttering. Some of them have acknowledged that they are new to the community and have never met another person “in real life” that stutters. Through posting video stories, people are seeing and hearing other people who stutter and I think that it’s great to lessen feelings of isolation, which are common for people who stutter.

I’m glad that the poster had the guts to share how he really feels about seeing stuttering. It certainly gave me pause to reflect on where I’ve been and where I am at now.

I’m curious what you think. Have you ever seen a video of yourself talking and stuttering? How did it make you feel? Would you be willing to post a video of yourself in a stuttering forum on the Internet?

 

 


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